24/08/2026
📣COMING SOON | INTERNATIONAL SCHOOL ON RARE DISEASES
- ONLINE -
The KOS Study Center – Science, Arts & Society, in collaboration with ICORD – International Conference on Rare Diseases and Orphan Drugs (https://icord.es) is launching the International School on Rare Diseases, an advanced training initiative designed to foster an interdisciplinary and global approach to the challenges of rare diseases.
The School will address key areas across the rare disease field:
✅Public health and epidemiology
✅Patient-centred approaches
✅Genetics, genomics, diagnosis and care pathways
✅Undiagnosed diseases
✅Orphan drugs and advanced therapies
✅Innovative clinical trials
✅Ethics, equity and access to care
✅Data sharing and international collaboration
✅One Health
Directors:
Domenica Taruscio (KOS President, Italy, ICORD and UDNI Board Member), Cynthia Tiff (ICORD President, NIH, USA)
Co-chairs:
Rumen Stefanov (Bulgaria), Manuel Posada (Spain)
Cynthia Tiff (USA), Maria T. Acosta (USA)
William Gahl (USA)
Domenica Taruscio (Italy), Alberto Mantovani (Italy)
👉Bringing together science, innovation, public health and international expertise, the School aims to strengthen knowledge, foster cross-sector collaboration and keep patients and their needs at the heart of the rare disease ecosystem.
👏Advanced knowledge. Global perspective. Stronger collaboration for the rare disease community.
More information coming soon.
