Hope for Keona & Kayla - SMA Fighters

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Hope for Keona & Kayla - SMA Fighters Fighting SMA with love, faith & hope. Help us raise funds for Keona&Kayla's treatment with Risdiplam.

Every share, every prayer, every peso counts.

Isa na siguro sa struggles di lang ng mga SMA Warriors kundi na rin ng mga PWD with limited mobility ay yung hindi PWD f...
26/08/2026

Isa na siguro sa struggles di lang ng mga SMA Warriors kundi na rin ng mga PWD with limited mobility ay yung hindi PWD friendly ng mostly sa mga lugar dito sa atin sa Pilipinas. Karamihan sa mga designs/plans have limited access to PWDs(no ramps). I hope that someday part of inclusion and iconsider din ang mga naka-wheelchair and strollers when designing or planning a public spaces and infrastructures.

We've visited this beautiful place in Cavite and the kids were amazed. Nakakalungkot lang kasi challenge talaga yung maiikot namin sila using their wheelchair. And sadly, di lang naman dito ang may mahirap na access para sa mga PWD. Karamihan sa mga pasyalan sa Pilipinas ay ganito. This is not to bring negativity but to seek improvement not only in here but to the entire country. Sana hindi porket PWD ay manatili na lang sa bahay. They also wanted to see beautiful places like this na open space.

Anyway, they love the place and wanted to come back next time.

23/08/2026
23/08/2026

Virtual hugs to all SMA warriors and parents!

Sharing it here because we have to think about younger generations' future...
15/08/2026

Sharing it here because we have to think about younger generations' future...

15/08/2026

Sharing a throwback video of Keona & Kayla when both of them were still able to walk.

SMA Facts for everyones' awareness
15/08/2026

SMA Facts for everyones' awareness

Are you 1 in 50?
Are you a carrier of the gene that causes SMA? Most people unknowingly are carriers! Find out! Get tested before you get pregnant! When 2 people are carriers (most common scenario) they have a 1 in 4 chance of having a child with SMA.

There are now 4 FDA approved treatments! The drugs work the best if given as soon as possible after birth or before symptoms start.
Time is neurons!

l

17/07/2026

7th Birthday!!!

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Perlas Ng Silang, Purok 5, Brgy. Pulong Bunga
Silang
4118

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