PWS Warrior - WonderKid Faye

PWS Warrior - WonderKid Faye In this page, we will try to share with you the WH-H questions of Prader Willi Syndrome in real-life.

Faye gives honor to her teacher and former teachers on WTD! Happy World Teacher’s Day our class heroes! 🥳🥰
04/10/2023

Faye gives honor to her teacher and former teachers on WTD! Happy World Teacher’s Day our class heroes! 🥳🥰

Pano matulog ng may peace of mind. 💓
19/11/2022

Pano matulog ng may peace of mind. 💓

YEY! FIRST NORMAL CHECK-UP EVEEEER! 😅We had Faye's eyes checked last week in Manila. Ate, mentioned to me the ticks she...
19/11/2022

YEY! FIRST NORMAL CHECK-UP EVEEEER! 😅

We had Faye's eyes checked last week in Manila. Ate, mentioned to me the ticks she's noticing.
Faye had Bacterial Meningitis when she was 3 mos old which affected her eyes and ears. We thought, the ticks are related to it. As she grow up naman, we did exercises taught by medical experts. And as observed, parang di naman nagworsen.
But just to make sure, me, trying to give the best Nanay version of me, attended to it. Syempre, di ba, kailangan maaga agad mapatingnan ang mga kaganapan. 😅
And yes! Yun nga! Good results. 💓

Though may grado na 50 ang left, di pa naman kailangan for corrective glasses. God is good, right? 😊 Always holding onto Lord's promises that everything will be fine. Taking things one step at a time. 💓🙏

Thank you po sa mabubuting puso din na doctors na tumitingin sa aming Ate Faye. 💓🙏


15/11/2022

Hi! It's me and my Nanay. 💓

12/11/2022

PLEASE DON'T GIVE/OFFER FOOD. 🙏🤗
This day, we got the result of Faye's genetic test.
Prader Willi Syndrome or PWS is real. The analysis showed a paternal deletion within the long arm of chromosome 15. It is 1 in 10,000-30,000.
Now that the official results are out, I have this sense of dèjà vu.
Quite too much to comprehend. But this explains her unexplainable hunger or hyperphagia.
For now, I only pray for wisdom and strength day by day. I also pray for a community that better understands than speculates.

On the dark days, may we try to find and remember good over the bad. The genuine love and affection she brings; the thoughtfulness to others, the care, the eagerness to be understood and heard. Not every one can give that genuinely. 💐💓

Much love Raine Sarah, Raine Sarah Faye 💓


PLEASE DON'T GIVE/OFFER FOOD. 🙏🤗This day, we got the result of Faye's genetic test. Prader Willi Syndrome or PWS is real...
12/11/2022

PLEASE DON'T GIVE/OFFER FOOD. 🙏🤗
This day, we got the result of Faye's genetic test.
Prader Willi Syndrome or PWS is real. The analysis showed a paternal deletion within the long arm of chromosome 15. It is 1 in 10,000-30,000.
Now that the official results are out, I have this sense of dèjà vu.
Quite too much to comprehend. But this explains her unexplainable hunger or hyperphagia.
For now, I only pray for wisdom and strength day by day. I also pray for a community that better understands than speculates.

On the dark days, may we try to find and remember good over the bad. The genuine love and affection she brings; the thoughtfulness to others, the care, the eagerness to be understood and heard. Not every one can give that genuinely. 💐💓

Much love Raine Sarah, Raine Sarah Faye 💓


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