European Lung Foundation

European Lung Foundation The European Lung Foundation (ELF) was founded by the European Respiratory Society (ERS) to bring together patients and the public with professionals.

🫁 Have you or a loved one been affected by lung cancer? The ELF Lung Cancer Patient Advisory Group (PAG) brings togeth...
28/05/2026

🫁 Have you or a loved one been affected by lung cancer?

The ELF Lung Cancer Patient Advisory Group (PAG) brings together people affected by lung cancer from across Europe, including patients, carers and patient organisation representatives.

Whether you have:
🔹 A story or experience you would like to share
🔹 An interest in advocacy or improving lung cancer care
🔹 Some time to support awareness and education activities
🔹 A desire to help shape future projects and resources

…we would be happy to talk to you about opportunities to get involved.

Learn more about the group and how to get involved: https://europeanlung.org/en/people-and-partners/patient-advisory-groups/lung-cancer/

🚀Three new animations from the project are now available to help explain lung cancer screening — what it is, who it is...
28/05/2026

🚀Three new animations from the project are now available to help explain lung cancer screening — what it is, who it is for and what to expect.

These short videos are designed to make screening easier to understand and support informed decisions.

👉 Watch the animations: https://shorturl.at/Iu18y

🔸The EU-funded Project focuses on strengthening lung cancer screening and making it more accessible across Europe. Learn more: https://shorturl.at/IKfTA

Health and Digital Executive Agency (HaDEA)

What would respiratory care look like if we started by listening first? The second ERS–ELF pre-Congress webinar focuses ...
27/05/2026

What would respiratory care look like if we started by listening first?

The second ERS–ELF pre-Congress webinar focuses on identifying and acting on unmet needs in respiratory care, and how systems can be designed around what patients actually experience. European Respiratory Society

Topics include:
🔹 Designing better joined-up respiratory care
🔹 Tackling health inequalities through collaboration
🔹 Learning from patient-led service development across different settings

📅 1 June 2026
🕔 17:00–18:00 CEST
🔗 Register here: https://channel.ersnet.org/media-121683-pre-congress-webinar-listening-first-identifying-and-acting-on-unmet-needs-1-june-2026

Leonidas is 70 years old and lives in Athens. He took part in lung cancer screening after discussing his age and smoking...
26/05/2026

Leonidas is 70 years old and lives in Athens. He took part in lung cancer screening after discussing his age and smoking history with healthcare professionals.

When he was told that an abnormal area in his lungs needed further testing, he was shocked and needed time to process the news.

Looking back, he feels reassured by his decision to take part in lung cancer screening and encourages others who are eligible to find out more about their lung health.

👉 Learn about Leonidas: https://shorturl.at/Syfl1

🫁 Today marks the start of European Week Against Cancer 2026, which this year focuses on “Together against cancer inequa...
25/05/2026

🫁 Today marks the start of European Week Against Cancer 2026, which this year focuses on “Together against cancer inequalities”.

Lung cancer can affect anyone, yet many people still face stigma, misinformation and delays in diagnosis.

The ELF website provides free, evidence-based information on:

🫁 Risk factors and symptoms
🫁 Diagnosis and treatment
🫁 Living with lung cancer
🫁 Common myths

The resource is available in 9 languages and also includes information about the ELF Lung Cancer Patient Advisory Group (PAG) for people who would like to support projects that can help improve diagnosis, treatment and care.

Learn more: https://europeanlung.org/en/information-hub/lung-conditions/lung-cancer/

25/05/2026

Young children can end up in hospital because of viral infections like bronchiolitis. Marielle Pijnenburg explains that vaccines can reduce these admissions by up to 90%.

Science keeps us healthy. That is why ELF and European Respiratory are urging leaders to and .

Support our campaign: https://www.ersnet.org/advocacy/campaign-defend-science

💬 Patient organisations: showcase your impact in lung health Your work makes a real difference every day, through advoc...
23/05/2026

💬 Patient organisations: showcase your impact in lung health

Your work makes a real difference every day, through advocacy, services, education, campaigns and collaboration with healthcare professionals and researchers.

We are inviting patient organisations to share these experiences through Global Voices 2026, a campaign celebrating partnership in lung health: https://woobox.com/ayfu33

This is a unique opportunity to showcase the projects and collaborations that are improving care and quality of life for people living with lung conditions, whether your work is done locally or internationally.

Contributions will be featured in the Global Voices 2026 gallery and showcased at the ERS Congress 2026. Take part: https://woobox.com/ayfu33

European Respiratory Society

🫁 Patients and carers are helping shape the future of lung health across Europe. The latest ELF Patient Advisory Group (...
22/05/2026

🫁 Patients and carers are helping shape the future of lung health across Europe.

The latest ELF Patient Advisory Group (PAG) Round-up highlights the work of ELF’s PAGs, each focused on a different lung condition. Made up of people with lived experience of lung conditions, carers and patient representatives, the groups work with healthcare professionals and researchers. They contribute to new research and clinical trial development, co-design patient information, speak at conferences and help shape education and care for lung conditions.

Learn more about their activities: https://europeanlung.org/en/news-and-blog/patient-advisory-group-round-up-may-2026/

How can patient experience shape the way clinical guidelines are written?Join the first ERS–ELF pre-Congress webinar exp...
22/05/2026

How can patient experience shape the way clinical guidelines are written?

Join the first ERS–ELF pre-Congress webinar exploring how patients and professionals can work together to develop respiratory guidelines that are more relevant and impactful. European Respiratory Society

This session will look at:
🔹 The benefits and challenges of involving patients in guideline development
🔹 Real examples from respiratory guideline work, including Primary Ciliary Dyskinesia (PCD)
🔹 How recommendations are translated into meaningful changes in clinical practice

📅 27 May 2026
🕔 17:00–18:00 CEST
🔗 Register here: https://channel.ersnet.org/media-121682-pre-congress-webinar-writing-guidelines-together-integrating-the-patient-voice-in-clinical-practice-standards-27-may-2026

💬 The UNITE4TB Community Advisory Group brings patient voices to TB researchThe UNITE4TB Community Advisory Group took p...
21/05/2026

💬 The UNITE4TB Community Advisory Group brings patient voices to TB research

The UNITE4TB Community Advisory Group took part in the annual UNITE4TB meeting, making sure the perspectives of people with TB were heard in discussions on research and clinical trials.

They highlighted that young people must be included in future studies and that trials need to better reflect real patient needs.

🔗 Read more: https://europeanlung.org/en/news-and-blog/elf-community-advisory-group-participates-in-annual-unite4tb-meeting/

20/05/2026

Vaccines are one of the most important medical advances in recent years. Ioannis Vogiatzis explains that vaccines helped reduce serious COVID-19 infections, kept people out of hospital and saved lives.

Cutting funding for research programmes, like those that produced the vaccines, leaves us less prepared for future outbreaks. That is why ELF and European Respiratory Society are urging European leaders to keep supporting scientific research, making sure it is well funded and independent.

Help us to and . Learn more: https://www.ersnet.org/advocacy/campaign-defend-science

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