LAM Action

23/09/2026

The newly created South West Support Group will have their first meeting in Exeter on Saturday 24th October, beginning at midday.

If you would like to join us, please respond to the email you should have received from the new group coordinator, and they will provide you with the details you will need. If you haven’t received a message, please check your junk email folder or email [email protected] who will be able to pass your contact details on.

Looking forward to seeing lots of ladies from the South West area to help relaunch what we hope will be another thriving local support group!

14/09/2026

Andy Davidson, who is the father/father-in-Iaw of former LAM Action Trustees Adam and Harriet Davidson, will soon be embarking on a voyage called Poppies & Purpose, a Veterans Honour Rally from Diss to Sarajevo and back, raising funds for LAM Action, alongside Street First Aid and The Veterans Charity.

Over to you Andy: “We leave on 26 September and return on 8 October, travelling through 12 countries in Car 25, our 25-year-old Škoda Fabia. The journey reflects my 25 years of British Army service and is centred around remembrance, veterans and purpose.

During my 25 years of service 702 British service personnel lost their lives on operations. The 702 poppies displayed on our car will represent every one of those lives. They are a visible reminder that behind every number is a person whose sacrifice should never be forgotten.

There’s also my very personal connection with LAM Action. Harriet Davidson, my daughter-in-law, is a LAM patient so supporting LAM Action makes this challenge particularly meaningful to our family.

We’d really appreciate it if the LAM community could share our journey across social media - every share helps us reach more people, raise awareness and, most importantly, raise more money for LAM Action.

Thanks so much for your support. We’re really looking forward to taking LAM Action with us on the journey.”

If you would like to follow Andy on his journey, live updates, photos and videos will be uploaded to the Street First Aid Facebook group, so people can follow Car 25 all the way to Sarajevo and back: https://www.facebook.com/profile.php?id=61574445692857

Anything you can give to support Andy’s fundraising will be gratefully received via his JustGiving page: https://www.justgiving.com/crowdfunding/poppiesandpurpose

A massive thanks Andy, we wish you a very successful and enjoyable, if poignant, trip! Best wishes from all of us at LAM Action.

11/09/2026

The next meeting of the London and SE support group will take place in Central London on Saturday October 17th at 2pm.

If you would like to join us please respond to the email you should have received from the L&SE group co-ordinator or if you are a newer member of the LAM community and not yet on the group list, or maybe your contact email is not up to date, then please contact Jill Pateman and she will be able to pass on your details to the group co-ordinator.

We are a very friendly and sociable bunch and gladly welcome any new faces to join us for a coffee (or something stronger!) so please do come along and say hello, looking forward to seeing you all on October 17th!

26/08/2026

It’s been a bit hot out there lately, but even hotter off the press is the summer edition of LAMPost! Big thanks to everyone who contributed!

To download the version for mobile devices:

https://lamaction.org/wp-content/uploads/2026/08/LAMPost-Summer-2026-Mobile-Device-Friendly.pdf

To download the version for printing:

https://lamaction.org/wp-content/uploads/2026/08/LAMPost-Summer-2026-Print-Version.pdf

Happy reading and very best wishes from all of us at LAM Action.

18/08/2026

https://www.bbc.co.uk/news/articles/cdrv4z77y2do

Prof Simon Johnson and long-standing LAM patient Helen Sabin have contributed to a wonderful BBC news item about the National LAM Centre in Nottingham. It’s generally an excellent piece which will help raise awareness of our very rare lung disease.

However, newly diagnosed LAM patients should ignore the sensationalist headline - even in 2008 a LAM prognosis was never as bad as Helen’s initial doctor suggested, and since then, as Simon explains and Helen’s story shows, we now have a successful treatment which has radically improved the outlook for patients.

Helen Sabin wants to support other patients, reduce fear and improve understanding.

29/07/2026

25/07/2026

Congratulations and thank you to Kat Johnstone and Mora McGovern, who completed the 25km Glen Tanar Trail Run in 3 hours 7 minutes to raise funds for LAM Action. Thanks also to everyone who has supported their fundraising. Kat's page is: justgiving.com/page/kat-johnstone-1

24/07/2026

Spare a thought for Kat Johnstone and her friend, Mora McGovern as they take on the Glen Tanar 25km Trail Run from 9am on 25th July to raise money for LAM Action. Glen Tanar is a gruelling course along some of the most scenic and challenging routes in Scotland.

Kat was diagnosed with LAM in early 2025, shortly after the birth of her twin girls. To support her fundraising go to: justgiving.com/page/kat-johnstone-1

08/07/2026

Good luck to Kat Johnstone (left) from Aberdeen, and her good friend Mora McGovern who will be taking part in the Glen Tanar 25KM Trail Run to support LAM Action on July 25th. As the name suggests this involves running a rugged 25 kilometre trail through the spectacular Cairngorms National Park in Royal Deeside.

Over to you Kat: “I was diagnosed with LAM after the birth of my cheeky twin girls in February 2025. I am in the early stages of the disease and still undergoing regular checks to monitor progression. Overall, I am doing well but I have been thrown into a new bubble that is struggling for support and funding of a rare disease. Any donation would be hugely appreciated. Thank you for the support for myself and all the other women who are currently living with this disease.”

Good luck Kat and Mora and thank you for supporting LAM Action – best wishes from us all!

If you would like to help Kat with her fundraising, please visit the link below:
https://www.justgiving.com/page/kat-johnstone-1?utm_medium=FR&utm_source=CL

18/06/2026

Good luck to Pippa Byrne from Ramsay who is taking on the Isle of Man 'Parish Walk' with the aim of completing the 85 mile route around the island in 23 hours. She is raising money for LAM Action because her friend, Anna Kerruish - a local farmer - has LAM. Pippa has taken on the challenge before, but last time she ended up in hospital. She hopes she has trained enough to avoid that this year.
As well as meeting up with Anna en route, Pippa will be supported by her partner, Simon and sister, Emma and her two sons, Daniel and Dylan.
Spare a thought for them all in the early hours of Sunday morning and if you would like to add to Pippa's fundraising total go to: https://www.justgiving.com/page/pippa-clare-1