Acromegaly - Philippines

30/04/2026

Happy Birthday, Dr. Carmencita Padilla! 🥳

Greetings From: Acromegaly - Philippines 🇵🇭

We wish you good health, happiness and abundance on this special day! 😊 We are grateful for the gift of your life and for your invaluable contribution to the Rare Disease Community. 😃 God bless you, Doc! 😇

Ang Philippine Society for Orphan Disorders, Inc. ay bumabati ng isang maligayang kaarawan kay Dr. Carmencita Padilla!

A trailblazer in medical genetics in the country, National Scientist Padilla is the founding chairperson of the Philippine Society for Orphan Disorders. Her remarkable contribution to the rare disease community and the institution of human genetics services in the Philippines have made her a beacon of hope for many in the Philippines.

24/04/2026

Today, people around the world are taking part in World Hormone Day –

When hormones are out of balance or fail, this can lead to chronic diseases such as diabetes, thyroid disorders, cancer, osteoporosis and obesity, and other health challenges such as infertility.

There are also more than 440 rare endocrine conditions that affect millions of people worldwide, but often go undetected.

Acromegaly is one of the rare endocrine conditions which affects the life of every patient. It is primarily caused by the tumor in the pituitary gland which produces excessive growth hormones and affects the function of the other hormones leading to hormonal imbalance.

Despite scientific progress and increased awareness in some areas, there’s still a lot more that can be done.

Let's put hormones in the spotlight on

Find out more: worldhormoneday.org

23/04/2026

Tomorrow is World HormoneDay! We’ll be helping to raise awareness of the vital role hormones play in health and disease –

Hormones affect growth, energy, stress, reproduction and a whole lot more. When they’re out of balance or fail, this can lead to diseases such as diabetes, thyroid disorders, cancer and many rare endocrine conditions. Better awareness means people can do more to protect their health and get diagnosed and treated sooner.

Acromegaly is a rare endocrine condition which is primarily caused by a tumor producing excessive growth hormones in the pituitary gland. We are in solidarity with all the other rare conditions whose hormones are also greatly affected.

Find out more: worldhormoneday.org

08/03/2026

AZ HELPS ACADEMY - MODULE 2
March 5-7, 2026
Luxent Hotel, Quezon City

Acromegaly - Philippines joined the Module 2 of AZ Helps Academy sponsored and organized by AztraZeneca Pharmaceutical Philippines, Inc. The workshop aims to teach the patient advocates, organizations, and different medical professionals to strengthen their advocacy, promote awareness, and attain sustainability in achieving their goals and objectives in their organizations.

Workshops like this truly empower the patient advocates, leaders, and different stakeholders who aim to be the voice of the patients.

Special thanks to AztraZeneca Pharmaceutical Philippines, Inc., to all the speakers during the sessions, and to all the people behind this successful 3-day workshop. We truly appreciate it!

28/02/2026

As we wrap up today's celebration of National Rare Diseases Day, the Philippine Society for Orphan Disorders Incorporated together with rare disease patients, their families and advocates organized the lighting up ceremony of the Fort Santiago in Intramuros, Manila. 💜

We Care for Rare! Thank you Intramuros Administration for joining

Patient members and their families, representatives of patient groups, volunteers gathered to witness the illumination of Fort Santiago, Intramuros. More than 20 sites are also illuminated across the country in support of and National Rare Disease Week Philippines.

Maraming salamat po.

28/02/2026

WORLD RARE DISEASE DAY 2026
February 28, 2026

The month of February is unique being the only month which has only 28 days or 29 days in a leap year. That being said, every last day of February is celebrated as the Rare Disease Day each year.

It is a global advocacy initiative launched in 2008 by EURORDIS and supported by over 65 national alliances and thousands of patient organizations worldwide. Its purpose is to raise awareness about the over 300 million people living with rare diseases globally, many of whom face delayed diagnoses, limited treatment options, and social exclusion.

The World Health Organization (WHO) recognizes the importance of this campaign in promoting equitable access to healthcare, research, and support services for rare disease patients. By spotlighting the challenges of more than 7,000 known rare conditions, Rare Disease Day mobilizes stakeholders—including governments, researchers, clinicians, and the public—to improve policy, funding, and care systems for affected individuals.

Credits: for this infographic.

27/02/2026

Yesterday, February 26, 2026, Acromegaly - Philippines joined the Rare Disease Forum hosted and organized by AstraZeneca 🧬

More Than We Can Imagine: Amplifying voices to strengthen equitable rare disease care in the Philippines. 🇵🇭

We are honored to attend such events like this promoting advocacy and raising awareness for rare diseases in the country.

May we continue to fight for the rights and privileges of every Filipino rare disease patient. 💪

25/02/2026

Maraming salamat po, Senator Senator Risa Hontiveros sa iyong pakikibaka at pakikiisa sa mga katulad naming rare disease patients. Mabuhay po kayo, Senator Risa! 🫡 Saludo po kami sa inyo!

25/02/2026

Thank you, Senator Pia Cayetano for standing with us, rare disease patients. 💪 We need more people like you who can understand our journey and fight with us in this battle. 😊 Mabuhay ka, Sen. Pia! 🤗

In observance of National Rare Disease Week, Senator Pia S. Cayetano delivered a privilege speech on strengthening support for Filipinos living with rare diseases as the country marks the 10th anniversary of the Rare Diseases Act of 2016.

Anchored on this year’s theme, “More Than You Can Imagine,” Cayetano called for stronger implementation of the law, expanded access to early diagnosis and treatment, and the full integration of rare disease care into Universal Health Care.

As principal author of the law and Chairperson of the Senate Committee on Sustainable Development Goals, Innovation, and Futures Thinking, she underscored the Philippines’ commitment to SDG 3 on good health and well-being, stressing that inclusive health systems must ensure that no one living with a rare condition is left behind.

25/02/2026

Acromegaly - Philippines pledged for rare!

24/02/2026

DOH Rare Disease Forum 2026
February 24, 2026

Acromegaly - Philippines is grateful for the opportunity to be present during this meaningful event organized by the DOH. Every small step is still a progress. May we achieve the inclusivity, better access to healthcare and orphan medications for all rare diseases nationwide, not just for Acromegaly.

We appreciate the efforts of our doctors and medical professionals in ensuring the welfare of every rare disease patient. We salute your care and dedication to rare disease patients.

As we go along with the week-long celebration of rare diseases, may we be able to promote advocacy and raise awareness for these different rare conditions. If you, your family members, or someone you know is diagnosed with a rare disease, please let them feel that they are not alone. That they are loved, cared, and validated. That they will not be left behind.