ALS Care & Support, India

23/07/2026

Your skills can create hope. Your support can change lives. 💚

Whether you're a digital media professional, journalist, editor, designer, student, or simply someone who wants to make a difference, there's a place for you at ALSCAS.

Support our mission by sharing your time, skills, and passion.

🤝 Volunteer
💝 Donate
📢 Spread the Word

Together, we can bring hope, support, and a stronger voice to people living with ALS/MND and their families.

Scan the QR code to join us.

06/07/2026

📰 Media Coverage | Global ALS/MND Awareness Day 2026

We are grateful to the healthcare media for covering the Global ALS/MND Awareness Day programme, organised by the Department of Neurology, AIIMS New Delhi, in collaboration with ALS Care & Support Foundation (ALSCAS) India on 24 June 2026.

The coverage brought greater attention to ALS/MND and reinforced the need for early diagnosis, multidisciplinary care, continued research, and stronger support systems for patients and caregivers. It also helped amplify the voices of people living with ALS/MND and their families, ensuring that their experiences and challenges reached a wider audience. 💙

📰 Read the coverage:

🔹 BioSpectrum: https://www.biospectrumindia.com/news/101/28034/aiims-delhi-and-alscas-foundation-india-mark-global-als-mnd-awareness-day.html

🔹 Indian Pharma Post: https://www.indianpharmapost.com/hospitals/aiims-alscas-mark-global-als-awareness-day-20758

🔹 Sehat365: https://sehat365.com/aiims-will-soon-launch-two-major-als-research-initiatives-aiims-alscas-mark-global-als-mnd-awareness-day-experts-stress-early-diagnosis-and-research/

💙 Together, we continue to raise awareness, strengthen support, and inspire hope for everyone affected by ALS/MND.

01/07/2026

💙 Honoured and humbled

We are delighted to share that ALS Care & Support Foundation (ALSCAS) has been recognised by Organization for Rare Diseases India (ORDI) with the Strive for Rare Patient Advocacy Group Award.

This recognition belongs not just to ALSCAS, but to every person living with ALS/MND, every caregiver, every volunteer, every healthcare professional, and every well-wisher who has been part of this journey.

The award strengthens our resolve to continue working towards greater awareness, stronger support systems, improved access to care, and a brighter future for everyone affected by ALS/MND.

Together, we move forward. 💙

28/06/2026

💙 A heartfelt thank you to everyone who joined us at
AIIMS,Delhi on 24 June 2026 and made the Global ALS/MND Awareness Day Event 2026 a memorable success.

We are deeply grateful to AIIMS Delhi for their invaluable collaboration and support in making this important initiative possible.

Our sincere thanks to all the patients, caregivers, families, doctors, researchers, healthcare professionals, volunteers, supporters, and well-wishers who joined us. Your presence and participation made the event truly special, reaffirming the strength, resilience, and solidarity of the ALS/MND community.

A special thank you to our volunteers and organizing team for their tireless efforts, and to our esteemed doctors and speakers for generously sharing their knowledge, expertise, and insights.

Together, we raised awareness. Together, we inspired hope. Together, we strengthened bonds. And together, we moved one step closer to a future where one day, we will find a cure. 💙

24/06/2026

We are live now! ▶️
Join us for the Global ALS/MND Awareness Day Event 2026 💙

If you’re unable to attend at AIIMS Delhi, join us live on YouTube and be part of this awareness event.

🎥 Watch Live: https://www.youtube.com/live/pZvMrFhposY?si=zEx2w2Y_nD-tixBW

Awareness ProgramTopic : "ALS/MND Awareness Program"Highlights ...

21/06/2026

💙 On Global ALS Awareness Day, we honour the strength of every person living with ALS/MND, the love of every caregiver, and the hope that sustains every family.

Together, we raise awareness. Together, we stand in solidarity. Together, we remind every family that they are not alone. 💙

16/06/2026

💙 Last year, we came together to raise awareness about ALS/MND. This year, we return with even greater hope, unity, and purpose.

In collaboration with AIIMS, New Delhi, we invite you to join us for the Global ALS/MND Awareness Day Event 2026. Come be part of an afternoon of learning, connection, and solidarity in support of individuals and families living with ALS/MND.

Every voice matters. Every presence counts. Every effort brings us closer to a more aware, compassionate, and supportive world. 🌍💙

📅 Wednesday, 24 June 2026
📍 JLN Auditorium, AIIMS Delhi
⏰ 3:00 PM – 5:00 PM

📝 Please register by completing the attached Google Registration Form.
👉 Register here: https://docs.google.com/forms/d/e/1FAIpQLSfwBtjSfR2Sb7903gKA7oNjS3t_ckzdN-mx7VV0dutuzhdTdg/viewform

🤝 Join us. Bring a friend. Help spread the word. Together, we can deepen understanding, strengthen support, and make a difference. 💙

04/06/2026

ALSCAS Heroes 💙 | Story 07

Continuing with another inspiring story from ALSCAS Heroes…

This is a story of purpose, resilience, and a life dedicated to uplifting others.

Anandam Kakumani grew up in a small village in Nellore and became its first graduate, a milestone that reflected his deep belief that education is empowering, enlightening, and liberating. He joyfully taught English, Mathematics, and Science to anyone eager to learn, sharing knowledge with generosity and purpose.

His life was defined by hard work and integrity. From serving in the Tahsildar’s office to contributing at ISRO’s Space Science Centre, and later spending many years at the fertilizer factory in Ramagundam, he was known for his honesty, dedication, and willingness to help others. Even at 65, he was energetic, selfless, and deeply committed to those around him.

In 2019, his family’s life changed with an ALS diagnosis. The years that followed brought immense challenges, including feeding tube support, ventilation, and eventually a home ICU. Yet through it all, he faced each day with quiet courage, faith, and hope.

On 21 June 2024, he passed away peacefully, leaving behind a powerful reminder that true courage is often found in patience, resilience, and love.

💙 Story 07 | Courage. Resilience. Love.

26/05/2026

ALSCAS Heroes 💙 | Story 06

Continuing with another inspiring story from ALSCAS Heroes…

This is a story of resilience, innovation, and the determination to keep moving forward despite life’s greatest challenges.

Sathiya Narayanan, an Instrumentation Engineer, built a successful career working on major power plant and smelter projects across India and abroad. In 2017, driven by ambition and hard work, he founded his own engineering projects and industrial hardware supply firm.

Life changed unexpectedly in July 2018 when he was diagnosed with amyotrophic lateral sclerosis (ALS), a Motor Neuron Disease. As the condition progressed, he had to shut down his business and face immense physical and financial challenges. Yet, even in the face of adversity, Sathiya chose resilience over defeat.

Today, despite limited mobility and increasing physical dependence, he remains mentally strong through regular physiotherapy and meditation. He believes that early medical intervention, physical activity, and mental stability have played an important role in helping him stay strong.

What makes his story even more remarkable is his continued spirit of innovation. Using eye-tracking and facial-movement technology, Sathiya is developing a communication-based mobile application to help people with severe speech and mobility challenges express themselves more independently.

Sathiya’s journey reminds us that ALS may limit the body, but it can never limit determination, purpose, or the power to create change.

💙 Story 06 | Resilience. Innovation. Hope.

19/05/2026

ALSCAS Heroes 💙 | ALS Awareness Month

Continuing with another inspiring story from ALSCAS Heroes…

This is a story of resilience, family, and finding strength through community.

Living with ALS is often a rollercoaster of emotions, filled with challenges, yet also moments of love, courage, and hope.

S. Narayana Rao, a mechanical engineer from Bengaluru, began his ALS/MND journey in December 2014 when he noticed weakness in his right hand. Over time, the condition progressed, affecting all four limbs and his speech. Yet through every challenge, he continued moving forward with determination.

His family has been his greatest strength, a loving wife who stands as his pillar of support, caring for him every step of the way; sons who keep him connected to the world; and parents who remain his constant foundation.

In 2022, becoming part of the ALSCAS community brought connection, knowledge, and hope, including access to gene testing made possible through collective efforts.

Narayana Rao’s journey reminds us that while ALS may change many aspects of life, the strength of love, family, and community can help us face every challenge with courage.

💙 Story 05 | Resilience. Family. Community. Hope.