Synovial Sarcoma Foundation

11/09/2026

A little behind-the-scenes look inside Dr. Pranam Chatterjee’s lab at Penn 👀🔬

This is where some really exciting synovial sarcoma research is happening, and yes, they’re ACTUALLY creating and testing the compounds right here in the lab.

Research feels a little different when you get to see where it’s actually happening.

10/09/2026

Your participation in the synovial sarcoma registry and biorepository could help advance the research that future patients desperately need.

🧬 Learn more. Get involved. Make a difference.

Tap on this link for more information: synovialsarcoma.org/synovial-sarcoma-registry/

09/09/2026

If you’ve been diagnosed with synovial sarcoma, biomarker testing is something worth discussing with your care team.

Certain biomarkers can help confirm the diagnosis and may also determine eligibility for specific treatments, such as Tecelra, or clinical trials.

Depending on your situation, this may include testing for HLA type, MAGE-A4, NY-ESO-1, and the SS18::SSX fusion, as well as broader molecular testing.

We want our community to know what testing exists and what questions to ask, especially as new treatment options and clinical trials continue to develop.

If you’re unsure what testing you’ve already had, ask your doctor what biomarkers have been tested and whether additional testing may be appropriate.

We’ve also included more information about biomarker testing and questions you can bring to your care team in our Patient Guide and Questions to Ask Your Doctor, available under the Resources tab on our website.

08/09/2026

Every child with synovial sarcoma deserves the chance to grow up, dream big, and live beyond cancer.

💛 Help us fund the research to make that future possible.

Give a gift at synovialsarcoma.org/donate

04/09/2026

ICYMI: This week, we officially launched our SSF Ambassador Program 📣

A community of patients, survivors, caregivers, and advocates turning their own synovial sarcoma journeys into something bigger: awareness, funding, and support for the next family walking this path.

Joining Jonathan are three ambassadors who know exactly what that journey looks like.

Eldiara spent years being told her pain was "just anxiety." Her cancer was ultimately found by accident, during a different surgery altogether. After multiple recurrences and an amputation, she's NED today and using her platform to help other young adults feel seen.

Tessa was told her symptoms were nothing, four separate times, before a scan finally proved otherwise. Chemo, surgery, and a recurrence later, she's in remission and determined to remind others that asking for help isn't weakness.

Kaela has spent her career as an oncology nurse, at patients' bedsides through their own cancer battles. She never expected to end up on the other side of one. Six years and seven surgeries later, she's turned that experience into an unshakable message: advocate for yourself, and don't stop until someone listens.

Four ambassadors. Four different roads to this community. One shared belief: no one should have to face this disease without someone who understands.

Want to learn more about our ambassadors, or become one yourself? Visit: synovialsarcoma.org/ambassador-program/

03/09/2026

Every month, hope begins with people like you.

Behind every research initiative, every patient resource, and every step forward for the synovial sarcoma community is a group of compassionate individuals who choose to give month after month.

Today, we're celebrating our incredible Giving Community. Your generosity provides the steady, reliable support that allows us to invest in groundbreaking research, connect patients and families with trusted resources, and continue moving our mission forward.
To every monthly donor: thank you. You are helping create a future with more hope and better outcomes for everyone affected by synovial sarcoma.

If you're looking for a meaningful way to make a lasting impact, we'd love to welcome you into our Monthly Giving Community. Even a small monthly gift can help change lives.

💙 Together, we're building a future beyond synovial sarcoma.

01/09/2026

INTRODUCING OUR FIRST SSF AMBASSADOR 📣

In honor of Childhood Cancer Awareness Month, we’re proud to officially launch the Synovial Sarcoma Foundation Ambassador Program- a community of patients, survivors, caregivers, and advocates helping raise awareness, amplify the patient voice, and make a difference in the fight against synovial sarcoma.

And we couldn’t think of a more inspiring person to introduce as our FIRST SSF Ambassador than 9-year-old Jonathan. 💙🎗️

Jonathan was diagnosed with synovial sarcoma in October 2025 at just 8 years old. He completed his primary treatment in March and is now between surveillance scans.

This summer, Jonathan and his family took a hike together- the perfect setting for a photo that captures so much of who he is.

When asked about his favorite things, Jonathan said:
❤️ Hugging his family
🤼 Wrestling with his little brother
🎬 Watching Harry Potter or Lord of the Rings with his mom

Jonathan also donated a portion of his tumor tissue to the Synovial Sarcoma Biorepository & Registry Program. When his mom explained that his tissue could help researchers learn more and potentially help future patients, Jonathan said:
“My tumor could help find a cure? That’s awesome!”

And when asked what he wants people to know about childhood synovial sarcoma, his answer says it all:
“Kids are warriors too. We can’t let the worries win-we have to keep fighting.”

That spirit is exactly what the Ambassador Program is all about: turning our experiences into action and helping create a better future for every child affected by synovial sarcoma.

Welcome to the team, Jonathan! We’re so proud to have you as our first SSF Ambassador. 🦸‍♂️💙

31/08/2026

Inside the Haldar Lab: Dr. Rachel Hurley shares how the Synovial Sarcoma Registry & Biorepository connects patient data directly to research - helping her team test new treatment approaches with the goal of bringing them back to patients.

This is why patient participation is so critical to moving the science forward.

Join the Synovial Sarcoma Registry & Biorepository, now open to international enrollment → [email protected]

27/08/2026

One of the biggest barriers to making T cell therapies available to more patients is not the science. It is the manufacturing.

A new study out of Hiroshima University presents a method for producing engineered T cells targeting NY-ESO-1, one of the most clinically validated targets in synovial sarcoma, at clinical scale, more precisely, without viral vectors, and potentially at lower cost than current methods allow.

It is early stage research. But it addresses a real and practical bottleneck in getting the next wave of synovial sarcoma therapies from the lab to the patient.

Read the full article: https://synovialsarcoma.org/how-better-t-cell-manufacturing-could-unlock-the-next-wave-of-synovial-sarcoma-therapies/

A study published in Cytotherapy by Kayo Toishigawa, Kenta Magoori, Hiroyuki Sato, and colleagues at Hiroshima University, in collaboration with Repertoire

26/08/2026

The SSF Registry and Biorepository is open to every patient and family touched by synovial sarcoma.

- Newly diagnosed: Start here.
- Long-term survivors: Your data is the rarest we can collect.
- Bereaved families: Their tumor can still teach us.
- Pediatric families: Your child's biology is uniquely underrepresented.