Mitrofanoff Support

Mitrofanoff Support Mitrofanoff Support is a UK registered charity providing information and support in all areas relating to the Mitrofanoff procedure.

Professor Paul Mitrofanoff created the Mitrofanoff (mi-trof-fan-off) procedure in 1976, also known as the Mitrofanoff Appendiciovesicostomy or a Continent Urinary Diversion. The Mitrofanoff was introduced to permit bladder drainage where voiding or urethral self-catheterisation is not possible. For a patient the procedure enables them to maintain dignity and means that there is no need to have an

indwelling catheter or wear a stoma bag. What is a Mitrofanoff?

• Creates a channel into the bladder
• A catheter is used visa the channel to empty the bladder

The Mitrofanoff is often situated on the right hand side of the lower abdomen, just below the underwear line or for cosmetic appearances another possible site is the umbilicus. The procedure may be an option due to the following conditions:

• Congenital birth malformations ie; bladder exstrophy, bladder epispadias, spina bifida and neurogenic bladder
• Multiple Sclerosis
• Spinal Cord Injuries and paraplegia
• Bladder cancer patients and in some cases prostate or bowel cancer

Bladder enlargement or replacing a bladder:

• Bladder augmentation, this is to enlarge a small bladder and to create a sufficient reservoir
• Neo bladder, when a new bladder is created due to disease

Complications, post operatively:

• Stenosis (narrowing)
• Leaking
• Stones
• Infections

All procedures and surgery come with risks and complications, the Mitrofanoff procedure may not be suitable or successful in some cases. The benefits

The Mitrofanoff procedure can be a long-term solution to enable patients to maintain a normal quality of life and dignity.

A message from our Gold Partners FlexicareYou can find a wealth of free, helpful support articles and resources designed...
05/06/2026

A message from our Gold Partners Flexicare

You can find a wealth of free, helpful support articles and resources designed to help you get the most of your Flexicare products and services.

Phone: 0800 999 26 11
Website: www.flexicare.com/support

A message from our Gold Partners Vesica UrologyThe OptiSmooth Mitro XL catheters are now being used in major bladder rec...
04/06/2026

A message from our Gold Partners Vesica Urology

The OptiSmooth Mitro XL catheters are now being used in major bladder reconstruction centres in the UK!

4 Extra Large XL drainage eyes that really help improve drainage & flush out mucus

Email [email protected] for samples

We’re excited to announce our new partnership with Run for Charity! 🎉You can now get guaranteed places in over 800 event...
27/04/2026

We’re excited to announce our new partnership with Run for Charity! 🎉

You can now get guaranteed places in over 800 events across the UK while raising vital funds for Mitrofanoff Support.

Whether you choose to run, walk, cycle or take on a personal challenge, every pound you raise goes directly towards supporting Mitrofanoffers and their families with information, support, reassurance and connection.

From 5Ks to marathons, obstacle courses to overseas challenges – there’s something for everyone!

Take on your next challenge for a cause that truly makes a difference. 💙

Sign up here:
https://runforcharity.com/charity-eventhub/mitrofanoff-support/events

🚨 MITRO DAY IS BACK! 🚨We’re heading to Birmingham for our next Mitro Day – a day for our community to connect, learn and...
11/03/2026

🚨 MITRO DAY IS BACK! 🚨
We’re heading to Birmingham for our next Mitro Day – a day for our community to connect, learn and support each other.
💬 Meet others living with a Mitrofanoff
🩺 Hear from specialist nurses & experts
❓ Ask the questions you’ve always wanted to ask
Most importantly… you won’t feel alone.
📍 Birmingham
📅 Sat 28th March
https://www.mitrofanoffsupport.org.uk/.../mitrofanoff-day...
👇 Who’s coming?

Address

PO Box 3690
Wokingham
RG409QH

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