Jayden Giving Hope Foundation

27/08/2026

TOTAL CARE

Total care means WAY more than feeding someone and changing a diaper.

I think when people hear total care, they picture the obvious things. Someone needs help eating, bathing, getting dressed and using the bathroom.

That's part of it. But it's barely scratching the surface.

Total care means someone else is responsible for essentially every physical need throughout that person's day. Getting them out of bed. Positioning their body. Transferring them into their wheelchair. Repositioning them so they don't develop pressure injuries. Dressing them. Bathing them. Brushing their teeth. Doing their hair. Changing them. Managing periods. Skin care. Nail care. And then doing it all again tomorrow.

For medically complex kids, there's another entire layer. Medications have to be prepared and given on schedule. G-tubes need cared for. Feeds and water have to be measured. Equipment needs cleaned. Respiratory treatments need done. Suctioning may happen throughout the day and night. Oxygen and pulse ox numbers need monitored. Seizures need recognized, timed and treated. Rescue medications have to be immediately available. You learn what THEIR normal looks like so you recognize when something tiny has changed.

It also means they can't simply get themselves out of a bad position. If an arm gets trapped, their head falls forward, they're uncomfortable, they're too hot or cold, their mask shifts, they're tangled in tubing or they need something that's three inches outside their reach... someone has to notice and help.

Then there's all the stuff nobody sees. Ordering supplies. Calling pharmacies. Fighting with insurance. DME companies. Specialists. Appointments. Therapies. Equipment fittings. Washing syringes. Charging equipment. Filling oxygen tanks. Stocking bedside supplies. Packing emergency bags. Keeping medication lists updated. Making sure absolutely everything needed to keep another human being safe is ready BEFORE it's needed.

And total care does NOT mean someone doesn't have opinions, preferences, personality or the ability to make choices.

It means their BODY requires another person's assistance.

They can still tell you what they like. What they hate. What makes them laugh. What they want to wear. What they want to watch. Who they want around them. Some communicate with words, some with devices, some with facial expressions, sounds, eye gaze or body language.

Total care describes the amount of physical assistance someone needs. It does NOT describe the person inside that body.

And THAT is the part I wish more people understood.

01/07/2026

MEPHIBOSHETH: TAKE HEART FULL RESTORATION POSSIBLE

2 Sam. 9:7,9-10 “7 And David said unto him, Fear not: for I will surely shew thee kindness for Jonathan thy father's sake, and will restore thee all the land of Saul thy father; and thou shalt eat bread at my table continually. 9 Then the king called to Ziba, Saul's servant, and said unto him, I have given unto thy master's son all that pertained to Saul and to all his house. 10 Thou therefore, and thy sons, and thy servants, shall till the land for him, and thou shalt bring in the fruits, that thy master's son may have food to eat:”

Mephibosheth did not know what was awaiting him when he was invited to the palace that used to be his home once upon a time. He must have been aware of the enmity between his grandfather and King David and probably thought the worst was waiting for him. However, upon his arrival, he received good news from the king, “I will surely show thee kindness for Jonathan thy father’s sake and restore thee all the land of Saul thy father; and though shalt eat bread at my table continually.” It is unlikely that he ever imagined that one day he would return to live in the palace and get the full restoration of his grandfather’s land.

Beloved, we serve a trustworthy God who will restore to us whatsoever we have lost in our walk with him in this life. Even though we may lose valuable things in this world, let us not be discouraged and imagine that our God is on leave. He is keenly watching over us and takes accurate records of everything happening to us - our losses, heartaches, and challenges. He will act in our favour at the right time we need restoration most. You may be living in a terrible place, do not be dismayed, for God has planned better things from you. Your enemies may have grabbed all your riches, and you are now wallowing in abject poverty, don’t worry. The righteous king is still sitting on the heavenly throne. But above all, because of the atoning sacrifice of Jesus Christ on the cross, we who once were alienated from the commonwealth of God have been restored back to our original position as sons and daughters of the everlasting king. Beloved God has planned even to restore back to us the perfect world we lost in Eden because of sin. At the end of the great millennium in heaven, the saints will return to this world and inherit everything prepared for them since the beginning. And the thief who stole all our blessings will be destroyed forever. While Mephibosheth enjoyed the royal privileges but later died, the saints would enjoy the royal privileges forever and ever. Dear saint, take heart for full spiritual and physical restoration is awaiting the saints soon and very soon.

Beloved, wonderful things are awaiting us ahead, we know because the King who never lies has promised - what a wonder of wonders! Let us strive never to miss the exceedingly great things awaiting us in eternity.

I wish you an enriching day in Jesus’ name. Amen!

06/05/2026

Mental Health Challenges for Caregivers
Caring for someone with CP is rewarding but demanding, often leading to high stress, burnout, compassion fatigue, anxiety, and depression. Caregivers (especially parents) report elevated psychological distress tied to the child's needs, financial strain, time demands, and societal stigma.

Common issues: Up to 40-60% experience moderate-to-severe symptoms. Chronic stress affects sleep, health, and relationships. Women caregivers may face higher risks.
Contributing factors: Constant caregiving, medical appointments, financial pressures, lack of respite, social isolation, and worry about the future.

Support strategies for caregivers:Self-care: Prioritize sleep, exercise, nutrition, hobbies, and breaks. Therapy or counseling for personal stress.

Respite and help: Use respite care, home health aides, family/friends, or paid support. Share tasks to avoid doing it all.

Support networks: Join caregiver groups for shared experiences and advice.

Mindfulness and boundaries: Practice stress-reduction techniques and recognize compassion fatigue early.

Shared Resources and Practical TipsOrganizations: Cerebral Palsy Foundation (mental health resources and webinars), Cerebral Palsy Research Network, United Cerebral Palsy (UCP), Easterseals, Caregiver Action Network

General mental health: SAMHSA (FindSupport.gov), NAMI support groups, CDC resources on disability and mental health.

Specialized centers: Places like the Weinberg Family Cerebral Palsy Center offer integrated mental health services for patients and caregivers.

Daily tips:Routine screenings for both the individual and caregiver.

Build a strong support network (family, friends, online communities).

Focus on strengths, independence, and joyful activities.

27/04/2026

Over 4,000 applications were received in our first intake, and 850 persons with disabilities across Kenya were successfully enrolled. Now, we’re opening applications for a new intake.

The Crystal Asige Foundation, in partnership with the European Business Institute of Luxembourg, is offering brand new scholarships that are designed to equip you with practical, future-ready skills.

Applications are open, but spaces are limited. So if you are Kenyan, aged 18+ and a PWD, scan the QR code and apply today.

27/04/2026

Sleep and Cerebral Palsy

26/03/2026

1 year ago ,creating awareness about Cerebral Palsy,it has been a journey.

Thank you everyone for the birthday wishes May God bless you all and may you be a voice to those who can't speak for themselves in everywhere you are inclusion is key.

Be kind to the people you meet with special needs,they have stories to share given a chance.

Cerebral Palsy Burden Families Say Management Of The Condition Is A Burden Felix Odhiambo’s Son Was Diagnosed With The Condition Odhiambo: Medication Is Very...

25/03/2026

Our 12th birthday as we embrace Cerebral Palsy Awareness day by wearing green and thanking God for this far.
Our journey this far. https://youtu.be/TCXnydcTGz4?si=YPabR6_7ki9l4my8

02/03/2026

March is Cerebral Palsy Awareness Month 💚

This month, we raise awareness, amplify voices, and celebrate the strength, resilience, and brilliance of people living with cerebral palsy.

Cerebral palsy is not a limitation of potential, it’s a call for inclusive systems, accessible spaces, and equal opportunities.

Let’s move beyond sympathy and commit to real inclusion: in schools, workplaces, communities, and policy spaces.

Nothing about disability without dignity. Nothing about us without us. 💚