06/04/2026
I was told I couldn’t go private for my surgery — because my case is too complex.
I need multiple surgeons involved — colorectal, urology, and an endometriosis specialist — because it’s affecting multiple areas, including my bowel (the most severe) and my ureters… and I only have one kidney.
I was told that if I tried to go private, I’d likely end up back in the NHS as an emergency due to the complexity.
So I’m left waiting.
During my appointment, I broke down. I told them I can’t keep living like this anymore.
At one point, my daughter became so scared about my health that she thought I was dying.
That broke me in a way I can’t explain.
My case has now been escalated to the clinical lead to try to get surgery as soon as possible.
This whole experience has shown me a side of the system I never expected.
I’m sharing this because people often say “just go private” — but for some of us, it isn’t that simple.
If you’re in this position too, you’re not alone 💛
