Just4Children

29/05/2026

29/05/2026

As most of my followers know, I am currently working hard to get my liver disease under control, but unfortunately after my latest liver scan, I have now been referred to a liver specialist at King's College Hospital.

It’s a worrying time, especially alongside everything that comes with living with Muscular Dystrophy and Lipodystrophy, but I’m staying positive and taking each step as it comes.

Hopefully this referral will help give us more answers and the best plan moving forward.

Thank you to everyone who continues to support me, check in on me and cheer me on through all of these health challenges. It truly means so much to me and my family. 💛

28/05/2026

So today my Mummy and me went for a walk and Mummy surprised me with a trip to Sainsburys!!

My first time in a shop in 6 weeks!!!

Do you think I enjoyed it?????

28/05/2026

Help Rebecca Insley raise money to support Just4Children

27/05/2026

26/05/2026

We’ve had a really positive appointment today for Oliver 🤍

When we found out Oliver had another fracture recently, I emailed a wonderful nurse at Alder Hey who we’d previously spoken with a few years ago after Oliver’s old fracture and his DEXA scan results. Back then there wasn’t really anything they could do to help at that time.

After hearing about this new fracture, she spoke with one of the bone doctors, who felt Oliver may now be a possible candidate for bisphosphonate treatment to help strengthen his bones. She wanted Oliver’s x-rays discussed at the radiology meeting and asked to see him in clinic in a couple of months.

We were incredibly lucky to get a last minute cancellation appointment today ❤️

The doctor explained that because of Oliver’s disability, being a wheelchair user, his epilepsy medications, and now having another fracture, these are all factors that can weaken his bones. She said she would be happy for Oliver to start treatment to help strengthen them.

He’ll now have an up to date DEXA scan, and if we go ahead, he’ll have infusions every 6 months.

She told us Oliver’s bones are very thin and it’s very likely he has some form of osteoporosis. Seeing his tiny little bones on the x-ray honestly made me feel so sad 💔

They’ve given us information to read through and time to think about whether we’d like to go ahead with the treatment.

if there’s something that could help strengthen his bones and give him even a little more protection, then I feel like I have to try. Alongside all his therapies, I just want to do everything I possibly can to help him.

Watching him go through fractures is heartbreaking. Because Oliver can’t tell us he’s in pain or where it hurts, it makes it even harder. As his mum, all I want to do is wrap him in cotton wool and protect him from everything.

I know there are never any guarantees, but if there’s a chance this could help protect his little bones and reduce the risk of this happening again, then it feels worth giving it a shot 🤍 ❤️