LAM Action

27/04/2026

LAM Action's 5 London Marathon runners tell us what it's like to take part.

If you'd like to run the Marathon for LAM Action we ask you to enter the ballot for 2027. You can do that here: https://www.londonmarathonevents.co.uk/london-marathon

Please contact [email protected] to let him know you've applied and he will then help you to run for the charity if you are successful or consider you for one of LAM Action's places.

26/04/2026

Congratulations and thank you to all 5 LAM Action runners who took part in today's London Marathon. Their fundraising total so far is over £20,000!

26/04/2026

London Marathon 2026 First LAM Action runner to finish - well done Marcus West

24/04/2026

Good luck to our amazing runners on Sunday! They all have a personal connection to a LAM patient so anything you can give in sponsorship will make a big difference - thank you!

Eleanor Fairbrother:
https://2026tcslondonmarathon.enthuse.com/pf/eleanor-fairbrother

Jonathan Smith:
https://2026tcslondonmarathon.enthuse.com/pf/jonathan-smith

Rachel Stinton:
https://2026tcslondonmarathon.enthuse.com/pf/rachel-stinton

Marcus West:
https://2026tcslondonmarathon.enthuse.com/pf/marcus-west

Leagh Callow:
https://www.justgiving.com/page/leagh-callow-4

15/04/2026

Hotter than a leftover hot cross bun, the spring edition of LAMPost is now hot off the press! Big thanks to everyone who contributed!

To download the version for mobile devices:
https://lamaction.org/wp-content/uploads/2026/04/LAMPost-Spring-2026-Mobile-Device-Friendly.pdf

To download the version for printing:
https://lamaction.org/wp-content/uploads/2026/04/LAMPost-Spring-2026-Print-Version.pdf

Happy reading and very best wishes from all of us at LAM Action.

06/04/2026

“Experiences of employment while living with rare diseases in the UK” (Another survey for LAM patients please, this time from the University of Nottingham)

18/03/2026

The agenda for the LAM Action 2026 Annual Meeting in York has now been finalised! We are confident that the programme for the day has something for everyone, and we have taken account of feedback and built in more time for socialising.

Please visit the following link to download the information pack which also includes the booking form. We look forward to seeing you in York on Saturday June 6th!

https://lamaction.org/wp-content/uploads/2026/03/LAM-Action-Annual-Meeting-2026-Registration-Form.pdf

16/03/2026

This opportunity is open to LAM patients around the world, including the UK!

Grant Study Section Patient Voice Committee

Applications are now open to join the Patient Voice Committee (PVC). PVC members will review grant proposals alongside scientific reviewers, provide feedback from a patient perspective, and vote on which studies to fund. The PVC ensures the patient voice is heard and that research remains focused on studies that will most impact those living with LAM.

Details:

Who: 3 patients will be selected (US and International)

Commitment: 25-30 hours per year

Term: 3 years

Interested? If you are active in the LAM Community and want to shape the future of LAM research, we want to hear from you!

Learn more and apply: https://www.thelamfoundation.org/take-action/gss-patient-voice-committee/

02/03/2026

They made it! Huge congratulations to Harriet Davidson, her husband Adam and best friend Lauren Weetch for battling through the pain barrier and completing 4 marathons in the space of 4 days to raise funds and awareness for LAM Action.

“We climbed over 2500m of altitude over the course of the four days, despite all of our aches and pains and blisters, had long and isolating moments on the Imber range and Salisbury plain, but the true determination and support from donations, positive messages and kind strangers truly got us through.”

An awesome achievement – well done to you all!

And they’re not stopping there – a charity quiz on Friday night will keep the fundraising going, with an incredible amount of approximately £8,000 raised so far! Big thanks to everybody who has supported their fundraising, if you would like to help, please visit the link below:

https://www.justgiving.com/page/harriet-saunders-3?utm_medium=FR&utm_source=CL&utm_campaign=021&fbclid=IwY2xjawQSVFRleHRuA2FlbQIxMABicmlkETBNY2doakhUbVRtejRxcDNOc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHtrZWnDCBbzcLUqI4F_P41F1kA-Onc4Z_wxhJB-NHctGbci9b-wzZIxxDRrA_aem_nJZAPl01PLGyAXOQFhQfnw

Well done again and thank you from all of us at LAM Action.

27/02/2026

Harriet Davidson is now on Day 3 of her challenge to run
4 marathons in 4 days and almost on the home straight to Salisbury.
Harriet is running with husband Adam and best friend Lauren
- the team at least had some sunshine for part of their epic journey -
and at the end of each day the latest tech is on hand for tired legs.
If you would like to support Harriet's fundraising here's the link: https://www.justgiving.com/page/harriet-saunders-3