Spinal Muscular Atrophy Malaysia

31/12/2025

"Sepurnama Memori"

2025 adalah tahun penuh perjuangan, kesabaran dan ketabahan buat warga SMAM serta semua yang setia berjalan bersama kami.
Di sebalik setiap senyuman, ada usaha yang tidak pernah berhenti dan doa yang tidak pernah putus.

Kami juga mengenang anak-anak kesayangan yang telah pulang menghadap Pencipta. Mereka pergi sebagai pejuang kecil yang meninggalkan jejak kasih dan inspirasi dalam hati kami 🤍

Bagi yang masih meneruskan perjalanan, harapan tetap hidup. Kami melangkah ke 2026 dengan doa agar lebih banyak kefahaman, sokongan dan kebaikan hadir buat semua.

Terima kasih atas kebersamaan sepanjang 2025. Semoga Tahun Baharu 2026 hadir sebagai sinar yang merealisasikan harapan, doa dan kasih yang berterusan ✨

Tulus ikhlas:
Warga SMAM

19/12/2025

12/11/2025

09/11/2025

Setinggi tahniah buat Dr Siti Hawa Apandi , you make us so proud
Alhamdulilah.Moga Allah permudahkan segala urusan dan cepat sembuh.We love you Hawa

19/10/2025

Alhamdulilah SMAM bersama sama dengan rakan RD bertemu dan berbincang dengan Ketua Pengarah Kesihatan Datuk Dr Mahathar bin Abd Wahab dan Kementerian Kesihatan Malaysia

16/09/2025

16 September 🇲🇾

Dari Perlis hingga ke Sabah, hari ini kita meraikan kekuatan dan keindahan Malaysia yang terbina dengan keharmonian kepelbagaian budaya, bangsa, dan agama.

Warga SMAM mendoakan semoga semangat perpaduan, kasih sayang, dan kebersamaan kita terus subur di bumi Malaysia tercinta ini.

Kita raikan kepelbagaian, kita sambut kebersamaan!
Malaysia Madani, Rakyat Disantuni!
Selamat Hari Malaysia!

08/09/2025

In conjunction with Spinal Muscular Atrophy (SMA) Awareness Month, Spinal Muscular Atrophy Malaysia (SMAM) was proud to host a truly unique and meaningful public awareness initiative — Checkmate SMA: A Human Chess Match, held at PARC, Subang.

This impactful event has officially entered the Malaysia Book of Records as the Largest Human Chess Match, marking not only a historic achievement but also a powerful symbol of unity, strategy, and resilience — qualities shared by our SMA community.

We were honoured to welcome participation from all walks of life, including passionate individuals, families, advocates, healthcare professionals, and key stakeholders — all of whom are vital in building a more inclusive and supportive rare disease ecosystem in Malaysia.

A heartfelt thank you to Roche Malaysia and all our partners, families, volunteers, RD PAGs and supporters who came together to make this event a success. May this initiative serve as a catalyst for greater awareness, improved access to care, and more equitable support for all SMA patients and their families nationwide.

Together, we move closer to a future where no one faces SMA alone.

31/08/2025

31 Ogos 2025
SELAMAT HARI KEBANGSAAN KE-68
"Malaysia Madani: Rakyat Disantuni"

Merdeka itu ertinya bebas dari penjajahan!
Pastinya, pembebasan sebenar bukan hanya terlepas daripada kawalan kuasa asing, bahkan kebebasan untuk kita bersama-sama bangkit dan bersatu dalam menghargai dan menyemarakkan rasa cinta kepada tanah air!
Sesungguhnya, kebebasan minda dan jiwa itu harus diutamakan dalam membentuk erti kemerdekaan sebenar agar ianya bukan sekadar slogan yang dilaungkan!

Salam Kemerdekaan ke-68 Malaysia!

Kami jiwa merdeka,
Warga SMAM

30/08/2025

♟️ SMA Awareness Month x Bulan Kemerdekaan 🇲🇾💜💙

August is not only Bulan Kemerdekaan, when Malaysians come together to celebrate freedom, unity, and resilience — it is also SMA Awareness Month, a time to raise our voices for a rare disease that affects countless families with strength and courage.

Just as our nation’s independence was built upon the struggles, sacrifices, and unwavering spirit of our forefathers, families living with Spinal Muscular Atrophy (SMA) embody that same resilience every single day. They continue to fight for equal access to healthcare, inclusive opportunities, and the right to live with dignity and hope.

✨ This August, as we proudly wave the Jalur Gemilang, let us also raise awareness for SMA. Together, we honor both our nation’s freedom and the freedom of SMA individuals to dream, to thrive, and to be included in every part of society.

💜💙 The spirit of reminds us that independence means more than freedom from colonization — it means freedom from barriers, stigma, and inequality.

Let us unite as Malaysians — for our country, for our people, and for the SMA community.
Because true independence means no one is left behind.