UK MS Register

20/10/2026

We were recently sent this photo of Register participant Mark at an MS event. As an active participant of the Register's PPIE group, Mark is a real champion of our study 🙌

We are so grateful to people like Mark for everything they do to promote the Register in their local MS communities 🧡 If you are hosting an MS event and would like some Register leaflets, please get in touch: [email protected]

15/10/2026

Once again we are proud to be supporting partners of the European Committee for Treatment & Research in Multiple Sclerosis (ECTRIMS) Patient Community Day 🌍

Join the conversation with people affected by MS, researchers and healthcare professionals from across the community. Dr Rod Middleton will be attending on behalf of the UK MS Register.

Can't attend in person? The event will be live streamed, so you can take part wherever you are: www.ectrimspatientcommunity.eu

09/10/2026

The Register are in Llandudno today at the MS Society UK's Community Information Day! These events are designed to support the community across North Wales by bringing together individuals, families, carers, and professionals. The aim is to share information, build connections, and highlight the wide range of services available to help people live well with MS 🧡

Register Senior Data Scientist, Dr Jeff Rodgers, is ready to welcome guests and tell them all about the UK MS Register and how they can support MS research.

08/10/2026

We had a fantastic day on Tuesday welcoming guests to Swansea University for another MS Campus Research Day, which also gave us the opportunity to celebrate 15 years of the UK MS Register 🎉🎂

A huge thank you to Ceri Ms-Society from the MS Society UK for bringing together such an engaged group fundraisers, people living with MS, and MS Society staff. It was wonderful to see so much interest in the innovative MS research taking place here at Swansea 🔬

We'd also like to thank Dr Owain Howell and his PhD students for delivering an insightful and engaging laboratory tour. On this occasion, Dr Rod Middleton was joined by Dr Owen Pearson, Clinical Lead for the MS team covering South West and West Wales to share more about the importance of MS research and clinical collaboration 🙏

30/09/2026

This summer, Esther joined the UK MS Register through the Health Data Research UK (HDR UK) Black Internship Programme, and spent her internship investigating the links between MS and mental health.

In our latest blog, Esther reflects on the skills she developed, and how the experience has shaped her future career aspirations. Read more: https://blog.msregister.org/hdr-intern-joins-the-team/

28/09/2026

In four short weeks, on 23 October, we will come together for Patient Community Day, supported by our 64 partners worldwide.

We are grateful for their support. Patient Community Day is the inspiring conclusion to , where the latest research highlights are shared directly with those most impacted by them: people living with MS and related neurological conditions.

Our Supporting Partner network includes patient organisations, research and clinical centres, advocacy groups and other organisations supporting people affected by MS, NMOSD and MOGAD.

Together, they connect Patient Community Day with communities around the world, helping the latest research and information reach the people it matters to most.

👉 Share this post with your community and invite them to take part: https://bit.ly/3T3BQ8U

⭐ 𝐎𝐮𝐫 𝐒𝐮𝐩𝐩𝐨𝐫𝐭𝐢𝐧𝐠 𝐏𝐚𝐫𝐭𝐧𝐞𝐫𝐬:

Multiple Sclerosis International Federation (MSIF), National Multiple Sclerosis Society, European Multiple Sclerosis Platform (EMSP), European Charcot Foundation, MStranslate, MS Canada, Destination Toronto, RealTalk MS,

Multiple Sclerosis Association of America (MSAA), Manitoba Multiple Sclerosis Research Centre, The Neuro (Montreal Neurological Institute-Hospital), Esclerosis Múltiple España, The Sumaira Foundation EU, Multiple Sclerosis Trust, Shift.ms, Cambridge Clinical Multiple Sclerosis Research,

MS Australia, Deutsche Multiple Sklerose Gesellschaft, Bundesverband e.V.(DMSG), UK MS Register, Multiple Sclerosis Ireland, Asociación Española Nmosd: NMO y MOGAD ,

Israel MS Society, Research Center for Clinical Neuroimmunology and Neuroscience (RC2NB), Hungarian Neuroimmunology Society, Le réseau ALSACEP, The Multiple Sclerosis Fashionista, Kultivate,CEMCAT, MENACTRIMS,European Brain Council, Swedish MS Association, We Are ILL and The Barlo MS Centre

👇 𝐒𝐞𝐞 𝐦𝐨𝐫𝐞 𝐨𝐟 𝐨𝐮𝐫 𝐒𝐮𝐩𝐩𝐨𝐫𝐭𝐢𝐧𝐠 𝐏𝐚𝐫𝐭𝐧𝐞𝐫𝐬 𝐢𝐧 𝐭𝐡𝐞 𝐜𝐨𝐦𝐦𝐞𝐧𝐭𝐬 𝐛𝐞𝐥𝐨𝐰.

22/09/2026

Octopus Trial Update Webinar 📣

📅 Wednesday 23rd September, 6pm
📍 Online

Hear from Professor Jeremy Chataway (Octopus Chief Investigator) and Dr Emma Tallantyre (Octopus Recruitment Lead) as they share the interim results of the trial, what these mean for people with MS and what's next for Octopus. There will be the opportunity to ask questions.

Octopus is a world-first trial for progressive MS. We'll share the results of the interim analysis and what these mean for our community.

17/09/2026

Octopus is a world-first multi-arm multi-stage clinical trial funded by the MS Society UK. It's designed to test potential treatments for progressive MS up to three times faster than traditional trials. The UK MS Register hosts the registration of interest platform for this trial. In this video, Professor Jeremy Chataway, chief investigator of the trial, shares the interim results 👇

Octopus is our world-first multi-arm multi-stage clinical trial. It...

16/09/2026

🍂 Autumn Questionnaires are now live on the UK MS Register.

Alongside our regular questionnaires, we've introduced a brand-new questionnaire exploring technology use and social media.

Technology plays a huge role in many of our daily lives, but we want to better understand how people with MS use technology, what benefits it brings, and whether it has any impact on life with MS.

Our Chief Investigator, Rod Middleton, explains more about why we're asking these questions and how your experiences can help shape future research:

🔗https://blog.msregister.org/new-questionnaire-on-the-register-2/

14/09/2026

If you’ve just been diagnosed with MS, you might be struggling to adjust.

We’re working in partnership with MS Together to help you make sense of an MS diagnosis.

Join us for our webinar to learn more about MS and the support available. 🧡

📆 Thursday 17 September
⏰ 6:30pm

Find out how to register: https://mssoc.uk/3UNNybM