Rachel and MS

23/07/2023

2 whole years of MS.

Today is 2 years since I found out I have MS. 😢

I was totally unprepared to be told I had this 2 years ago. 🤯

I was fit, healthy, ran marathons, taught Loads of fitness classes weekly, could make plans without a second thought, could keep up with the kids having great days out doing active stuff, could party all night and have minimal sleep and still fully function with a spring in my step every day, until a few months before I got diagnosed when I was always tired and couldn’t feel my right side.

2 years down and I’m now only working part time, I’m only teaching 4 classes a week, no amount of sleep is enough and my memory is horrendous. 😔

MS has however made me put myself first (except for my kids, they will always be number one). It’s made me learn to say NO instead of trying to keep everyone happy, it’s even made me realise that I only have me to look after me and that I need to make myself a priority instead of prioritising other peoples wants.

MS absolutely sucks and I would do many things to not have it, but slowly I’m learning to accept it. It’s never going to go.

Hopefully in this next year I’ll master the balance of doing just the right amount or fun and rest and I’ll have more good days instead of bad days. ⚖️

Thanks to those who have accepted the MS version of me. 🧡

11/07/2023

After more then 2 months of what’s been a real rollercoaster, tomorrow is the start of Aubagio. This will by my third attempt at putting MS back in the back seat instead of the drivers seat.

I’d be lying if I said I was looking forward to new meds as I seem to always get the side effects but as long as they aren’t like tecfidera side effects I should be ok on these.

Headaches, nausea, hair thinning…….

I’m ready but I really hope they don’t last long.🤢😢

10/03/2023

Back when I had absolutely no idea that I had multiple sclerosis. 🫣🙄
I remember the loss of sensation taking over my whole right side. Someone mentioned MS to me and I shot them down because in my uneducated mind, only old people got MS and MS only meant walking sticks and wheelchairs. 🤷🏽‍♀️🤦🏽‍♀️