MyPOPI

08/05/2026

🩸 To end this World PI Week awareness, we are proud to share this recap of our Blood Donation Drive 2026.

Small Act, Big Impact ❤️

Thank you to everyone who came, donated blood, volunteered, and supported our Blood Donation Drive 2026 on 25 April 2026. Your kindness and support helped make this campaign truly meaningful and successful.

We are also proud to see our President, Bruce Lim, joining as one of the blood donors in support of this meaningful cause ✨

A special thank you to Mr Jacky NG Chee Eng 黄智荣 for coming and showing your support at our blood donation drive. Your presence truly meant a lot to us and helped encourage greater awareness for this cause.

A big thank you to XPODIUM, Eren CrossFit, Koha Digital, and
Pusat Darah Negara Kementerian Kesihatan Malaysia for your strong support and collaboration. Without you, this event would not have run so smoothly.

Together, we continue to spread awareness on the importance of blood donation—because every drop can help save lives ❤️

04/05/2026

On World Immunology Day, we are reminded that a healthy immune system can mean the difference between life and loss; especially for newborns born with rare and invisible conditions.

Some immune-related and rare diseases show no signs at birth, but a simple Newborn Screening test can help detect them early, before symptoms appear. Early detection gives families the opportunity for timely treatment, better outcomes, and hope for a healthier future.

Through MYPOPI and SHINE, we are working to expand access to newborn screening and raise awareness of primary immunodeficiencies and rare diseases across Malaysia. But we cannot do this alone.

💛 Your donation can help provide life-changing early screening for babies in need.
💛 Corporate sponsorships can help us reach more hospitals, families, and communities nationwide.

As an LHDN tax-exempted non-profit organisation, all donations made to MYPOPI are tax deductible.

Together, we can help ensure that no child is left undiagnosed.

Donate. Sponsor. Share.
Because every child deserves a fighting chance. 🧬💙

Donate to:
Persatuan Pesakit Imunodefisiensi Primer Malaysia (MYPOPI)
Maybank Account: 5148 9706 4622
Reference: or

All donations made to Persatuan Pesakit Imunodefisiensi Primer Malaysia (MYPOPI) are eligible for income tax exemption.

Di Bawah Subseksyen 44(6), Akta Cukai Pendapatan 1967
No. Rujukan: LHDN.01/35/42/51/179-6.8744
Tempoh Kuatkuasa Kelulusan: 01 Januari 2023 sehingga 31 October 2027

📧 To receive your official tax exemption receipt, kindly email us at [[email protected]](mailto:[email protected]) with:
* Full Name
* IC No.
* Full Address
* Proof of Donation

For more information or corporate sponsorship opportunities:
📩 [[email protected]](mailto:[email protected])
📞 03-5525 5652

23/04/2026

🚨 NOT ALL ILLNESSES ARE VISIBLE 🚨

This World Primary Immunodeficiency Week 2026 (WPIW26), we shine a light on hidden immune disorders affecting many Malaysians — often silently, often undiagnosed.

Behind every late diagnosis is a story of struggle, uncertainty, and missed opportunities for early treatment.

⚠️ It’s time to change that. Early detection saves lives.

💡 READ MORE: https://www.malaymail.com/news/what-you-think/2026/04/22/why-malaysia-must-act-on-hidden-immune-disorders-zarina-thasneem-zainudeen-and-intan-juliana-abd-hamid/217220

APRIL 22 — As Malaysia joins the global community in observing World Primary Immunodeficiency Week from April 22 to 29, 2026, attention turns to a group of conditions that are...

22/04/2026

Plasma4Life marks an important milestone: three years of advancing access to plasma-derived medicinal products worldwide.

Since its launch, the initiative has evolved into a global platform that brings together partners across sectors to improve access to treatment and strengthen resilient health systems.

This milestone reflects the commitment of experts, patient organizations, policymakers, private sector partners and institutional stakeholders who contribute to the initiative. We extend our appreciation to IPOPI, the World Federation of Hemophilia, the GBS-CIDP Foundation International, Takeda, Intas and PPTA for their continued collaboration.

From initial country engagement in Argentina and Malaysia to expanded activities in India and other regions, Plasma4Life demonstrates the value of cooperation grounded in expertise, trust and a shared commitment to progress.

We thank all partners and contributors whose collaboration makes this work possible.

Intas Pharmaceuticals
Plasma Protein Therapeutics Association
IPOPI
World Federation of Hemophilia
GBS-CIDP Foundation International

29/03/2026

29/03/2026

29 March 2026 Sunday:
Saiko Charity Cup 2026 - Honoured to name MYPOPI as one of the beneficiaries

We are MYPOPI—the Malaysian Patient Organisation for Primary Immunodeficiencies—dedicated to raising awareness, supporting patients, and giving hope to those living with Primary Immunodeficiencies - A Rare Disease

At MYPOPI, we believe life with PID is like pickleball—fast-paced, unpredictable, but always winnable with the right support. Together, we play smarter, live stronger, and never miss a chance to rally hope.

27/03/2026

Every child deserves a chance to grow, play, and dream. 💙
But for children living with rare diseases, even basic medical care can be a daily battle.

We are raising funds to support a child fighting a rare disease and to help provide the treatment and care they urgently need.

Your kindness can give this child a fighting chance at life.
No amount is too small — every contribution brings hope.

👉 Donate and share:
https://give.asia/campaign/give-a-child-with-a-rare-disease-a-fighting-chance-at-life #/story

You may also donate directly to:
Persatuan Pesakit Imunodefisiensi Primer Malaysia (MYPOPI)
Maybank Account: 5148 9706 4622

📌 Tax exemption for donors
All donations made to Persatuan Pesakit Imunodefisiensi Primer Malaysia (MYPOPI) are eligible for income tax exemption under Subsection 44(6), Income Tax Act 1967.
Reference No.: LHDN.01/35/42/51/179-6.8744
Approval Period: 1 January 2023 – 31 December 2027

📧 To receive your official tax exemption receipt, kindly email us at [email protected] with the following details:

* Full Name
* IC No.
* Full Address
* Proof of Donation

Thank you for your generous support and contribution.
Together, we can change a life. ❤️

Some Children Are Born Without an Immune System—You Can Save Them In Malaysia, there are children born with Primary Immunodeficiency (PID)—rare conditions where their immune systems cannot protect them from infections. For these children, even a common illness can become life-threatening. The gr...

25/03/2026

🩸 GIVE THE GIFT OF LIFE | WORLD PI WEEK 2026 🩸

In conjunction with World Primary Immunodeficiency (PI) Week 2026,
MYPOPI, together with Xpodium Malaysia and CrossFit Eren, invites YOU to be a hero.

For patients living with Primary Immunodeficiency, access to life-saving treatments like immunoglobulin therapy depends on plasma derived from generous donors like you. Your one donation can help save multiple lives.

💉 Blood Donation Drive
📅 25 April 2026 (Saturday)
⏰ 8:30 AM – 3:00 PM
📍 CrossFit Eren, G Floor, No 14, Jalan Anggerik Vanilla M 31/M Kota Kemuning, 40460 Shah Alam.

✨ Event Highlights:
☕ FREE Coffee Giveaway for the first 80 donors (by Brew & Bread)
📊 FREE Body Composition Analysis (by First Care Pharmacy)
🏋️ Fitness Talk by CrossFit Eren
🎁 Exciting activities & more surprises throughout the day!

❤️ Why it matters:
For individuals with Primary Immunodeficiency, blood and plasma donations are not just helpful—they are essential for survival. Your contribution helps ensure they receive the treatment they need to live healthy, fuller lives.

👥 Bring your friends, family, and colleagues.
📢 Be a part of something bigger.
🩸 Donate blood. Save lives. Give hope.