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𝗣𝗼𝗹𝘆𝗰𝘆𝘁𝗵𝗲𝗺𝗶𝗮 𝗩𝗲𝗿𝗮: 𝗟𝗼𝗿𝘆’𝘀 𝗝𝗼𝘂𝗿𝗻𝗮𝗹

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𝗣𝗼𝗹𝘆𝗰𝘆𝘁𝗵𝗲𝗺𝗶𝗮 𝗩𝗲𝗿𝗮: 𝗟𝗼𝗿𝘆’𝘀 𝗝𝗼𝘂𝗿𝗻𝗮𝗹

Welcome to my page 🤍 This is my personal Polycythemia Vera (PV) journey—real experiences, symptoms, treatments, lessons, faith, and lifestyle changes.

Not medical advice, just awareness. PV is rare and silent. You’re not alone 🌿

02/03/2026

𝗣𝗩 𝗝𝗼𝘂𝗿𝗻𝗲𝘆 — 𝗧𝗵𝗶𝘀 𝗧𝗶𝗺𝗲, 𝗜𝘁 𝗙𝗹𝗼𝘄𝗲𝗱 ✨3/2/26

Alam mo yung pakiramdam na isang tusok lang… tapos, tapos na!!!!🤗
For someone living with Polycythemia Vera, that’s already a miracle.

After seeing my high lab results, alam ko na —
kailangan kong paghandaan ang phlebotomy.

No coffee.
Enough sleep.
2.5 liters of water.
Fruits.
And prayers — mine, and from friends and siblings. 🙏

Pagpasok ko sa room, tahimik lang ako.
Nagdarasal habang hinahanap ni Doc ang vein.

Then…
first try.

Walang second attempt.
Walang adjustment.
Diretso hanggang 500cc.

Mabilis.
Maayos.
Walang stress.

Sana laging ganito.

⸻

Habang nakahiga ako doon, I realized something —
hindi lang ito tungkol sa dugo.

It’s about discipline.
It’s about slowing down.
It’s about choosing balance.

Hindi mo kayang dayain ang PV.
Pag pagod ang katawan, lalabas at lalabas sa numbers.

⸻

And the best part?

Nandiyan ang hubby ko.
Tahimik pero present.
Ready umalalay.
Ready maghatid, mag-antay, mag-support.

After the procedure, I rested.
No wasted day.
Pinahinga ko ang katawan ko —
para bukas, kaya ko ulit harapin ang trabaho.

⸻

Lesson today?
Hindi kahinaan ang magpahinga.
Hindi kabawasan ang mag-slow down.

Minsan, answered prayer looks like this —
Isang tusok. Isang daloy. Isang panatag na puso. 🌿

📌 Photo modified by AI to protect procedure privacy.

27/02/2026

✨ 𝗣𝗩 𝗝𝗼𝘂𝗿𝗻𝗲𝘆 — 𝗟𝗮𝗯 𝗥𝗲𝘀𝘂𝗹𝘁 (𝗙𝗲𝗯𝗿𝘂𝗮𝗿𝘆 𝟮𝟲) ✨

Numbers don’t lie. They whisper truths we sometimes don’t want to hear.

And here’s what stood out:

• Hemoglobin: 166 (High)
• Hematocrit: 0.50 (High)
• WBC: 11.6 (High)
• Platelet count: 765 (Very High)

For someone living with Polycythemia Vera, these numbers are not just numbers.
They are indicators of how thick my blood is… and how hard my body is working.

A hematocrit of 0.50 means my blood is still too concentrated.
Platelets at 765 remind me that clot risk is something I must continue to take seriously.

This explains:
Why I needed another phlebotomy.
Why the blood was still dark.
Why I can’t afford to ignore rest.

⸻

🕊️ What I chose today

Today, I chose to rest.
Work-from-home muna.
Less stressful activities.
Fewer encounters.

Because stress also thickens more than just thoughts —
it affects the body.

Living with PV means adjusting, not quitting.
Slowing down, not stopping.

⸻

🩸 What this result reminds me:

Polycythemia Vera is quiet.
It doesn’t shout every day.
But internally, it continues to demand discipline.

Monitoring matters.
Hydration matters.
Sleep matters.
Stress management matters.

And follow-ups matter.

⸻

I share this not to scare anyone.
I share this because awareness saved me once… and continues to protect me now.

Next goal:
Lower that HCT.
Lower that platelet count.
Protect my brain.
Protect my heart.

Step by step.
Draw by draw.
Prayer by prayer. 🙏

26/02/2026

One try. Less than a minute. 🩸
For someone with pasaway veins, this is already a miracle. 🙏

Small wins matter when you live with Polycythemia Vera.

26/02/2026

✨ 𝗣𝗩 𝗝𝗼𝘂𝗿𝗻𝗲𝘆 𝗨𝗽𝗱𝗮𝘁𝗲 ✨2/26/26

Small victories matter when you live with Polycythemia Vera.

Yey!!! First time — one try, less than a minute! 🩸
After the difficult and painful sessions before, today my vein finally cooperated.

Thank You, Lord. 🙏

For someone with “pasaway” veins, that’s already a big win.

Now I’m waiting for my CBC results.
Sana okay ang numbers. 🙏

⸻

🩺 Current observation: Swelling

Right now, my left pointer finger is swollen and painful kagabi lang, and I honestly don’t know the external cause.
No injury.
No bump.
No clear trigger.

When you live with Polycythemia Vera, unexplained swelling is something you don’t ignore.

Because PV makes the blood thicker than normal.
When blood is thicker, circulation can be affected.
And when circulation is affected, fingers and extremities may sometimes swell.

Not all swelling means something serious —
but with PV, I’ve learned to observe closely and respond early.

Living with this condition taught me:

Don’t dismiss small signs.
Small signs can mean big things.

Today I celebrate a smooth blood draw.
But I remain vigilant.

Grateful.
Aware.
Trusting God in every detail. 🌿

26/01/2026

𝗧𝗵𝗲 𝗢𝘂𝘁𝗰𝗼𝗺𝗲✨
I entered the room.I lay down. And I closed my eyes.

Full of hope.
Full of fear.
Full of prayers.

I kept praying silently while the doctor was finding my vein.
Lord, please. Makisama sana veins ko today.

And then it happened. Answered prayer. 🙏

The needle went in. And the blood started flowing.

Mabilis ang daloy.Steady.Finally.

But what caught my attention most was the color of my blood.
From the first syringe up to the last, sobrang dark red pa rin.

By experience, after around 300cc, nagiging mas mapula na ang dugo.But this time… even after 500cc, ganun pa rin ang kulay.

Dark.
Thick.
Heavy-looking.

I even told my doctor: “Doc, kuhanan mo pa ako.”
But she said:”Hanggang 500cc lang.”

She explained that the dark red color still indicates that I will need to come back again very soon for another phlebotomy session.

Mixed emotions.
Relief.
Gratitude.
And a quiet fear that this isn’t over yet.

🕊️
But one thing is clear.

Now, I’m no longer near a stroke.
Now, my blood is thinner than it was this morning.
Now, I can finally rest — because my body says so.

And the best part of the day? 🥹
…my hubby cooked dinner for me.
The best comfort food isn’t what’s on the plate.
It’s who prepared it. 🥰

🩸
After the session, here’s what I felt:
• weakness
• dizziness
• pain at the back of my head

Nothing dramatic.
But enough to remind me: my body just went through something big.

Good rest.Good sleep.Good food.

Little by little…the symptoms slowly faded.

📅
What comes next

My next blood test is scheduled on February 2.
My prayer:

That my HCT level goes down.
That my platelet count drops from 800.
That my blood finally cooperates.

I also need to strategize my work demands
so my body can rest more.

Because clearly…
I can’t keep pushing the same way anymore.

⸻
💬 Words that hit me tonight

My husband told me something that stayed with me:
“Your mind wants to work and work and work…
but your body signals that it’s tired.”

And he’s right.

I told him:

I don’t want to slow down.
I don’t want to stop.

We have so many financial obligations and bills right now. And that stress? It lives rent-free in my head.

I worry too much.
I carry too much.
I push too much.

🌿
Today taught me that:

• Prayer changes outcomes.
• Rest is not weakness.
• My body has limits — even if my will doesn’t.
• Love shows up in quiet ways (like home-cooked dinner).
• Stress doesn’t just live in the mind — it shows up in the blood.

I’m grateful.
I’m exhausted.
I’m hopeful.
And I’m humbled.

Today was a WIN.
Even if it’s not the end yet.

Thank You, Lord, for answered prayers today.
I trust You again for the next one. 🙏

26/01/2026

𝗣𝗩 𝗝𝗼𝘂𝗿𝗻𝗲𝘆 𝗝𝗼𝘂𝗿𝗻𝗮𝗹 — 𝗣𝗵𝗹𝗲𝗯𝗼𝘁𝗼𝗺𝘆 𝗗𝗮𝘆 - 3rd in January✨

Today is my phlebotomy schedule again — second attempt for this cycle.

This time, I came prepared.
Loaded up on water.
Slept early.
Tried to relax my body and my mind.

I’m writing this while waiting for my name to be called.

⸻

🩸 Last night’s failed courage test

Last night, I gathered enough courage to let someone try drawing blood from me again.
I told myself:
“Baka this time, makisama na ang pasaway kong veins.”

Well… they didn’t.

After 5 attempts — meaning 5 needle insertions — wala pa rin.
And bawat tusok, may kasamang sulsi sa loob ng kalamnan kapag walang backflow.

At one point, may backflow na.
Akala ko… yes! ito na ‘yon!

Pero as usual, my vein decided to fight back.
Hindi nagtuloy-tuloy ang flow.

Failed again.

I was exhausted.
Physically.
Emotionally.

But my hubby stayed beside me, comforting me quietly.
And a kind nurse tried to lift my spirit with positive words, reminding me not to lose hope.

⸻

☁️ This morning’s emotional battle

This morning, the secretary of my doctor messaged me:
“Ma’am, pupunta po ba kayo today?”

I hesitated.

I really did.

Nade-depress na naman ako.
I could already hear it in my head:
“Naku!!! Ikaw na naman. Ang hirap-hirap mong kunan.”

Instead of encouragement, iyon agad ang naririnig ko sa isip ko.

Still… I went.

And lo and behold —
pagdating ko, pagkakita pa lang sa akin ng doctor, same dialogue.

“Naku! Ikaw na naman!” 😅

This time, ako na mismo ang nagsabi:
“Positive lang tayo, Doc.”

Sabay biro ko pa (na may konting tampo 😅):
“Kung may ibang mas malapit lang, baka doon na ako magpa-phlebo.”

Tampo agad?
Oo.
Patient din naman ako. 😂

⸻

🙏 Holding on again

So here I am.

Hydrated.
Rested.
Trying to stay calm.
Trying to stay hopeful.

Reminding myself:
My veins are not my enemy.
My body is trying its best.
I am doing my part to stay alive and well.

⸻

⏳ Wait… it’s my turn now.

They just called my name.

It’s my turn now.

Lord, please.
Makisama ka na today. 🙏

19/01/2026

✨ 𝗣𝗩 𝗝𝗼𝘂𝗿𝗻𝗲𝘆 — 𝗛𝗼𝘄 𝗜 𝗗𝗶𝘀𝗰𝗼𝘃𝗲𝗿𝗲𝗱 𝗠𝘆 𝗜𝗹𝗹𝗻𝗲𝘀𝘀 ✨

Sometimes, life-changing diagnoses don’t come from symptoms…
they come from a “routine” checkup you almost didn’t take seriously.

This all started in 2021, after the pandemic.

No warning signs.
No dramatic symptoms.
Just a simple decision to have a routine checkup with my husband.

We went to Fabella Diagnostic Clinic, owned by my kumare and fellow Rotarian, Dra. Charlene Narciso.
We both had our blood tests done.

The following day, we received our results.

And everything… was high.
As in lahat.
(As shown in the photo.)

I immediately called Dra. Charlene and asked,
“Baka nagkamali lang?”

She calmly advised me to repeat the test after one week.

But I couldn’t sit still.

Hindi ako mapakali.

So I went to another diagnostic clinic and repeated the test.

Same results.
Still high.

That was the moment I knew something wasn’t right.

16/01/2026

📌Welcome to my page 🤍🌷

This page was created to document my real-life journey with Polycythemia Vera (PV)—the good days, the hard days, the lessons, and the reminders I continue to learn along the way.

I’m not a doctor, I’m a nurse. This is not a medical advice.
This is simply my personal journal—sharing symptoms, treatments, lifestyle adjustments, faith, and the importance of listening to the body early.

PV is rare, often silent, and easily misunderstood.
My hope is that by sharing my journey, I can help raise awareness, encourage early action, and remind others that proper management truly saves lives.

If you’re here because you’re living with PV, supporting someone who is, or simply wanting to understand more—welcome.
You’re not alone here 🌿

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