30/04/2026
Iv been taking care of my hauora alongside Puhi Kaiti and other services have been pushed aside because my health had to come first!
Not all services should integrate whilst I'm taking care of my health because that's more a priority then anything else ...
Today im in the hands of Puhi Kaiti for external apps and unfortunately it overlaps with another service wanting to connect with myself 1-1
This service decided to change their time with myself to suit them but not myself yet i am the one who has the high needs ...
You would think that would take common place as a thought a mere thought
Inbetween all this i then have to take care of my 2 disabled sons and it ment having to abandon them this morning to get apps done, where their is no respite in place or a caregiver for my eldest son or youngest either ...
So when my medical apps are over and not any other apps are in place todqy, I will connect back with my 2 sons and function back into MOM mode ... so they get reconnected with me and I can continue their care...
Tomorrow I get recollected by Puhi Kaiti & revist the nurse for a full assessment of my foot injury, i am finally able to wear sneakers this week finally ...
This is what happens when you have limited care support for high needs ...
No home help...
No caregiver...
No external support for my 2 sons...
No transport albeit taxis with a dissability discount and my mobility scooter...
High needs means from myself is myself and my sons needing 1-1 care & support consistently
TODAY I only have enough time for my medical apps and no more services in my space
WHY BECAUSE I need to prepare BRUNCH - PLAN DINNER - CLEAN THE BATHRM and TOILET - leave my sons for 30mins to purchase dinner and come home to get that ready in time at a reasonable hr 6pm - 7pm
Then after that i need to get my washing sorted and done at my parents place as I don't have a washing machine & they need their daily ration of fresh farm eggs i get for them weekly
Once that's all done it will be night time ... and I would need to get time in with my sons so they get 1-1 with their own mother ...
After that I have chores to complete after my sons are settled so that I can function clearly and safely the next day ...
Tommorow I have more medical apps (2)
Then I have a community meeting which is vital for myself and that of our Whaikaha community & Whaikaha Rangatahi
This is a chance of getting to know me and how I function ... alot don't have a idea and some can slowly learn which gives clarity ...
Hopefully after all this their is a complete full hour to give myself some self care before 10pm!
