ACC Support UK

19/05/2026

Our ACC community have their own morning Q&A session. Book by Friday!
📲 https://www.amend.org.uk/patients/amend-support-services/events/national-events/2026-annual-patient-information-day/.

📣 LAST CHANCE TO BOOK! DEADLINE 22 MAY!

This year's patient information event is in collaboration with Neuroendocrine Cancer UK on Saturday 6th June in Sheffield. We are almost at max capacity and so if you don't want to miss your chance to come along, please book by midnight on Friday 22nd May.

The programme and how to book are on our website:
📲 https://www.amend.org.uk/patients/amend-support-services/events/national-events/2026-annual-patient-information-day/

24/04/2026

🙏 Thank you for joining us this World Hormone Day. We hope you have learned something and that you can use some or all of the recommendations to improve your hormone health.

Don't forget to talk to your doctor if you experience any of the symptoms listed during the campaign.

This World Hormone Day, be hormone aware!

📲 https://www.ese-hormones.org/what-we-do/outreach/world-hormone-day/

24/04/2026

Even those with existing diseases of the endocrine system are at risk of other hormone-related conditions, so it's good to be aware of other signs and symptoms.

This World Hormone Day, share these slides to make people aware of these signs and symptoms.

📲 https://www.ese-hormones.org/what-we-do/outreach/world-hormone-day/

24/04/2026

⚠️ Signs and Symptoms of Adrenocortical Cancer (ACC)

Often there are few signs or symptoms of ACC; however, symptoms that do occur may be due to high levels of steroid hormones that cause symptoms that may include:
⚠️ diabetes
⚠️ high blood pressure
⚠️ sexual dysfunction,
⚠️ muscle weakness and wasting,
⚠️ weight gain,
⚠️ excess facial or body hair in women
⚠️ baldness in women
⚠️ deepening of the voice in women
⚠️ soreness and increase in the size of the breasts in men
⚠️ early puberty in children,
⚠️ osteoporosis,
⚠️ mood changes.

These symptoms need to be discussed with your doctor.

📲 Learn more here: https://accsupport.org.uk/about-acc/acc-in-adults/symptoms-of-acc/

24/04/2026

ℹ Adrenal Glands and Adrenal Hormones

Usually you have two adrenal glands, each the size of a walnut, sitting on top of each kidney. They make several hormones that help keep salt, water and blood pressure in balance, as well as to cope with stress.

When the adrenal glands make too much or too little of one or more hormones, this can cause a variety of symptoms. More than normal amounts of adrenal hormones can be caused by a tumour or cancer in the gland, like adrenocortical cancer (ACC).

This World Hormone Day, be hormone aware!

📲 https://www.ese-hormones.org/.../outreach/world-hormone-day/

European Society of Endocrinology (ESE)

24/04/2026

ℹ This World Hormone Day, even those of us with diseases that disrupt our hormones can help others (and ourselves) to avoid other preventable problems. The 10 steps for good hormone health include:

✅ eat healthy and avoid preventable hormone deficiencies
✅ get physical
✅ get more sleep
✅ avoid plastic packaging
✅ improve indoor air quality
✅ choose cosmetics wisely
✅ be aware of signs and symptoms of endocrine disease

We will be sharing more information on signs and symptoms of endocrine disease throughout the day, so start by sharing this video and follow us for more.

📲 https://www.ese-hormones.org/what-we-do/outreach/world-hormone-day/

23/04/2026

Thanks to our members for participating. 🙏

When liquid hydrocortisone was discontinued, we took action. We contacted the Department of Health and Social Care - DHSC and Pfizer on ACT-O-VIAL® availability. We asked you to write to your MPs using our letter templates. Over 90 of you copied us into your MP emails so we could take follow-up action.

📩 Our latest member email (sent this evening - check your inbox!) shares a behind-the-scenes progress update.

This email has been sent to all ADSHG members, and also to non-members who are involved with this campaign through writing to their MPs and copying us in. Thank you to our campaign supporters 🙌

Members can also read this update on our online members forum (log-in required) 🔗 https://loom.ly/3rGh2Fk

This is a continuously evolving situation. But thanks to your voices, awareness is growing, not just about adrenal insufficiency, including Addison’s disease, but also about adrenal crisis management.

📣 Want updates like this direct to your inbox? Become a member to receive our Advocacy Updates and read on our forum. Your membership directly supports our work and allows our small but mighty charity to continue driving change. We need your support and together we're stronger ➡️ https://loom.ly/UmUT4bM

23/04/2026

📣 Don't forget that tomorrow, Friday 24th April, is World Hormone Day.

Join us here as we share information about adrenal glands, hormones, and the importance of hormones to health and wellbeing. Help us and our colleagues around the world raise awareness in the interests of world health. 🧬🧪💊

Learn more and get involved here: 📲 https://www.ese-hormones.org/.../outreach/world-hormone-day/

European Society of Endocrinology (ESE)

17/04/2026

📣 Just one week until World Hormone Day!

We will be sharing information on
ℹ️ what hormones are and what they do
ℹ️ what symptoms occur when things go wrong, and
ℹ️ how to keep 'hormone healthy'

You can get involved by liking and sharing our posts, or by downloading resource from the European Society for Endocrinology's website

📲https://www.ese-hormones.org/education-and-training/events-key-dates/world-hormone-day-2026/

📍Join us on Friday 24th April to raise awareness of hormones, hormone health, and hormone disease.


European Society of Endocrinology (ESE) World Hormone Day

14/04/2026

📣 Take action following the discontinuation of hydrocortisone sodium phosphate by contacting your MP.
Your voice matters. Whether you live with adrenal insufficiency, or support someone who does, we need you to speak up by writing to your MP and help drive change.
This is more than a medication issue, it's a serious patient safety concern that puts lives at risk. In an adrenal crisis, every second counts. Sharing your personal experience helps MPs understand the real impact.
📝 Use ADSHG's ready-made template to email or post to your MP. It only takes a couple of minutes! ⤵️
https://loom.ly/yR0adyk
💻 Tip: We recommend downloading the letter template on a laptop or computer, where the download file is easier to locate than on a mobile phone.
The more people who contact their MP, the stronger our voice. Thank you for helping make change happen.

Let your MP know how you feel about the discontinuation of the manufacture of liquid hydrocortisone in the UK. A template letter for you to fill out and post to your MP (or equivalent in the devolved nations), or to copy and paste into an email.