02/06/2026
A difficult post from us today
This is something we've gone back and forth about writing, because we genuinely love this community and the support you've shown Amelia and our family over the years.
We know this is a public page, and we fully understand that anything shared publicly can be seen and discussed by others.
However, this situation is different for us.
We've recently become aware that updates, photos, and information shared on this page are being intentionally passed on to a family member who has been deliberately blocked from receiving updates from this page and who has been removed from our children's lives.
We need to be really honest, this has been upsetting for us.
These boundaries were not made lightly. They exist for important personal and safety reasons for our children, and they are boundaries we have had in place for a long time.
In the past, this individual has previously turned up at the hospital uninvited during Amelia's first brain surgery which was very upsetting, and we had to ask them to leave. That experience was incredibly distressing, and it is something we cannot risk happening again.
With Amelia having upcoming surgery and medical needs, her safety, privacy, and emotional wellbeing are our absolute priority.
This page has meant more to us than we can properly put into words. We are a small family in many ways, and this community has genuinely been a lifeline, the kindness, support, encouragement, generosity, and care we’ve received here has carried us through some of our hardest moments. We don’t take that for granted for a second.
And that’s why this is so hard to write.
Because of what has happened, we are now left unsure what the future of this page looks like for us. We may need to change how we share updates, share less, move to a private space, or make other changes. We honestly don’t know yet.
What we do know is that this situation is not okay, and we are hurt and concerned by it.
We are simply asking for respect. Please do not screenshot, forward, relay, or intentionally pass on updates, photos, or information from this page to individuals who have been deliberately excluded from receiving them.
We truly hope it doesn’t come to changing what we share, because we love this community and are so grateful for every single person here who has supported Amelia, bodhi and our family.
Thank you for respecting the boundaries we have put in place to protect our children and support Amelia through her journey.
