01/09/2026
Hello lovely SUP yogis. This month I’m taking part in a fundraiser for a rare eye condition we have in the family.
My nephews both have Choroideremia which is a degenerative eye condition. One of them already has poor vision because of it sadly: (. It’s transmitted by women and the males get it. It means I could have it and if I have kids, could give it to them. I’m planning on going for genetic testing.
Anyway, my sisters have organised a fund raiser which is raising money for research. Apparently there has been some amazing and meaningful research. Whilst it’s a rare condition 1 in 50k people have it, but testing has only just become possible and a lot of eye conditions could actually be this.
If you’d like to donate or if you want to just have an active goal you can always join the fundraiser. We’re travelling 100km this month. An opportunity to get back on the lake!
All the info is in the link below.
https://activeteams.co.uk/challenges/steps-for-sight/