The TBD Clinic: Treating Lyme and Co-infections

23/06/2026

Have you ever felt dismissed, unheard, or not taken seriously by a doctor? 🏥
At King’s College, we’re running a study on how patients experience healthcare 💊
If you live in the UK and have a long term condition, please help us at the link below ⬇️

Understanding experiences of medical dismissal

13/06/2026

In Australia, Alpha-gal syndrome is mostly referred to as Mammalian Meat Allergy. That nomenclature is seriously misleading; it’s far more complex than a simple allergy to mammalian meat.

People living with this disease know that avoiding red meat is just the beginning as the data from tickbitedata’s survey clearly shows:

* 72.5% reported reactions to dairy
* 78.6% reported reactions to gelatin-containing foods
* 67.3% reported reactions to gelatin-containing medications
* 73.0% reported reactions from cross-contamination
* 87.9% reported reactions to small amounts of mammalian-derived ingredients

Reactions reported include gastrointestinal symptoms, cardiovascular concerns, skin manifestations, sleep disruption, anxiety, or significant impacts on daily functioning.

This disease can cause neurological symptoms such as brain fog, mental fatigue, headaches, dizziness, and tremors.

Tick Bite Data lays it all out here:
https://www.tickbitedata.com/post/alpha-gal-is-not-behaving-like-a-red-meat-allergy-in-our-data

29/05/2026

24/05/2026

24/05/2026

A negative Lyme test does not always rule out Lyme disease.

In this video from Johns Hopkins Medicine Rheumatology, experts discuss the limitations of current Lyme disease testing and why clinical symptoms and patient history matter. Many patients facing chronic or complex illness are dismissed after a negative test result, but the science is more nuanced than that.

We believe awareness, education, and early recognition are critical for patients and families navigating Lyme disease and infection-triggered conditions.

Watch the full video on the Limitations of Lyme Disease Antibody Tests at https://youtu.be/r56kk66LfRc?si=mImxwgHXTQf5Zdug

24/05/2026

Our website has free resources for primary and secondary school ages including advice for teachers and parents about tick awareness for outdoor school excursions.

https://www.lymeresourcecentre.com/for-schools-and-youth-organisations

21/05/2026

Kirstie Haysman, Ms GB 👑has launched a petition to improve testing in the U.K. please give her your support by signing and sharing.

“We are concerned that the two-tier Lyme test can give some false negatives, including early on or in immunosuppressed people. We urge a review of broader, potentially more accurate tests to detect all strains.”

We are concerned that the two-tier Lyme test can give some false negatives, including early on or in immunosuppressed people. We urge a review of broader, potentially more accurate tests to detect all strains. We think this will help prepare for future Lyme vaccines and ensure more timely treatment.

24/04/2026

Autoimmune Thyroiditis Induced by Bartonella henselae (Cat-Scratch Disease) Might Be Reversible

https://karger.com/pat/article/90/2/131/835202/Autoimmune-Thyroiditis-Induced-by-Bartonella