The Labalaba Foundation Lupus Awareness And Advocacy

The Labalaba Foundation Lupus Awareness And Advocacy Advocating for people affected by lupus and their families through education and support.

25/03/2026

Gender Health Justice Gap at NGO CSW70

As the NGO CSW70 Forum concluded in New York, I am still reflecting on the powerful insights shared during our recent panel, “Her Health, Her Rights: Beyond Reproductive Health."

While reproductive health often dominates global conversations, our session pivoted to a critical, often overlooked frontier: the intersection of chronic disease, judicial structures, and gender-based health inequities. According to NIH, there are 140 autoimmune diseases, 80% of those suffering are women.

We were honored to be joined by an esteemed group of panelists, Dr. Irene Tato, Dr. Eleanor Nwadinobi, Dr. Veronica Rodriguez Torres, and Ms. Uri Ngozichukwuka, who didn't just highlight problems, they mapped out the structural shifts required for true health justice.

Our discussion centered on how current health systems and legal frameworks often fail women and girls living with chronic conditions. From diagnostic bias to the lack of gender-specific medical research, the barriers are not just medical; they are systemic.

Key Takeaways:

Laws and policies must prioritize chronic disease management through a gender-sensitive lens.

Access to treatment for women and girls requires robust judicial protection.

Patient experience is mandatory in research, clinical trials and policymaking for best results.

Let’s continue to work together to promote health justice and close the healthcare gap for all women and girls through sustainable policies and measurable action.

25/03/2026
Tampa Metro Section of the National Council of Negro Women invited The Labalaba Foundation to speak about lupus -highlig...
16/06/2025

Tampa Metro Section of the National Council of Negro Women invited The Labalaba Foundation to speak about lupus -highlighting the urgent need for strong research, equitable healthcare for all and better education about this devastating disease.

Thank you Massachusetts Governor Maura Healey for proclaiming May as Lupus Awareness Month 2025 to help bring greater aw...
09/06/2025

Thank you Massachusetts Governor Maura Healey for proclaiming May as Lupus Awareness Month 2025 to help bring greater awareness and to promote advocacy for those affected by this disease and their families.

Thank you for coming out for our Tampa Lupus Awareness Walk 2025. Special thanks to donors, sponsors and collaborators i...
04/06/2025

Thank you for coming out for our Tampa Lupus Awareness Walk 2025. Special thanks to donors, sponsors and collaborators including Ersula's History Shop, Herbal Healing Nation and MissionMed Wellness. Together we make a difference!

The Labalaba Foundation thanks Mayor Jane Castor of Tampa, Florida for your proclamation of May as Lupus Awareness Month...
02/06/2025

The Labalaba Foundation thanks Mayor Jane Castor of Tampa, Florida for your proclamation of May as Lupus Awareness Month and May 10th as World Lupus Day. We also appreciate lighting up city hall and other landmarks in purple to help bring greater awareness about lupus.

Four more days to Run/Walk/Ride for Lupus Awareness Month 2025. Register, wear purple, and tag us with your photo. It is...
28/05/2025

Four more days to Run/Walk/Ride for Lupus Awareness Month 2025. Register, wear purple, and tag us with your photo. It is TIME to shine the light on lupus. We are committed to advocate for those suffering with lupus, to amplify the voice of the patient for better research and ensure equitable access to healthcare for all. Will you join us? Click the lick below and donate today!
https://givebutter.com/thelabalabafoundation

The 16th International Congress on Systemic Lupus Erythematosus (LUPUS 2025) was held May 21-24, 2025, in Toronto, Canad...
28/05/2025

The 16th International Congress on Systemic Lupus Erythematosus (LUPUS 2025) was held May 21-24, 2025, in Toronto, Canada. The event featured global leaders in rheumatology, immunology, and autoimmune research, as well as patient advocacy organizations, discussing advancements in lupus treatment, management and the lived experience of lupus patients. This was a great opportunity for collaboration to drive transformative changes in lupus care.

Join me as we envision a world without lupus. Let's "move" - please register, (Walk,Run or Ride), put on purple and send...
19/05/2025

Join me as we envision a world without lupus. Let's "move" - please register, (Walk,Run or Ride), put on purple and send me your photo. Together we can make a difference!

Today is World Lupus Day - a global effort to raise awareness about lupus, highlighting the need for improved healthcare...
10/05/2025

Today is World Lupus Day - a global effort to raise awareness about lupus, highlighting the need for improved healthcare, increased research, earlier diagnosis and treatment.

Put on purple for Lupus Awareness Month!
08/05/2025

Put on purple for Lupus Awareness Month!

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