OUCH (UK) - Cluster Headaches

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OUCH (UK) - Cluster Headaches Cluster Headache support non profit charity OUCH (UK) is a UK based, non profit charity funded purely by members and donations.

We are primarily focused on the medical condition known as Cluster Headache. See Mission below for more information.

*PLEASE NOTE THAT ALL POSTS ON THIS PAGE ARE PERSONAL OPINIONS AND ARE NOT ENDORSED BY OUCH (UK). ANY ADVICE SHOULD ONLY BE FOLLOWED AFTER CONSULTATION WITH A TRAINED MEDICAL PROFESSIONAL*

This page is dedicated to OUCH (UK) and as such we ask that you refrain from promoting other pages or charities.

It is that time of year!....Raise awareness with a beautiful OUCH (UK) Christmas card. We have two designs this year: C...
12/10/2026

It is that time of year!....

Raise awareness with a beautiful OUCH (UK) Christmas card.

We have two designs this year: Christmas Window and The Night Before Christmas.
Both have been drawn and generously donated by Jamie Charteris.

The cards are sold in packs of 8 of each design £4.00 per pack, plus postage.

OUCH (UK) members can get a 10% discount.

The greeting inside reads Merry Christmas and the OUCH (UK) information is on the back of the card.

The inside also gives the title of the image and name of the artist plus: "This Christmas card was purchased from OUCH (UK) The Organisation for the Understanding of Cluster Headache Supporting sufferers of a rare and devastating neurological condition"
These cards are on sale now from our shop:

https://ouchuk.org/shop

post:

TRACY WAKEFIELD GREAT NORTH RUN 2026 ✅️ Well done, Tracy another one completed. Thank you! 👏🏻👏🏻👏🏻👏🏻👏🏻🤩 Tracy Wakefield h...
13/09/2026

TRACY WAKEFIELD GREAT NORTH RUN 2026 ✅️

Well done, Tracy another one completed. Thank you! 👏🏻👏🏻👏🏻👏🏻👏🏻🤩

Tracy Wakefield has been raising funds OUCH (UK) and awareness for the cause for 10 years now up and down the country... marathons, half marathons, many worn out pairs of trainers, scuffs, scrapes and sore knees. A reminder that this girl is not a sufferer she just took it upon herself 10 years ago to support our charity and we're extremely grateful for it.

If you would like to show your appreciation you can donate here:

https://ouchuk.org/civicrm/contribute/transact?reset=1&id=2

There's a box available to state you're donating to Tracy Wakefield's event. We're glad of any small amount you feel able to donate.

A huge thanks to Tracy from all of us here at OUCH 👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻.

Hard to believe this was 9 years ago. It was the second time Tracy ran the Great North Run for OUCH and she's been runni...
13/09/2026

Hard to believe this was 9 years ago. It was the second time Tracy ran the Great North Run for OUCH and she's been running it (and other running events) every year since then for this charity. If you would like to show your appreciation you can donate here:
https://ouchuk.org/civicrm/contribute/transact?reset=1&id=2
There's a space to say you're donating to sponsor Tracy Wakefield. Every penny counts towards the costs of keeping OUCH going!

Good luck, Tracy. Massive thanks from all of us.

JOIN US:Your membership of OUCH (UK) enables us to reach out and help others who suffer the same terrible condition that...
08/09/2026

JOIN US:

Your membership of OUCH (UK) enables us to reach out and help others who suffer the same terrible condition that you do. Our charity will grow as the membership grows and our collective voice gets louder and louder.
We continue to help Cluster Headache sufferers by providing information and support. For only £13 a year, your membership fees (or donations) will enable us to continue to do this for both existing members and new ones.

As a member you will also be able to post on the forum and join in the discussions as well as subscribe to topics of interest to you. You will benefit from a 10% discount on items in our online shop. We also send membership email updates with info about upcoming events, news about latest research and trials as well as the charity magazine CHit CHat. What are you waiting for? We are stronger together! 🤗
https://ouchuk.org/civicrm/contribute/transact?reset=1&id=1

07/09/2026

Aviva Camino Walk. 16-20th September, 2026.

Here's an exciting fundraiser set up by Richard McLaren whose wife suffers from cluster headaches:

"Some of you may remember that for the past few years myself and my Aviva colleagues have walked different sections of the Spanish Camino Walks. This year
we will be walking a section of the Camino Norte, from Bilbao to Santander, which is 125km over 5 days, 16-20 September. Various charities have benefitted from our walk and your kindness over the past few years, but the primary driver has always been a personal connection to one of us doing the walk, or the wider Aviva Community in Maxim/Glasgow and beyond through our wider colleague group or suppliers we work closely with. This year, I have proposed OUCH UK as the Charity to benefit for the most personal of reasons. My wife, Claire, has suffered from this condition since the summer of 2014. and has had to make many adjustments to her family, work and social life as a result. When the attacks ‘peak’ it is truly frightening to watch, and to be honest, I have no real understanding of what she has to go through. At the moment, there is, sadly, no cure, but OUCH UK are striving to find one via funded research, as well as providing advice, support and practical help to those who suffer from this debilitating condition, who are roughly equal in number to the amount of multiple sclerosis sufferers in the UK. Many Thanks for your Donation."
"Buen Camino"

September is Su***de Prevention Awareness Month.When we talk about mental health and su***de prevention, we must also ta...
03/09/2026

September is Su***de Prevention Awareness Month.

When we talk about mental health and su***de prevention, we must also talk about severe, intractable chronic pain and the devastating reality of Cluster Headache.

Known in medicine as one of the most painful conditions a human can experience, cluster headaches are frequently referred to as "su***de headaches". That name is not an exaggeration: surveys and clinical studies show that over 50% of people living with cluster headaches report experiencing suicidal thoughts.

The mental health impact goes far beyond the acute attacks:

The agony of attacks: Strikes arrive at terrifying speed, often multiple times a day or night, causing searing, unilateral head pain that leaves patients pacing, screaming, and desperate for any relief.

The "shadow": Between attacks, patients live under intense dread of the next cycle, leading to chronic anxiety, anticipatory trauma, and sleep deprivation.

Isolation and misdiagnosis: Patients often wait years for an accurate diagnosis, frequently having their pain dismissed as "just a migraine" or "a bad sinus issue."

Treatment barriers: Lifesaving acute abortives like high-flow oxygen can be difficult to get prescribed or funded, leaving patients stranded without relief.

Physical pain and mental health are inextricably linked. For Cluster Headache Warriors, suicidal ideation is often not about wanting to end life it is about an overwhelming need to end unbearable, untreated agony.

How can you help:

Listen and believe people living with severe pain disorders.

Advocate for better access to oxygen therapy and cluster-specific abortives.

Check in on friends or family members living through an active cycle.

If you or someone you know is struggling or in crisis, help is available:

UK: Call 111 (NHS) or 116 123 (Samaritans)
International: Find local resources at findahelpline.com

***dePreventionMonth ***deHeadache

02/09/2026

Browse our selection of OUCH(UK) products from tshirts to wristbands, running vest to Christmas cards. All profits go to the charity.

COME AND JOIN US. BE PART OF THE OUCH (UK) MEMBERSHIP. 👥👥👥👥👥👥👥👥👥👥We need your support. Your membership of OUCH (UK) enab...
18/08/2026

COME AND JOIN US. BE PART OF THE OUCH (UK) MEMBERSHIP. 👥👥👥👥👥👥👥👥👥👥

We need your support. Your membership of OUCH (UK) enables us to reach out and help others who suffer the same terrible condition that you do. Our charity will grow as the membership grows and our collective voice gets louder and louder.
We will continue to help Cluster Headache sufferers by providing information and support. Your membership fees or donations will enable us to continue to do this for both existing members and new ones.

As a member you will also be able to post on the forum and join in the discussions as well as subscribe to topics of interest to you. You will benefit from a 10% discount on items in our online shop when you're logged in. We also send membership email updates with info about upcoming events, news about latest research and trials as well as the charity magazine CHit CHat.

Please consider joining us. We are stronger together.

https://ouchuk.org/civicrm/contribute/transact?reset=1&id=1

Address

Tenby
SA709AG

Telephone

+448006696824

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