Living on Lito Time

Living on Lito Time Our sweet Lito is battling a heart condition and we want you to be part of his journey.

Friends: Please be on the lookout for a local kiddo. All the info is on the flyer. She’s been missing since yesterday mo...
05/28/2026

Friends:

Please be on the lookout for a local kiddo.

All the info is on the flyer. She’s been missing since yesterday morning.

05/27/2026

Note to self:

You need a bigger carry on to fit Lito in.

😂

05/26/2026

This morning the weight of the past few months hit pretty hard.

Listening to Lito wheeze and struggle to catch his breath just from walking to the bathroom.

Our nights of constantly interrupted sleep due to loud gasps for air.

Our boy was so healthy, energetic, happy.

I’m forever thankful that we still have him, but it’s hard not to wish his life was a little easier for him.

Hug your babies. 💙

05/25/2026

Lito spent last Thursday following his brother around for Senior Walkthrough, then went to speech, then came back and hung out with grandma while the family cheered Carter on at a packed graduation.

While he’s no longer on chemo and has his PICC line out, his heart rate skyrockets and he gets worn out pretty quick.

These days, our live revolve around Lito, and that’s why this group is called Living on Lito Time.

One of the kids keep scratching my car. For the life of me, I cannot seem to figure out who it is. 👀
05/25/2026

One of the kids keep scratching my car.

For the life of me, I cannot seem to figure out who it is.

👀

05/25/2026

I really thought Lito’s swelling was going down but it seems like maybe he was just having a good day. 😭

05/23/2026

“Hey dad, you wanna play something by Michael Jackson?”
😂

Y’all. Is it just me or does Lito look like his swelling is going down!?!? We lowered some meds, and I feel like he’s le...
05/22/2026

Y’all.

Is it just me or does Lito look like his swelling is going down!?!?

We lowered some meds, and I feel like he’s less puffy!

👀

05/21/2026

Speech - “do you talk a lot?”
Lito - “yeah. I like to talk a lot. Sometimes my dad has to tell me to stop talking so I can breathe”
🤣🫠

We haven’t been to see the doctor yet BUT we did get his blood count! White cells are great and eosinophils are ZERO! We...
05/19/2026

We haven’t been to see the doctor yet BUT we did get his blood count!

White cells are great and eosinophils are ZERO!

We’ve been off the chemo for 3 weeks and lowered another med down to 1/4 of the original dose.

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Ada, OK
74820

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