Clinical Genetics- UP PGH

02/05/2026

26/04/2026

“𝒀𝒐𝒖 𝒄𝒂𝒏 𝒓𝒂𝒊𝒔𝒆 𝒕𝒉𝒆 𝒗𝒐𝒊𝒄𝒆𝒔 𝒐𝒇 𝒑𝒆𝒐𝒑𝒍𝒆 𝒍𝒊𝒗𝒊𝒏𝒈 𝒘𝒊𝒕𝒉 𝒓𝒂𝒓𝒆 𝒅𝒊𝒔𝒆𝒂𝒔𝒆𝒔 𝒔𝒐 𝒕𝒉𝒂𝒕 𝒎𝒐𝒓𝒆 𝒘𝒊𝒍𝒍 𝒃𝒆 𝒂𝒃𝒍𝒆 𝒕𝒐 𝒉𝒆𝒍𝒑 𝒕𝒉𝒆𝒎 𝒐𝒓 𝒔𝒖𝒑𝒑𝒐𝒓𝒕 𝒕𝒉𝒆𝒎.”

Munting Lakas, a mini-docu series by PSOD and a team of Ateneo Life Sciences Students, launches its first episode featuring PSOD’s Patient and Family Coordinator, Ms. Janet Jen Francisco-Kochis, on 𝗔𝗽𝗿𝗶𝗹 𝟮𝟮, 𝟮𝟬𝟮𝟲, 𝟯𝗣𝗠.

Tune in to learn more about PSOD, an organization that champions rare disease awareness and supports patients and families through advocacy, education, and care.

25/04/2026

Munting Lakas: Stories of strength, resilience, and hope.

This mini-docu series by the Philippine Society for Orphan Disorders Incorporated (PSOD) and a team of Ateneo de Manila University Life Sciences Students includes three episodes:

💜Episode 1: Learning More About PSOD with Janet Francisco, our Patient and Family Welfare Coordinator
💜Episode 2: Life Updates with Pauline Martinez, a person living with a rare disease (PLWRD)
💜Episode 3: Understanding Rare Diseases with Dr. Bon Maceda of the Institute of Human Genetics - NIH, UP Manila

▶️ Watch and share the official trailer and be part of our journey.

28/02/2026

28/02/2026

26/02/2026

Watch it here in TVUP channel
https://m.youtube.com/watch?v=eOU1tNNX4c4&fbclid=IwVERDUAQPKEJleHRuA2FlbQIxMABzcnRjBmFwcF9pZAwzNTA2ODU1MzE3MjgAAR4XT-CHO9EJYVtdb4ZaVOyRy-TEjz4KJzXsZrHBB2nPMR5uCesHSKVAZdIhVQ_aem__FyV8X1SDdDRhWukMDnxzA

In celebration of the National Rare Disease Week, join us for an informative and timely discussion on rare diseases and newborn screening.

HEALTH UPDATES WEBINAR #275
Rare Disease: Safe ba ang Anak Ko?
Featuring insights on Maple Syrup Urine Disease (MSUD), Pompe Disease, and Osteogenesis Imperfecta

February 27, 2026 (Friday)
12:00 NN – 1:00 PM

Our featured speaker, Dr. Ebner Bon Maceda, Director of the Institute of Human Genetics, National Institutes of Health, UP Manila, will help us better understand these rare conditions, the importance of early detection, and how families can be supported through proper care and newborn screening.

Together, let’s raise awareness, promote early diagnosis, and strengthen support for individuals and families affected by rare diseases.

Register now: bit.ly/HealthUpdatesWebinar275

Let’s continue working toward equity, awareness, and hope for every Filipino family. 💙💛