07/09/2026
Today World Duchenne Awareness Day. My little corbz fighting strong every day πͺ
My little Hero π
It's held on 7/9 (7th September) in recognition of the 79 exons on the Dystrophin gene. A small genetic fault in just one of these exons is all it takes to cause Duchenne Muscular Dystrophy.
Duchenne Muscular Dystrophy is a devastating, progressive muscle-wasting disease. Those diagnosed with Duchenne are unable to produce dystrophin, a protein vital for the stability of muscle cells, without it muscle cells gradually waste and die. The ability to walk is usually lost by the early teens, by the early 20's those affected are mostly paralysed. The life expectancy of someone with Duchenne is just 28 years old. There is no cure, Duchenne is currently 100% fatal.
Duchenne occurs in 1 in every 3,600 male births and 1 in every 50 million female births to the same severity - it can occur in any race, any nationality, any family.
You can show your support by sharing this post to raise awareness of all those affected by Duchenne!
