Acromegaly - Philippines

Acromegaly - Philippines Acromegaly Philippines is a community of acromegaly patients across the country.

As we wrap up today's celebration of National Rare Diseases Day, the Philippine Society for Orphan Disorders Incorporate...
28/02/2026

As we wrap up today's celebration of National Rare Diseases Day, the Philippine Society for Orphan Disorders Incorporated together with rare disease patients, their families and advocates organized the lighting up ceremony of the Fort Santiago in Intramuros, Manila. 💜

We Care for Rare! Thank you Intramuros Administration for joining

Patient members and their families, representatives of patient groups, volunteers gathered to witness the illumination of Fort Santiago, Intramuros. More than 20 sites are also illuminated across the country in support of and National Rare Disease Week Philippines.

Maraming salamat po.

Thank you, Senator Pia Cayetano for standing with us, rare disease patients. 💪 We need more people like you who can unde...
25/02/2026

Thank you, Senator Pia Cayetano for standing with us, rare disease patients. 💪 We need more people like you who can understand our journey and fight with us in this battle. 😊 Mabuhay ka, Sen. Pia! 🤗

In observance of National Rare Disease Week, Senator Pia S. Cayetano delivered a privilege speech on strengthening support for Filipinos living with rare diseases as the country marks the 10th anniversary of the Rare Diseases Act of 2016.

Anchored on this year’s theme, “More Than You Can Imagine,” Cayetano called for stronger implementation of the law, expanded access to early diagnosis and treatment, and the full integration of rare disease care into Universal Health Care.

As principal author of the law and Chairperson of the Senate Committee on Sustainable Development Goals, Innovation, and Futures Thinking, she underscored the Philippines’ commitment to SDG 3 on good health and well-being, stressing that inclusive health systems must ensure that no one living with a rare condition is left behind.

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