European Kidney Patients’ Federation

European Kidney Patients’ Federation CEAPIR/EKPF was founded in 1981 and is the umbrella organisation for 26 national kidney patient organisations across Europe

The European Kidney Patients’ Federation (CEAPIR) was founded in 1981 and is the umbrella organisation for 23 national kidney patients’ associations across Europe. This not-for-profit organisation has its legal seat in Vienna, Austria and a working office in Dublin, Ireland.

Today, the EKPF Board of Directors held an in-person meeting to discuss the future of our projects and continue building...
10/06/2026

Today, the EKPF Board of Directors held an in-person meeting to discuss the future of our projects and continue building a strong vision for the years ahead.

During the meeting, the Board reviewed ongoing projects, evaluated current initiatives, and worked together on defining new objectives and priorities for the EKPF. These face-to-face meetings are an important opportunity to share ideas, align goals, and reinforce our collective commitment to our future

We would like to thank all Board members for their dedication, collaboration, and continued efforts towards the advancement of the Federation! 💪🏼💙

Emily Groutidou Petridou

Today’s the day of the first IgAN Friends in-person event! 💙The community is finally coming together in Brussels for o...
09/06/2026

Today’s the day of the first IgAN Friends in-person event! 💙

The community is finally coming together in Brussels for our first in-person event!

We are proud to share that Jan Van Cruchten participated in the session “IgA Nephropathy: Exploring Patient Impact and A...
03/06/2026

We are proud to share that Jan Van Cruchten participated in the session “IgA Nephropathy: Exploring Patient Impact and Advances in Disease-Specific Management” at the ERA Congress 2026. 💙

During the session, Jan shared the patient perspective, speaking openly about his personal experience living with IgA Nephropathy and highlighting the importance of patient involvement in disease management, research, and care decisions.

His contribution reinforced the value of listening to patients’ voices to improve understanding, treatment pathways, and quality of life for people living with kidney disease. 🌍🩺

Follow us for more information about the congress!

We are officially at the ERA Congress 2026!The EKPF team is ready to welcome you at Hall 5, Booth 1, where you can learn...
03/06/2026

We are officially at the ERA Congress 2026!

The EKPF team is ready to welcome you at Hall 5, Booth 1, where you can learn more about our projects, initiatives, and ongoing work in kidney health and patient care.

Come and visit us to meet the team, exchange ideas, and discover our projects in greater depth. We look forward to connecting with colleagues from across the nephrology community.

See you at Booth 1!

Just one week to go until the first-ever in-person event! 💙As we get ready to welcome the IgAN community in Brussels, ...
02/06/2026

Just one week to go until the first-ever in-person event! 💙

As we get ready to welcome the IgAN community in Brussels, don’t forget to visit our event page to explore everything you need to know before joining us.

You can find:
✨ Speaker bios
🗓️ The event agenda
📍 Practical information for the day

👉 Visit the page here: https://iganfriends.org/in-person-event-2026/

We’re looking forward to bringing the community together and seeing you soon!

We’re excited to announce that the EKPF team will be attending the ERA Congress 2026 in Glasgow!📍 You’ll find us at Hall...
01/06/2026

We’re excited to announce that the EKPF team will be attending the ERA Congress 2026 in Glasgow!

📍 You’ll find us at Hall 5, Booth 1, where we’ll be showcasing our latest projects and initiatives.

Come by to meet the team, exchange ideas, and learn more about the work we’re developing to advance innovation and collaboration in kidney health and patient care.

We look forward to connecting with colleagues, partners, and friends from across the nephrology community!

See you in Glasgow!

Today we are celebrating an important milestone: 100 members in the IgAN Friends community 💙A heartfelt thank you to eve...
27/05/2026

Today we are celebrating an important milestone: 100 members in the IgAN Friends community 💙

A heartfelt thank you to everyone who has joined us so far. Together, we are building a supportive community for people living with IgA Nephropathy, families, caregivers, and those who stand with them.

Every new member helps strengthen our voice, share experiences, and bring more visibility to IgAN. We are only getting started, and we are excited for what comes next 💙

If you are not yet part of the IgAN Friends community, you can join us here: https://iganfriends.org/join-igan-friends/

Yesterday, May 13, the European Kidney Patients’ Federation took part in the d.Holiday 2026 Conference held in Sopot, Po...
14/05/2026

Yesterday, May 13, the European Kidney Patients’ Federation took part in the d.Holiday 2026 Conference held in Sopot, Poland, organized by Diaverum.

During the event, focused on the challenges faced by kidney patients when travelling and organizing their dialysis treatments, Daniel Gallego participated in the panel discussion “What must happen next to enable more patients to travel” as President of the EKPF and also as a kidney patient, sharing the perspective and experience of those living with kidney disease every day.

The conference brought together healthcare professionals, patient associations, advocacy and representatives from different organizations to exchange experiences and move towards more human, accessible and patient-centered care focused on improving the quality of life of people with kidney disease.

At EKPF, we continue to advocate for the right of kidney patients to travel, enjoy their free time and pursue their life projects without treatment becoming a barrier. 💙

Today is 💙. IgA Nephropathy (IgAN) is a rare kidney condition that develops silently, often in young adulthood. Behi...
14/05/2026

Today is 💙.

IgA Nephropathy (IgAN) is a rare kidney condition that develops silently, often in young adulthood.

Behind every diagnosis is a human experience that touches not just those living with it but everyone around them. Yet the real impact of living with IgAN remains largely unseen: on people, on care systems, on society.

Explore our new infographic available in 🇬🇧 🇮🇹 🇫🇷 🇪🇸 🇩🇪 here: https://iganfriends.org/news/

Your share could be someone's first step to understanding IgAN.


Let’s raise awareness together.

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