Strongbones Children's Charitable Trust

Strongbones Children's Charitable Trust Helping children with scoliosis , spina bifida and all other serious bone conditions alongside complex needs . Charity Reg 1086173.

Strongbones Children’s Charitable Trust is a national registered charity set up to help alleviate the pain, suffering and financial burden of families who have children suffering from brittle bone disease, bone cancer, scoliosis, arthritis, and all other serious conditions of the bone.The charity has now been registered for 20 years, which gives us years of experience in our field. This experience

has allowed us to assist children and their families with guidance on how to make their conditions more manageable and enhance their quality of life to an optimum level.Our aims are to take children out of social isolation and give them the ability to participate in every day life. We also relieve the families financial burden whilst they come to the realisation that their child has a long-term incurable disability that will have a life changing impact on the whole family. A majority of the children we encounter come from the most poverty stricken sections of society coupled with the fact that many of these parents have had to give up employment to provide round the clock care for the life altering conditions of their children. We are sure you appreciate it takes much strength and resilience to care for a disabled child, and we often feel society overlooks this as a whole, leaving carers and their children feeling severed from the outside world.

03/06/2026

🫟 Expressive Arts Pack 🖌️
Our Strongbones Team have had so much fun trialling and creating this brand-new pack. Our expressive arts pack is all about being inspired and artistic, trying different materials and using your imagination to create something amazing! Art is personal, it isn’t right or wrong, it’s how you feel and express yourself, and that’s exactly what we wanted this pack to be.

If you think your young person would love this pack as much as we do, please follow the instructions below to apply –
Send an application email to [email protected] with ALL of the following information, any missing information will result in your application being void –
1. Young person’s full name
2. Their date of birth
3. Their home address
4. A contact number for delivery
5. A recent diagnosis letter stating your young person’s medical condition

Please note, our applications are only for children and young people between the ages of 3 and 21, that meet our criteria.

As you can see from the video, our Project Development Officer, Myles, trialled the pack in his garden, this pack is perfect to do outside during the warmer months, within the pack there are plastic sheets to protect your garden!

We have limited amounts of the Expressive Art Pack, as soon as capacity is reached, we will close the applications, please get your applications in as soon as possible to avoid disappointment!

03/06/2026

🫟 Expressive Arts Pack 🖌️
Our Strongbones Team have had so much fun trialling and creating this brand-new pack. Our expressive arts pack is all about being inspired and artistic, trying different materials and using your imagination to create something amazing! Art is personal, it isn’t right or wrong, it’s how you feel and express yourself, and that’s exactly what we wanted this pack to be.

If you think your young person would love this pack as much as we do, please follow the instructions below to apply –
Send an application email to [email protected] with ALL of the following information, any missing information will result in your application being void –
1. Young person’s full name
2. Their date of birth
3. Their home address
4. A contact number for delivery
5. A recent diagnosis letter stating your young person’s medical condition

Please note, our applications are only for children and young people between the ages of 3 and 21, that meet our criteria.

As you can see from the video, our Project Development Officer, Myles, trialled the pack in his garden, this pack is perfect to do outside during the warmer months, within the pack there are plastic sheets to protect your garden!

We have limited amounts of the Expressive Art Pack, as soon as capacity is reached, we will close the applications, please get your applications in as soon as possible to avoid disappointment!

28/04/2026

We’ve received an email from Disabled Children’s Partnership, to complete an online form to make your voice heard by sharing your views -

‘The government is currently consulting on proposed changes to the SEND system, with responses closing on 18 May 2026.

The decisions made following this process will shape how support works for years to come — and it’s vital that the experiences of children, young people and families are part of what comes next.’

If any of our families would like to have their say, please click the link below, you don’t need to answer every question, even a short response on one or two issues can make a real difference!

16/04/2026

Tomorrow, Friday 17th April, Strongbones is officially 25 years old!
We have had the privilege of supporting so many amazing young people and their incredible families over those 25 years… we’re looking forwards to all the new friends we’re going to make in the years to come ❤️
🎉Happy 25th Birthday, Strongbones 🎉

Our newest pack lets you experience outer space firsthand!It comes packed with fantastic items like a Deep Space Home Pl...
26/03/2026

Our newest pack lets you experience outer space firsthand!

It comes packed with fantastic items like a Deep Space Home Planetarium and Projector, which can turn your room into an incredible cosmic light display.

If you want to get this space-themed pack, just click the link below and scroll to the bottom of the page for information how to apply.
https://www.strongbones.org.uk/grant/

Applications close Sunday 12th April 2026.

🐣 Easter competition winners!! 🐣Thank you so much to all our amazing entries for their Easter crafts, it’s been such a d...
16/03/2026

🐣 Easter competition winners!! 🐣
Thank you so much to all our amazing entries for their Easter crafts, it’s been such a difficult decision to make to pick just two winners, but here they are…
1st prize - Darcey and Eva - We absolutely LOVED Darcey’s Easter poem and Eva’s bright, colourful Easter pictures.
2nd prize - Theo - What a fantastic Easter bonnet Theo had made with the help from his cousin

Please can the two winners contact us via email - [email protected] - with your home address so we can get your prizes sent out in time for the Easter Bunny! 🐇

Our Project Development Officer, Myles, has been busy making some Easter creations to give you some inspiration for our ...
11/03/2026

Our Project Development Officer, Myles, has been busy making some Easter creations to give you some inspiration for our Strongbones Easter competition. 🐣
Don’t forget the competition closes THIS SUNDAY!!
Make sure we have your entries in to be in with a chance of winning one of our fabulous prizes!!! 🍫🖌️
To enter, simply make your creation, take a photo with it and post it in the comments.
The competition is open to our VIPs (young people with bone conditions aged 3-21) and their super siblings.
Good luck 🤞🏻

✨It’s time for another competition!✨🐣 As Easter is fast approaching, we would love for you to make or do some sort of cr...
24/02/2026

✨It’s time for another competition!✨
🐣 As Easter is fast approaching, we would love for you to make or do some sort of creation inspired by Easter! 🍫
Let’s give you a bit of inspiration…
🫟 Crafty ideas –
- Easter bonnet 👒
- Easter greetings card
- Bunting
- Drawing / painting 🖍️
- Decorate egg cups 🥚
- Make an Easter wreath to hang on your door
🥣 Baking ideas / decorating –
- Easter biscuits 🍪
- Easter bunny cupcakes 🧁
- Easter egg brownies 🍫
- Little chocolate nests with mini eggs 🪺
🕺 Performing –
- Make up a little tune / song 🎶
- Do an Easter Bunny dance 🐇
- Create a little Easter poem
Anything creative we love! So, get your thinking bonnets on, any make something amazing!
🥇 Cadbury Family Easter Chocolate Basket, Large Silicone Easter Egg mould and Extra Large Cadbury Chocolate bar to make your own eggs.
🥈 Easter tree with lights and decorations, Easter colouring tablecloth, Easter crackers, Easter scratch art egg decorations, 6 Easter egg light up spinning tops with music and Easter card making kit.
📸 To enter, simply make your creation, take a photograph or video with / doing it, and post it under this post in the comments. ⬇️
This competition is open to our VIPs (young people with bone conditions aged 3-21) and their super siblings; you could even enter as a family!
Competition entries close on Sunday 15th March, any received after this date will not be considered.
Good luck! 🤞🏻

❤️💕Our amazing valentines competition 1st prize winner 🥇 Megan, with her red Toniebox 2 and her chosen Tonie figure, Ms ...
12/02/2026

❤️💕Our amazing valentines competition 1st prize winner 🥇 Megan, with her red Toniebox 2 and her chosen Tonie figure, Ms Rachel 💕❤️

✨ Applications are still being accepted for a family respite break in our fully accessible adapted holiday home! ✨We wil...
03/02/2026

✨ Applications are still being accepted for a family respite break in our fully accessible adapted holiday home! ✨
We will be having a panel meeting on Monday to begin the sorting process of the applications.

We are taking applications to stay in one of our beautiful accessible holiday homes at Shorefield Country Park, Lymington, SO41 0LH. Each respite break will run from Monday to Sunday and will include digital passes to access the on-site facilities, including The Beachcomber Restaurant, arcades, evening entertainment and swimming pools, which have an indoor Changing Places, indoor and outdoor pool hoists and swimming aids.

The holiday home can only accommodate one wheelchair user due to space and fire evacuation procedures; it sleeps a maximum of 5 people including your VIP. This consists of the master bedroom with a double bed and a specialised profiling bed and a second bedroom with two single beds.

If you would like to apply to have a family respite break in one of our fabulous holiday homes, simply complete the PDF application form, found on our website, the link at the bottom of this post will take you directly to the ‘Apply for a Grant’ page and return it to [email protected]
You must also attach a copy of a recent diagnosis letter stating your young person’s bone condition along with the form, any missing information will result in your application being void.

Please note - no smoking or pets.

For the successful families, we will contact you with the next steps.
If you have any issues with the application form, please contact us via email, these will be answered Monday - Thursday, 09:30am - 3:00pm. All correspondence will only be through email.

http://www.strongbones.org.uk/grant/

DUE TO THE HOLIDAY HOME CONSTRUCTION AND WEIGHT CONSTRAINTS, WE CANNOT ACCEPT APPLICATIONS FOR CHILDREN / YOUNG PEOPLE THAT USE ELECTRIC WHEELCHAIRS.

Address

B9 Romford Seedbed Centre, Davidson Way
Romford
RM70AZ

Opening Hours

Monday 9am - 4pm
Tuesday 9am - 4pm
Wednesday 9am - 4pm
Thursday 9am - 4pm
Friday 9am - 4pm

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