Living With FND - Nikki Martin-Hatton

Living With FND - Nikki Martin-Hatton Hi, I’m Nikki.

I’ve recently been diagnosed with Functional Neurological Disorder (FND), a condition affecting how the brain and body communicate and other conditions to, Sharing my journey, raising awareness & hoping to connect with others for support 🧡

24/08/2026

We try get content to raise awareness of FND/Fibro but Unfortunately sometimes we can’t! 😂 Kai did try which made me laugh…I still smile and so does he! 🥰🩵

18/08/2026

it’s my Journey to my first initial physio assignment 😊🫶🏼
Get this ball rolling on my recovery process 😁
Thank you everyone for Supporting Meee!! 🙏🏼🫶🏼 x x

14/08/2026

Guys, This is Me! From Start to finish!

My life took a Huge Turn by having a seizure back in March for no apparent reason!

My whole world turned upside down from stopping work (leaving my salon in trusted hands 🤦🏼‍♀️ I couldn’t drive, 😔 at home purely recovering on what I thought was the end.

After a devastating few months, full recovery process from what i learned myself! From being Diagnosed officially a few weeks ago with FND to being brushed under the carpet and shut the book on me. 😤

It’s NOT OK! We cannot be expected to fend for ourselves after such a traumatic experience.
There are children with FND and it breaks my heart to know there are so many people out there with this condition. 💔

I lost so much whilst in recovery. My fight, my dignity oh even friends.
I also have had horrible things said about me behind my back for example “I won’t succeed in life because I’m a fitter” cheers there C&Ks (between me and you I’ll let that lay) 🤔🙄 happily prove you wrong.

We need to raise more awareness. We need to people around us to help with this condition 😔 I’ve forced myself back In to Work out of circumstances that couldn’t be changed but it’s been a blessing as my legs are so much stronger 🙏🏼

I feel I have been lucky to learn myself and adjust to the new me after everything I’ve been through.

But now it is time for me to carry on and be the worrior I can be.
I am up, I am fighting FND. I will succeed 🫶🏼🧡💜

MK Wanderers FC raising money for FND Action in support of me and my journey with FND. ❤️ Sarra Coleman Mark HenmanTo se...
09/08/2026

MK Wanderers FC raising money for FND Action in support of me and my journey with FND. ❤️ Sarra Coleman Mark Henman

To see people coming together to support a condition that had completely changed my life means more than I could ever explain. 🧡💚💜🖤

So incredibly grateful to everyone involved. Raising money, raising awareness and showing that nobody has to face FND alone. 🧡💚

Thank you from the bottom of my heart 🥹 act love u all ⚽️❤️

MK Wanderers FCFND Action 💚🧡🖤
09/08/2026

MK Wanderers FCFND Action 💚🧡🖤

30/07/2026

Yesterday I had a very last minute cancellation with a Neurologist although my doctor diagnosed me the FND he said it has to be officially done by a neurologist for the paperwork!

Well … it’s now officially on paperwork!! Because the neurologist diagnosed me with FND! So FINALLY!! I get to receive the help i need ❤️🥰

🙏🏼

Well, What can I say about my life now, I went from a Very busy over run life to a point blank stop dead, breaking down ...
22/07/2026

Well, What can I say about my life now, I went from a Very busy over run life to a point blank stop dead, breaking down and crying that everything I built up and worked for …I was gonna loose.
I had my family around me, community support, people holding the fort for me with my company… I’m not gonna lie, it has been a moment in my life were i truly found out who was really there for me… people that have not spoke to me in years would come forward with lovely messages but right now… I couldn’t be more thankful.

A blessing in disguise has happened to me recently and I can’t actually express enough how proud I am of myself! so many people have told me. (I would Never Ever say this about myself) but the support, the messages have really helped me push to carry on! 🥹
Everything that has happened to me in the last month or two had forced me into a quick pace recovery and to manage my symptoms without a choice, to get my business rebranded and back on track, my god it’s been so hard! But I am telling myself, I can do this…I have to do this!!

I feel exhausted, every evening/morning is a battle, tick attacks still occur! I have not had a non-epileptic seizure in a few months now. I still have abit of paralysis in my legs so they are like jelly without my sticks but I know I am getting stronger Everyday!

I have all my family and supporters to thank for that! 🥹 Thank you! From the bottom of my heart 🙏🏼 x x x

30/06/2026

Neurology Update 💔

So guys, after me being so happy and so overwhelmed with the lady on the phone last week put me on a cancellation list.

It turns out it was all lies… How can someone listen to me …pour my heart out of my life being turned upside down… them to comfort me… and tell me there putting me on a cancellation list just to what…Shut us up…💔 i genuinely thought she helped. I was thanking her over and over again. 😭

Today I spoke to a women (Abit more abrupt) she said there has never been a cancellation list and will never be one… we work on referrals and Expedite letters. Which to then I said I have one of those…
She replied…no you don’t, I don’t have one on your account.. 😭😡 WHAT!?!?
She explained I need to ring the doctors…so I did, then the doctor said it was definitely sent 6 weeks ago.

I rang neurology back…I spoke to a lovely lady called Jackie…
And there I was again …
Crying with frustration and heartbreak 💔😭

Jackie wrote and email whilst I was on the phone to the secretaries explaining a letter was sent in and I’ve waiting since March …

I don’t feel at this time I can keep my hopes high.

I just wanna be able to walk again.
Walk adleast around the block once without my crutches 🤞🏼one day! … x

29/06/2026

*Update of my flying into my back gate catching the cat* 😂

I’m all good!!
I nave no broken bones, just bruises! 😊 I had a CT scan also and they think the symptoms I have on a daily basis with FND are similar to a head bang but all is ok. Just gotta be carful lol 😜 x x

———

Right….What ever person said…
“with FND you can’t walk but you can run!!”…
you are talking utter crap!! 💩

This morning I tried to get my cat in from being outside and decided to try run after her 🤦🏼‍♀️ WHY?? … Natural instincts…
I DIVED into my back gate, hit my head, gazed my hands and my right size of my body got the impact… But it’s my left side in agony??? 🤯 don’t understand how that works so… Contacted the doctors but I’ve got a feeling this is gonna be a hospital trip 😭 x x

UPDATE: I’m now on the cancellation list for Neurology! I called them up cried with true disappointment on what I’ve had...
25/06/2026

UPDATE: I’m now on the cancellation list for Neurology! I called them up cried with true disappointment on what I’ve had to endure the past few months! I need help with treatment now my legs are weak!! 😔 home life is seriously difficult with living!

Another Thing… I went to the dentist couple of days ago and my ticks, tremors and jerks are causing my jaw bones to grind and crack, Every time I open and shut my mouth 😔 I have been now diagnosed with TMD. Which is Temporomandibular Joint Disorder, my 3rd bite guard is being made lol I’ve now been referred to hospital for this But…

This morning, my front tooth has fell out 😭 so emergency dentist appointment this afternoon,
Wish me luck 🤞🏼x

(Photo🤭: Check Out My Wheels Parked up!

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