What are the opening hours?

Monday 08:30 - 18:00 Tuesday 08:30 - 18:00 Wednesday 08:30 - 18:00 Thursday 08:30 - 18:00 Friday 08:30 - 18:00

MyPOPI

Persatuan Pesakit Imunodifisiensi Primer Malaysia atau di kenali sebagai MyPOPI secara resminya didaftarkan pada 15 August 2014. Our aims are:

1.

To be the first port of call for those in the Malaysia seeking information on all aspects of having a PID
2. To promote awareness and understanding of PIDs
3. To provide direct support to individuals and families affected by PIDs
4. To be an advocate and campaigner for the needs and rights of people affected by PIDs. We will achieve this by:

1. Providing comprehensive and clearly written informat

ion on PIDs and associated issues that is easily accessible through a variety of media
2. Raising awareness and understanding of PIDs within the medical profession in order to facilitate earlier and accurate diagnosis, better monitoring and care, and so extend and improve quality of life
3. Listening to, responding to and prioritizing patient needs, and working actively to make their voice heard through liaison with individuals, families, our patient representative panel, professionals and members of our medical advisory panel
4. Clear signposting to condition-specific support groups, where they exist, and working with them to ensure better healthcare for all affected by PIDs
5. Building a solid membership database of those affected by PIDs and those involved in their care as a basis for our communication, consultation and lobbying activities
6. Connecting people affected by the same condition to share experiences and provide mutual support by helping them establish their own support groups
7. Working with others to lobby for improved patient care and continued medical research into PIDs
8. Raising funds to support MyPOPI in its work to help affected individuals and families wherever they live in the Malaysia.

31/08/2026

Happy 69th National Day, Malaysia!

Today, we celebrate the spirit of independence, unity, and togetherness that makes Malaysia truly special.

✨ Malaysia MADANI: Kesejahteraan Dinikmati

May the spirit of Merdeka continue to inspire us to build a more caring, inclusive, and prosperous Malaysia where everyone has the opportunity to live with dignity and hope.

Happy National Day, Malaysia! ❤️
Merdeka! Merdeka! Merdeka!

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06/08/2026

💙 SEPEDA Borneo Amal 2026 Receives Media Recognition 🚴‍♂️

We are grateful to share that SEPEDA Borneo Amal 2026 has received media coverage, shining a spotlight on the spirit of compassion, collaboration and dedication behind this meaningful charity initiative.

This recognition reflects the collective efforts of healthcare professionals, communities, partners and supporters who have come together to bring hope and support to children and families living with Primary Immunodeficiency (PID).

MYPOPI is honored to be one of the two beneficiaries of this initiative. Through this campaign, we continue our mission to improve access to care, raise awareness and provide assistance to PID patients and their families.

💙 As SEPEDA Borneo Amal 2026 enters its final phase, we invite everyone to stand together with us and be part of this journey of hope.

Every donation brings us one step closer to making a difference.
Every share helps us reach more people and spread awareness about PID.

Support SEPEDA Borneo Amal 2026 through the official website: https://sab.mma.org.my/donate

Thank you to every donor, supporter and partner who has contributed to this cause. Your kindness and generosity continue to bring hope to the PID community. 💙

06/08/2026

A Second Chance at Life ❤️

MYPOPI’s SCID survivor, Wazza Reno from Limbang Sarawak, is a living proof that donations save lives.

Born with Severe Combined Immunodeficiency (SCID), Wazza was given a second chance through the kindness and generosity of people who believed every child deserves the opportunity to grow up healthy.

Your support is more than a donation - it is HOPE, HEALING, AND THE GIFT OF LIFE.

Together, we can ensure that more children like Wazza have the chance to smile, dream, and built a future.

Because every child deserves a second chance.

👉 Donate directly to:

Persatuan Pesakit Imunodefisiensi Primer Malaysia (MYPOPI)
Maybank Account: 5148 9706 4622

📌 Tax exemption for donors
All donations made to Persatuan Pesakit Imunodefisiensi Primer Malaysia (MYPOPI) are eligible for income tax exemption under Subsection 44(6), Income Tax Act 1967.
Reference No.: LHDN.01/35/42/51/179-6.8744
Approval Period: 1 January 2023 – 31 December 2027

📧 To receive your official tax exemption receipt, kindly email us at [email protected] with the following details:

* Full Name
* IC No.
* Full Address
* Proof of Donation

Together, we can change a life. ❤️

04/08/2026

💙 FINAL PUSH – Help Us Reach Our Goal! 🚴‍♂️

We’re excited to share that SEPEDA Borneo Amal 2026 has received media coverage, helping bring greater awareness to this meaningful cause.

As we enter the final phase of this campaign, we need 𝐨𝐧𝐞 𝐟𝐢𝐧𝐚𝐥 𝐩𝐮𝐬𝐡 𝐟𝐫𝐨𝐦 𝐨𝐮𝐫 𝐜𝐨𝐦𝐦𝐮𝐧𝐢𝐭𝐲. MYPOPI is honored to be one of the two beneficiaries, supporting children living with Primary Immunodeficiency (PID).

🎯 Every donation brings us closer to providing essential support and care for PID patients and their families.

💙 Make your contribution today through the official SEPEDA Amal Borneo website: https://sab.mma.org.my/

📲 Unable to donate? You can still help by sharing this video with your family, friends and colleagues. Your share may inspire someone else to make a difference.

Every contribution, big or small, brings hope.

Thank you for standing with MYPOPI and supporting this meaningful cause. 💙

04/08/2026

💙 FINAL PUSH – Help Us Reach Our Goal! 🚴‍♂️

We’re excited to share that SEPEDA Borneo Amal 2026 has received media coverage, helping bring greater awareness to this meaningful cause.

As we enter the final phase of this campaign, we need 𝐨𝐧𝐞 𝐟𝐢𝐧𝐚𝐥 𝐩𝐮𝐬𝐡 𝐟𝐫𝐨𝐦 𝐨𝐮𝐫 𝐜𝐨𝐦𝐦𝐮𝐧𝐢𝐭𝐲. MYPOPI is honoured to be one of the two beneficiaries, supporting children living with Primary Immunodeficiency (PID).

🎯 Every donation brings us closer to providing essential support and care for PID patients and their families.

💙 Make your contribution today through the official SEPEDA Amal Borneo website: https://sab.mma.org.my/

📲 Unable to donate? You can still help by sharing this video with your family, friends and colleagues. Your share may inspire someone else to make a difference.

Every contribution, big or small, brings hope.

Thank you for standing with MYPOPI and supporting this meaningful cause. 💙

22/07/2026

🚨 Just one click to save a life. We need you. 🚨

Meet 1-year-old Elizabeth Bella. She is fighting SCID and urgently needs a RM70,000 bone marrow transplant. Bella and other brave kids deserve a fighting chance and we can give it to them. 🥹

On behalf of the Malaysian Students' Surgical Society (MSSS), we are proud to support Sepeda Amal Borneo 2026 (SAB2026)! 🚴‍♂️💨

From 26–31 July, cyclists will tackle a grueling 680KM route from Kota Kinabalu to Miri. Organized by the Malaysian Medical Association Foundation (MMAF), this premier event funds life-saving paediatric surgeries and supports children with Primary Immunodeficiencies (PID).

This initiative proudly supports the Malaysian Patient Organisation for Primary Immunodeficiencies (MyPOPI) MyPOPI and the Malaysian Association of Paediatric Surgery (MAPS).

📢 Calling the general public

Here’s how you can help Bella and other kids in need:

1️⃣ DONATE: Every ringgit counts, and all donations are tax-exempt!
2️⃣ SHARE: Repost this video to your stories and group chats. Awareness saves lives.

👉 Link to donate and support the cause!
https://sab.mma.org.my

Let’s make a difference together. 🤍

P/s: video is recorded and posted with consent from patient’s mother and UMMC

22/07/2026

📣 Spread Awareness by Sharing and like 👍

14/07/2026

📢 Hi Everyone,

I hope you're all doing well. I wanted to reach out to ask for your support for a cause that is very close to my heart ❤️

Many of you know that I co-founded the Malaysian Patient Organisation for Primary Immunodeficiencies (MYPOPI), where I currently serve as President. MYPOPI supports children and adults living with Primary Immunodeficiencies (PIDs) – a group of rare genetic immune disorders where the body's immune system does not function properly. Many patients experience recurrent, severe infections and require lifelong treatment, early diagnosis, and continuous support.

This year, the Malaysian Medical Association (MMA) has generously chosen MYPOPI as one of the beneficiaries of its fundraising initiatives and is organising the Sepeda Amal Borneo (SAB) Charity Dinner to help raise much-needed funds for our work. As a small patient organisation, we have limited resources to raise funds on our own, so this support from MMA is truly invaluable.

I would be deeply grateful if you could support this meaningful cause by either:
• Purchasing a table and inviting your family, friends, or colleagues to attend the dinner; or
• Making a donation if you are unable to attend.

Event details
📅 Date: 31 July 2026 (Friday)
🕖 Time: 7.00 PM – 10.30 PM
📍 Venue: Pullman Miri Waterfront, Sarawak

How you can help now
🎟️ Reserve your seat or table: https://lnkd.in/gc8VnJmc

Share this post with colleagues, partners, and friends who may want to contribute

Consider a sponsorship or donation if you’re unable to attend

Note📝
If you’re unable to access the reservation form, please reach out directly for alternative registration or donation options. Your support, in any amount, makes a life-changing difference.

Thank you for rallying together to give hope and support where it’s most needed.

Every contribution, regardless of the amount, will go towards supporting patients and families affected by these rare immune disorders through patient assistance, education, awareness programmes, advocacy, and initiatives to improve access to diagnosis and treatment.

08/05/2026

🩸 To end this World PI Week awareness, we are proud to share this recap of our Blood Donation Drive 2026.

Small Act, Big Impact ❤️

Thank you to everyone who came, donated blood, volunteered, and supported our Blood Donation Drive 2026 on 25 April 2026. Your kindness and support helped make this campaign truly meaningful and successful.

We are also proud to see our President, Bruce Lim, joining as one of the blood donors in support of this meaningful cause ✨

A special thank you to Mr Jacky NG Chee Eng 黄智荣 for coming and showing your support at our blood donation drive. Your presence truly meant a lot to us and helped encourage greater awareness for this cause.

A big thank you to XPODIUM, Eren CrossFit, Koha Digital, and
Pusat Darah Negara Kementerian Kesihatan Malaysia for your strong support and collaboration. Without you, this event would not have run so smoothly.

Together, we continue to spread awareness on the importance of blood donation—because every drop can help save lives ❤️

Address

Jalan Yaacop Latiff, Bandar Tun Razak
Kuala Lumpur
56000

Opening Hours

Monday	08:30 - 18:00
Tuesday	08:30 - 18:00
Wednesday	08:30 - 18:00
Thursday	08:30 - 18:00
Friday	08:30 - 18:00

Website

http://www.mypopi.org/

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