European Kidney Patients’ Federation

European Kidney Patients’ Federation CEAPIR/EKPF was founded in 1981 and is the umbrella organisation for 26 national kidney patient organisations across Europe

The European Kidney Patients’ Federation (CEAPIR) was founded in 1981 and is the umbrella organisation for 23 national kidney patients’ associations across Europe. This not-for-profit organisation has its legal seat in Vienna, Austria and a working office in Dublin, Ireland.

Join the next Kidney Care SusNet Webinar hosted by the Centre for Sustainable Healthcare in the context of the KitNewCar...
19/08/2026

Join the next Kidney Care SusNet Webinar hosted by the Centre for Sustainable Healthcare in the context of the KitNewCare project!

🌍 Learning from Nature to Make Everyone Healthier – A Concept of Planetary Health

How can nature and biological intelligence inspire healthier and more sustainable healthcare systems? Join us for an engaging session exploring the concept of planetary health and its implications for kidney care and beyond.

🎤 Speaker: Prof. Peter Stenvinkel

Professor and Senior Lecturer, Department of Renal Medicine, Karolinska University Hospital and Karolinska Institutet, Sweden.

📅 Thursday, 27 August 202
⏰ 14:00–14:50 UTC
💻 Online

This webinar will offer valuable insights into the connections between planetary health, sustainability, and the future of kidney care, drawing on Prof Stenvinkel’s extensive expertise and pioneering work in the field.

👉 Register and find more information here: https://networks.sustainablehealthcare.org.uk/events/webinar-kidney-care-susnet-learning-nature-make-everyone-healthier-concept-planetary-health

📢 Join the 2C4CKD Webinar on Conservative Kidney Care!🗓 Tuesday, 28 July🕒 17:00 h, CESTConservative Kidney Care is an ac...
21/07/2026

📢 Join the 2C4CKD Webinar on Conservative Kidney Care!
🗓 Tuesday, 28 July
🕒 17:00 h, CEST

Conservative Kidney Care is an active treatment approach for people with kidney failure who choose not to pursue dialysis or transplantation. Instead, it focuses on managing kidney disease through medication, diet, symptom control, preserving remaining kidney function, and providing comprehensive medical, psychological, and social support to help patients achieve the best possible quality of life.

During this webinar, experts and project partners will explore the role of Conservative Kidney Care in empowering patients, supporting shared decision-making, and promoting person-centred care across Europe. Participants will also learn how the 2C4CKD project is helping to raise awareness, share best practices, and improve access to conservative care for people living with chronic kidney disease.

🔗 Join and register on the webinar:
https://www.eventbrite.sg/e/webinar-about-conservative-care-tickets-1994223620532?aff=oddtdtcreator

Be part of the conversation and discover how Conservative Kidney Care can support informed choices and improve the lives of people living with CKD.

Join the Centre for Sustainable Healthcare’s upcoming webinar in the context of the Kitnewcare project!🌍 A Website Calcu...
17/07/2026

Join the Centre for Sustainable Healthcare’s upcoming webinar in the context of the Kitnewcare project!

🌍 A Website Calculator to Benchmark the Carbon Footprint of Haemodialysis
Discover how digital tools can help benchmark the carbon footprint of haemodialysis and support more sustainable kidney care practices.

🎤 Speaker: Dr. Joachim Beige
Medical Director and Chief Physician, KfH (Germany), and leading expert in nephrology and hypertension.

📅 Thursday, 23 July 2026
⏰ 14:00–14:50 BST (14:00–14:50 UTC)
💻 Online, via Microsoft Teams

Don’t miss this opportunity to learn about innovative approaches to reducing the environmental impact of kidney care and connect with professionals committed to sustainable healthcare.

👉 Register and find more information here: https://networks.sustainablehealthcare.org.uk/events/webinar-kidney-care-susnet-website-calculator-benchmark-carbon-footprint-haemodialysis

After an incredible week in Vernon, France, another edition of has come to an end! 💙Teenagers living with kidney disea...
17/07/2026

After an incredible week in Vernon, France, another edition of has come to an end! 💙

Teenagers living with kidney disease from Greece, the Netherlands, Poland, Portugal, Serbia and Spain came together to share experiences, make new friends and enjoy unforgettable activities, including a trip to Paris, kayaking on the Seine, workshops on nutrition and exercise, laser tag, escape games and cultural evenings.

More than a camp, Krew Camp is a space for connection, empowerment and friendship, showing young people that they are not alone in their journey.

Thank you to everyone who made this special week possible. See you next year! 💚

📢 On 1 July, EKPF took part in the Personalised DKD Project 1-year-meeting, contributing to the development of a patient...
15/07/2026

📢 On 1 July, EKPF took part in the Personalised DKD Project 1-year-meeting, contributing to the development of a patient questionnaire on personalised medicine for people living with diabetic kidney disease (DKD).

We are also honoured to lead the Patient Advisory Board, ensuring that patients’ perspectives and experiences remain at the heart of the project.

Together, we are working towards more personalised, patient-centred care for people with diabetic kidney disease.

🔗 Explore the full page of the project: https://personalise-dkd.com/

💙 Highlights from our first in-person event in Brussels are now live!We’re pleased to share a dedicated event page bri...
13/07/2026

💙 Highlights from our first in-person event in Brussels are now live!

We’re pleased to share a dedicated event page bringing together the key elements of the day, from expert knowledge to shared moments.

Discover:
• Speaker slides with insights on IgAN treatment and best practices
• Event briefings capturing key reflections from discussions and sessions
• Photos capturing the connections and highlights of the event

A space to revisit the conversations and continue learning together.

🔗 Explore the full page: iganfriends.org/in-person-event-2026/

The European Kidney Patients’ Federation (EKPF) has participated in the kick-off meeting of the Momentum project in Berg...
23/06/2026

The European Kidney Patients’ Federation (EKPF) has participated in the kick-off meeting of the Momentum project in Bergamo, joining European partners to launch this important initiative for 2026–2030.

Momentum aims to improve the early detection of Mild Cognitive Impairment (MCI) in people living with chronic kidney disease, combining clinical research, molecular studies, and the patient perspective to develop better diagnostic and intervention strategies.

As the voice of kidney patients, EKPF will contribute by ensuring patient involvement throughout the project and by developing patient-centred quality of life and experience questionnaires.

🔗 Read the full article here: https://ekpf.eu/the-momentum-project-aims-to-advance-the-early-detection-of-mild-cognitive-impairment-in-kidney-patients/

Today, on World Kidney Cancer Day , we join the global community in raising awareness about kidney cancer and the import...
18/06/2026

Today, on World Kidney Cancer Day , we join the global community in raising awareness about kidney cancer and the importance of continuing to support patients, caregivers, research, and innovation worldwide.

This year’s campaign, led by the IKCC, focuses on Kidney Cancer and Emotional Wellbeing, highlighting the emotional challenges that many patients face throughout their journey — including anxiety, isolation, uncertainty, and the impact on daily life and relationships. Recent global patient surveys revealed that 85% of kidney cancer patients experience emotional wellbeing challenges, yet many still do not speak openly about them or seek support. 🤝

World Kidney Cancer Day is an important reminder that kidney cancer is not only a physical disease, but also one that deeply affects emotional and mental wellbeing. By raising awareness, encouraging open conversations, and improving access to support, we can help ensure that no patient feels alone. Together, we can keep working towards a future with better support, better care, and more hope for everyone affected by kidney cancer. 🌍

On the occasion of World Kidney Cancer Day 2026, the International Kidney Cancer Coalition ( IKCC ) is organizing a spec...
17/06/2026

On the occasion of World Kidney Cancer Day 2026, the International Kidney Cancer Coalition ( IKCC ) is organizing a special global webinar dedicated to this year’s theme: Kidney Cancer and Emotional Wellbeing. 🎗️

Living with kidney cancer affects not only physical health, but also emotional wellbeing, relationships, daily life, and mental health. Through this global symposium, patients, caregivers, and healthcare professionals will come together to discuss the emotional challenges linked to kidney cancer, share experiences, and explore ways to access support and improve quality of life.

The webinar will take place online on 18 June 2026 and aims to encourage open conversations around emotional wellbeing, helping patients feel supported and empowered throughout their journey.

Learn more and register here: https://www.worldkidneycancerday.org/

Today, on the World Day to Combat Desertification and Drought, the EKPF wants to highlight the importance of building a ...
17/06/2026

Today, on the World Day to Combat Desertification and Drought, the EKPF wants to highlight the importance of building a more sustainable future for healthcare and our planet. 🌍💧

Kidney care — and especially dialysis treatments — can have a significant environmental impact due to high water consumption, energy use, and medical waste generation. That is why the EKPF is proudly involved in the European project Kitnewcare, an initiative focused on transforming kidney healthcare into a more sustainable and environmentally responsible system. ♻️

Through collaboration between healthcare professionals, researchers, industry partners, patients and patient organisations, Kitnewcare works to identify innovative solutions that reduce the environmental footprint of kidney care while maintaining high-quality treatment and patient outcomes. The project promotes greener practices, sustainable technologies, and increased awareness about the connection between health and environmental responsibility.

At EKPF, we believe that protecting kidney health also means protecting the health of our planet. Follow us to learn more about KitNewCare and the European initiatives helping shape a greener and more sustainable future for kidney care. 🌱

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