24/08/2017
If you are responsible for taking care of someone with cancer this article may help you as it helped me.
Understanding the cancer experience when you’re a caregiver
One of the first steps after being told someone you love has cancer will be learning about their diagnosis. This will help you understand the disease process and get an idea of what lies ahead. Some of the first questions that you and the person with cancer should ask the doctor and/or the cancer care team are:
What kind of cancer is it?
Where is it? Has it spread beyond where it started?
What are the treatment options? Which do you recommend?
What’s the goal of this treatment?
How long will treatment last? What will it be like? Where will it be done?
What side effects should we expect?
How will treatment affect everyday activities?
What’s the likely long-term outcome?
When a person has cancer, no one can predict the outcome. While there’s no way for them to know for sure, the cancer care team should be able to give you an idea of how things are likely to go. This will become clearer over time and as they get to know the person with cancer better.
How do we deal with medical delays?
Lab result delays
Sometimes it can take a while to get back lab results. This can be even harder to deal with when you’re waiting to get test results to see if it’s cancer or if cancer has come back. It’s scary to find out about a change in blood counts, or a tumor or mass (lump) and not know if it’s cancer.
Waiting for these results can be a frightening time, and people can go through some strong emotions, including disbelief, anxiety, fear, anger, and sadness. It’s important to know that it’s normal for you and the patient to have these feelings. Some people find comfort in talking with other people about what’s going on, while others wish to keep it very private. Try to respect the patient’s wishes during this time.
Treatment delays
Planning cancer treatment takes time. Most people want to start treatment right away. They worry that the extra time taken to do tests or make decisions will take up precious time that could be spent fighting the cancer.
Cancer treatment should start very soon after diagnosis, but for most cancers, it won’t hurt to wait a few weeks to begin treatment. This gives the person with cancer time to talk about all their treatment options with the cancer care team, family, and friends, and then decide what’s best for them.
The patient might also want to get a second opinion on what’s the best treatment. This is often a good idea, especially if the patient can see a doctor experienced in treating their type of cancer. A second opinion can give the person with cancer more information and help them feel more confident about choosing a treatment plan. Learn more in Seeking a Second Opinion.
The patient also might want or need time to prepare to put their normal activities “on hold” while getting treatment. For instance, arrangements for work or child care may be needed, and taking care of these things ahead of time can help the patient better focus on dealing with treatment. Learn more about these topics in Family and Medical Leave Act and Helping Children When a Family Member Has Cancer: Dealing With Diagnosis
If you or the patient is worried that treatment isn’t starting right away, discuss your concerns with the cancer care team and be sure that any delays will not cause more problems.