Dexter's heart and seizure journey

18/05/2026

This is the aftermath.... the looking and feeling so helpless.... Dexter woke up just before 7.30am.... Sat on edge of his bed.....looked super calm and said I feel funny I had him repeat it and then we new a seizure was about to start....

12/05/2026

Morning everyone. Well thought i would give a little update. Dexter had a seizure this morning and it took a moment for him to relax after it. Poor brax woke up and saw it all, then dillion from another room says.....what happened to dexter buckley.....

Hope this next stage we could be doing happens soon or at least the process.

13/04/2026

13/04/2026

Never thought i would be worried about a child having a nap. Dexter your strong and dont deserve this s**t

13/04/2026

3 seizures in less than 12 hours man this sucks.

08/03/2026

Every donation helps... much love

19/02/2026

https://www.livanova.com/epilepsy-vnstherapy/en-us

Vagal nerve stimulator.
This is possibly what we could do for dexter. If anyone wants to read up on it.

VNS Therapy™ is a treatment designed to reduce the frequency, severity and recovery times of people suffering from drug resistant epilepsy.

19/02/2026

Well just had my zoom meeting with Dr spooner from Auckland. At this stage surgery isnt on the cards as they still need more detail. But we have been given a few more choices on what we can do for dexter and his seizures

25/01/2026

Next month we have a zoom appointment with Dr spooner, she is the head of the Children's Brain and Nerves Clinic team.

Hope this will give more answers for our next steps for dexter

13/01/2026

https://littleheartday.org.nz/dexter-sutton-buckley

Please join us and help raise funds for heart kids around Aotearoa.