Integrated Rheumatology

06/06/2026

Did you know that up to 90% of patients with experience gastrointestinal issues? This can lead to decreased appetite and weight loss, making a balanced nutritious diet essential.

There isn't a specific 'scleroderma diet’, so it is important to experiment and find out what works for you. Healthcare professionals can suggest initial treatments, and if you wish to explore alternatives, such as prescription medications, your GP can prescribe this.

Due to symptoms like decreased appetite, finding joy and balance with food is just as important as being mindful of nutrition.

25/12/2025

Seasons Greetings from our team to you and your loved ones 🎄

31/10/2025

New to scleroderma or looking to connect with others who truly understand?

JOIN US for our free online information and connection session on Thursday, 20 November 2025 - a welcoming space to share experiences, learn more, and connect with the scleroderma community in the ACT!

🕕 6:00 pm AEDT
💻 Online via Google Meet

You’ll meet passionate community leaders dedicated to supporting your journey:
Amanda Lawrie-Jones – Chair, Scleroderma Australia
Tara Haneveld – Deputy Chair, Scleroderma Australia
Dylan King – Secretary, Scleroderma Australia
Janelle Blight – Support Group Coordinator, Scleroderma Victoria

Whether you’re newly diagnosed, have lived with scleroderma for years, or care for someone who does - you’re not alone. Together, we’re stronger!

👉 Register now to receive your Google Meet link:
https://www.eventbrite.com.au/e/living-with-scleroderma-support-resources-connection-act-tickets-1760096228199?

We look forward to welcoming you and supporting your journey. 🌻

12/10/2025

WORLD ARTHRITIS DAY

What do you think of when you hear the word arthritis?

🎯Older folk.
🎯People with joint injuries.
🎯Incurable.
🎯Going to get worse.
🎯Will need joint replacement one day.

NOT TRUE!

Did you know:

💡Arthritis can affect kids/babies
💡Arthritis is treatable
💡There are >100 types of arthritis
💡Having arthritis does NOT mean you will need surgery
💡X-ray arthritis is NOT equal to pain

Arthritis affects people of all ages, who all require different approaches to feel better.

Movement, exercise and modalities like are essential if you have arthritis. Don’t rely on pills alone!

If you are interested, guides specialist chair yoga classes for folk living with arthritis (and other chronic illness) so take a look!

What exercise helps your arthritis?

SHARE below so we can learn from each other AND share this with someone who needs to hear this!

20/07/2025

Our founder Nikki Tugnet discussed the benefits of yoga for with Yoga Medicine by Tiffany Cruikshank.

Watch or listen to the episode here https://youtu.be/3azNyy_YTwA?si=4VNQk7x_ZvpaaN_J

29/06/2025

DID YOU KNOW...

That cold weather can trigger Raynaud’s phenomenon?

This is a common symptom of scleroderma where fingers and toes may turn white or blue because of reduced blood flow.

For those living with scleroderma, staying warm isn’t just about comfort - it’s crucial for managing their symptoms!

Let’s take a moment to understand and support everyone affected by this condition, especially as the colder months approach.

Together, we can make a difference!

12/06/2025

💡 Got a clever hack for living with scleroderma?
Whether it’s a kitchen tip, mobility aid, or part of your daily routine — we want to hear it! 🙌

This , we’re collecting real-life tips from the community to help others live more comfortably and confidently. 💙

Your everyday wisdom could make a big difference — drop your tips in the comments! 👇

12/06/2025

June isn’t just the start of winter… it’s time to SNUGGLE UP for World Scleroderma Day!

Why do we Snuggle Up? Because that’s what winter is for - warmth, comfort, and connection.

Nearly 6,000 people are affected by scleroderma in Australia - and with your help, we can make a real difference in their lives.

This June, we're rallying together to raise vital funds to support scleroderma nurses -they’re not just healthcare professionals, they’re guides, educators, and lifelines for people navigating this rare and complex condition.

Your support keeps these nurses in clinics and on screens, providing expert care, comfort, and connection to people across Australia.

When you support our nurses, you’re not just funding healthcare, you’re building stronger communities, empowering patients, and creating a more compassionate system for everyone.

Help raise funds and awareness by hosting your own cosy event! You could:

🧤 Throw a PJ slumber party (in person or online)
🧤 Host a film night with friends
🧤 Hold an afternoon tea in scarves and gloves
🧤 Organise a casual clothes day at work

So, let's get cosy, show our support, and make a difference!

08/06/2025

08/06/2025

we see you 🩵