Ataxia aware

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Ataxia aware People with Ataxia have problems with speech, coordination and balance. Ataxia gets worse over time, until they become dependent on others.

patient founded and patient focused, run by patients Ataxia Patients Charity 1184030

Patients Helping Patients
encompassing associated Rare disease and Movement Disorders
Maximising the patient voice within the Medical / Health / pharma community

Where is the ? the "Coordination Kingdom"as depicted in our logo and aware
13/10/2026

Where is the ?
the "Coordination Kingdom"

as depicted in our logo

and aware

Shared via our friends Ataxia FoundationJoin Lexeo Therapeutics for an informational webinar about the latest developme...
12/10/2026

Shared via our friends Ataxia Foundation
Join Lexeo Therapeutics for an informational webinar about the latest developments in its ataxia (FA) gene therapy program.
Dr. Gregory Aubert of Therapeutics and Dr. Theresa Zesiewicz of the University of South Florida will share updates on the SUNRISE-FA 2 clinical trial, which is evaluating an investigational gene therapy called LX2006. The trial is studying whether this therapy may improve heart function and slow the progression of heart disease associated with Friedreich Ataxia.
This webinar is designed for individuals living with Friedreich Ataxia and their families who want to learn more about emerging research and potential treatment options.
Register Now: https://us02web.zoom.us/.../reg.../WN_yqlnIQg0RRK8ub-1R76gJA

10/10/2026

Some, awareness images from this week





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