06/03/2026
On 28th February 2026, we had the privilege of attending the Rare disease meeting organized by Rare Disorders Kenya at Gertrude’s Children’s hospital (Muthaiga)— a powerful gathering that brought together different patient groups representing a wide range of rare conditions. Each group shared about their community, their experiences, and the realities of living with these conditions. It was a meaningful space for education, awareness, and open communication, allowing us to learn from one another and strengthen our collective voice.
We deeply appreciate the leadership of the Co-Founders, Roselyn Kanja and Christine Mutena, whose dedication continues to unite and uplift the rare disease community in Kenya.
At MAGIC-Africa, we were truly honored to be part of this important conversation. Supporting individuals and families living with rare and endocrine growth-related conditions in children remains close to our mission, and this meeting allowed us to share,educate & learn so much from the incredible work being done by other groups.
In first photo are distinguished advocates of RDK the incredible Christine & Roselyn,Dr. Dominic Ongaki from the Department of Non-Communicable Diseases at the Ministry of Health Kenya ,Jemima Kodero, Founder of Turner Syndrome Africa, and Rahab a passionate member of Rare Disease Kenya.
Moments like these remind us that when communities unite, awareness grows, voices become stronger, and change becomes possible.
We remain hopeful that through continued collaboration and advocacy, rare conditions — including endocrine growth disorders affecting children — will receive the attention they deserve and be fully considered within Universal Health Coverage in Kenya.
Together, we move forward with knowledge, unity, and hope for every rare voice. 💜
