Synovial Sarcoma Foundation

14/05/2026

Research momentum in synovial sarcoma continues to grow. 📈

New analyses project continued expansion in the North America synovial sarcoma treatment landscape through 2033, reflecting increasing investment in:

• Targeted therapies
• Immunotherapy
• Precision medicine
• Emerging clinical trials

More research and development means more potential pathways forward for patients and families.

Read more using the link below: https://synovialsarcoma.org/north-america-synovial-sarcoma-treatment-market-expected-to-grow-through-2033/

New industry analyses project continued growth in the North America synovial sarcoma treatment market, with a predicted compound annual growth rate (CAGR) of

12/05/2026

Your tumor, decoded.

Through the SSF Registry and Biorepository, we’re working to build programs that will run advanced RNA sequencing on enrolled patients’ tissue, the kind that reveals biology your pathology report never will.

Find something that could help your care? We will tell you. Enroll now. Link in bio.

11/05/2026

Not every new lesion is metastatic disease — and in rare cancers like synovial sarcoma, accurate diagnosis can change everything.

A recent case of cranial synovial sarcoma highlights the critical role of molecular testing and specialized pathology in guiding treatment decisions. 🔬

As precision medicine advances, tools like molecular profiling are becoming increasingly important in rare sarcoma care.

Read more below: https://synovialsarcoma.org/rare-cranial-synovial-sarcoma-case-highlights-importance-of-accurate-diagnosis/

Synovial sarcoma is a rare and aggressive soft tissue cancer that most often develops near the joints of the arms or legs. In very rare cases, however, it can

09/05/2026

In rare cancer care, nurses become so much more than healthcare providers.

They become familiar faces during long treatment days.

The people who remember your fears.

The ones who sit beside families during impossible conversations.

The ones who celebrate every good scan right alongside you.

This International Nurses Week, we want to honor the nurses who have stood beside the synovial sarcoma community.

💙 Share your favorite nurse, memory, or words of gratitude in the comments below.

08/05/2026

We are incredibly encouraged by these advancements.

An experimental mRNA cancer vaccine has delivered striking long‑term results in a small pancreatic cancer trial, and the findings, recently presented at the American Association for Cancer Research (AACR) Annual Meeting, mark a rare and encouraging outcome for one of the deadliest cancers.

The results come after a turbulent year for mRNA technology, as political backlash has threatened to slow or derail dozens of cancer treatments built on the same platform. After months of uncertainty, researchers say momentum is returning.

“The entire country has been asking, ‘How valuable is cancer research to our society?’ And what we heard from the public and our patients is, it’s super-important,” said Robert Vonderheide, MD, DPhil, director of the Abramson Cancer Center and president-elect of the AACR.

NBC

07/05/2026

We are incredibly honored to share that the Synovial Sarcoma Foundation received 1st Prize for the Sarcoma Patient Advocacy Global Network Advocacy in Action Award at the 16th Annual SPAGN Conference in Stockholm, Sweden.🥇

This award recognized our Synovial Sarcoma Registry & Biorepository initiative — a global effort advancing research through patient-driven data, biospecimen collection, and collaboration. 🧬

But there is still so much more work to do. The growth of this registry depends on our community, and every patient who enrolls helps accelerate research and future treatment development for synovial sarcoma.

If you are a patient or caregiver, please consider enrolling by visiting our website. Together, we can continue building one of the most important resources for synovial sarcoma research. 🎗️

05/05/2026

We’re incredibly grateful to SPAGN for hosting such an inspiring, informative, and hopeful conference this past weekend.

As a growing foundation, this was our first time attending—and it certainly won’t be our last. Being able to represent the synovial sarcoma community on this kind of global stage is essential to advancing our mission and strengthening our impact.

We’re especially honored to share that the Synovial Sarcoma Foundation was awarded 1st Prize for the Advocacy in Action Award for our Registry and Biorepository initiative. This recognition highlights the critical role advocacy plays in sarcoma care. 🥇

It was equally powerful to see so many patient organizations come together with a shared commitment: improving access, advancing treatment, and expanding support for patients and families. Through the exchange of patient stories and medical expertise, we made meaningful progress—while also recognizing how much more work lies ahead.

We’re deeply thankful for the opportunity to connect with so many passionate individuals who are equally dedicated to driving research, improving care, and supporting the sarcoma community worldwide.

01/05/2026

01/05/2026

We’re in Stockholm, Sweden for the SPAGN Conference, and we’ve brought this entire community with us. 💛

We have the honor of speaking on behalf of the synovial sarcoma community—raising awareness, elevating the patient perspective, and highlighting the power of the patient voice on a global stage.

This is more than just a conference for us—it’s an opportunity to make sure this rare disease is seen, heard, and prioritized. Every conversation we have, every connection we make, is rooted in the experiences of patients and families like you.

If there’s something you want represented, we’re listening. And if you feel ready to share your story, we would be incredibly honored to help amplify your voice. ✨

You can share your story by clicking the link in our bio. We’re grateful to stand beside you—always.

29/04/2026

Welcoming Lucia and Roberto Belluco to our Board of Directors 🌍

We are honored to welcome our first European board members, marking an important step in expanding our global reach and strengthening collaboration across the synovial sarcoma community.

Lucia and Roberto bring not only deep professional expertise in healthcare, but also a powerful personal connection to this mission through their daughter, Teresa. In her memory, they have shown incredible generosity and commitment to advancing research and supporting families around the world.

As board members, they will help grow our network across Europe, connecting clinicians and research centers to accelerate progress in synovial sarcoma research.

Please join us in welcoming Lucia and Roberto to the SSF family 💙

https://synovialsarcoma.org/synovial-sarcoma-foundation-welcomes-lucia-and-roberto-belluco-to-the-board-of-directors/

The Synovial Sarcoma Foundation (SSF) is honored to welcome Lucia Manzinello Belluco and Roberto Belluco to its Board of Directors as the organization’s first

27/04/2026

The recording is now live! 🎥

Thank you to everyone in our community who joined us for this incredibly meaningful and informative webinar—we’re so grateful to have you be part of these conversations.
A special thank you to for hosting and helping make this discussion possible, as well as to .benson, patient advocate, Dr. Sandra D’Angelo of for sharing her medical expertise, and synovial sarcoma survivor for her powerful personal story.

If you weren’t able to attend live (or want to revisit the conversation), you can now watch the full recording through the link in our bio.

These webinars are an opportunity to learn, connect, and stay informed on the latest efforts shaping our community—and we have more to come. We hope you’ll take a moment to watch and continue being part of this important work.

If you’d like to stay up to date on upcoming events, be sure to subscribe to our newsletter.