Lydia Osteoporosis Project

31/08/2026

Back pain, height loss, and severe pain that interferes with daily life?

These are the red flags for Pregnancy Associated Osteoporosis!

Know the signs, change the story. 💗

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14/08/2026

An important step forward for Awareness and women’s health!

We are pleased to share the news that updated guidance now recognises Pregnancy Associated Osteoporosis - PAO UK as a rare type of .

PAO can occur during pregnancy or in the postpartum period and, because awareness remains limited, diagnosis can sometimes be delayed. For some women, this can mean experiencing significant pain and multiple fractures before the condition is recognised.

This is therefore an important milestone in helping to raise awareness of PAO, both amongst healthcare professionals and the wider public, and hopefully supporting earlier recognition, diagnosis and better care for women affected.

A huge well done to Pregnancy Associated Osteoporosis - PAO UK and everyone whose lived experience, clinical expertise, research and advocacy have contributed to this important step. 💜

We also look forward to the first Pregnancy Associated Osteoporosis Awareness Day on 9 September (9/9) – another opportunity to continue raising awareness and learning together 🙌.

Find out more about PAO UK and their work at:
www.pao.org.uk

Pregnancy Associated Osteoporosis - PAO UK
National Institute for Health and Care Excellence
Queen Margaret University, Edinburgh
Royal Osteoporosis Society
Society for Endocrinology
International Osteoporosis Foundation
Lydia Osteoporosis Project

Welcome to Pregnancy Associated Osteoporosis UK, a charity focused on raising awareness and providing essential information and support for those affected by pregnancy osteoporosis (PAO). We aim to enhance understanding of this condition among the public and healthcare professionals.

14/08/2026

📑 : Hip fractures affect more than 14.2 million people worldwide each year, with increased risk among older adults, particularly women and individuals with low bone mineral density.

Most hip fractures result from falls, and 1-year mortality rates can be as high as 22%, with many patients experiencing lasting loss of mobility and independence.

Management includes prompt surgical repair, physical therapy, fall risk reduction strategies, and long-term use of antiresorptive or anabolic therapy, such as bisphosphonates, denosumab, or parathyroid hormone analogues, to prevent future fractures.

https://ja.ma/4wdjtiE

14/08/2026

🎶 We’re thrilled to announce our new Charity Patron — Rachel Newton! 💗

Rachel’s connection to PAO is personal. Following the birth of her daughter, she experienced severe, unexplained back pain while continuing to tour and perform. It was a friend, who had previously experienced PAO herself, who recognised the signs — including Rachel’s visible loss of height — and encouraged her to seek further investigation.

An X-ray revealed six vertebral fractures, leading to Rachel’s diagnosis of Pregnancy Associated Osteoporosis.

Rachel has since spoken openly about her experience, helping to shine a light on our condition. We are so grateful that she is using her voice and her music to help raise awareness!

14/08/2026

We are so pleased to bring the Lydia Osteoporosis Project Café to Midlothian for the first time 💚

A lovely opportunity to meet others living with osteoporosis, share experiences and connect with people who truly understand.

A special thank you to Elizabeth for sharing her experience and helping us highlight how important connection and community can be when living with an often invisible condition.

📅 17 September | 2–4pm
📍 Midlothian Community Hospital

Come along and find out more here: https://ow.ly/FBjE50Zzrbv

Lydia Osteoporosis Project Queen Margaret University, Edinburgh

Midlothian Council NHS Scotland

Retired teacher Liz, who is living with osteoporosis, is encouraging others affected by the bone disease to attend a special community café being held for the first time in Midlothian at Midlothian Community Hospital on 17 September from 2pm to 4pm.

Liz, who lives in Dalkeith, has found support, advice and community through the Lydia Osteoporosis Project Café. She says osteoporosis can be a lonely condition because it's an invisible illness. Often there's nothing obviously wrong with you, but you're dealing with pain every day. At the café you meet people who genuinely understand what that's like.

For more and to register to come along: https://ow.ly/FBjE50Zzrbv

07/08/2026

💡 JAMA Insights: is an effective component of care for people with conditions, and can help support behavior change.

This JAMA Insights article indicates that supportive conversations should acknowledge common barriers, frame activity as achievable daily movement rather than only structured exercise, and emphasize that any increase in activity can benefit health.

https://ja.ma/4fG5f54

07/08/2026

Physical activity is an effective component of care for people with chronic medical conditions. In this podcast, JAMA Insights author Alessio Bricca, PhD, University of Southern Denmark, discusses adaptable methods to promote physical activity in patients with chronic medical conditions with host An...

07/08/2026

Learn the signs of Relative Energy Deficiency in Sport (RED-S), why young athletes are at risk, and when to seek care from URochester Medicine experts.

04/08/2026

Our bone density begins declining earlier than you might think. But ensuring our diet is rich in certain nutrients can help to keep our skeletons strong.

31/07/2026

Keeping your bones strong isn't just about getting enough calcium. https://bbc.in/4yJjyNN