Dexter's heart and seizure journey

Dexter's heart and seizure journey Hi all, some of you may no Dexter's story..... and this has been a Rollercoaster of a journey.

01/09/2026

Another morning seizure.... really hope starship hospital get to him soon

......well 3am this morning dexter awoke telling about a random dumpling he popped only to hop back to his bed with what...
31/08/2026

......well 3am this morning dexter awoke telling about a random dumpling he popped only to hop back to his bed with what looked like a huge absent seizure(a seizure without shaking). To then wake Just before to him in the lounge with a small yell I go to him and he on lounge floor having a seizure.....

Doing this for my darling boy and all the heart kids
25/08/2026

Doing this for my darling boy and all the heart kids

17/08/2026

This is another reason why we need to get this vagal nerve stimulator operation for dexter. I was in bathroom, no one else was around until dom came in and he yelled for me, dexter was in mid seizure on the floor between lounge a kitchen.... plus not he wake up call his grangee was expecting either.

F**k these seizures

20/07/2026

Unsure on what time exactly. But a early morning wake up wasn't on the cards. Poor dexter woke, walked in hallway I could hear in his voice he wasn't right, before he started to seize one i caught him and the other thing was he said before he started falling was asking for Marshall *his words...... get Marshall *

After affects..... eyes open but he was pretty much snoring....
06/07/2026

After affects..... eyes open but he was pretty much snoring....

06/07/2026

⚠️🛑TRIGGER WARNING 🛑⚠️

seizures suck!!!!!!

Meds make him sleep... so morning sleep.... he wakes to say he needs the loo, ok sweet. Take him and stay with him, he gagged and then sadly a seizure on the loo. I really hate posting this stuff but I need to have it showen what it's like for him and for us as a family....

Just can't get over how strong my now 8 year old is. He is brave, loving and a real caring boy. We still have a long way...
01/07/2026

Just can't get over how strong my now 8 year old is. He is brave, loving and a real caring boy. We still have a long way to go in this focal epilepsy journey but we will get there.

Yesterday we had a appointment with dexters pediatric neurologist at palmy hospital..... we are now getting our referral...
25/06/2026

Yesterday we had a appointment with dexters pediatric neurologist at palmy hospital..... we are now getting our referral for the Vagus Nerve Stimulation system.....

This is the aftermath.... the looking and feeling so helpless.... Dexter woke up just before 7.30am.... Sat on edge of h...
18/05/2026

This is the aftermath.... the looking and feeling so helpless.... Dexter woke up just before 7.30am.... Sat on edge of his bed.....looked super calm and said I feel funny I had him repeat it and then we new a seizure was about to start....

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50 Ruahine Street
Palmerston North
4414

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