Cure GM1 Foundation

Cure GM1 Foundation The Cure GM1 Foundation is dedicated to directly funding research for a cure for GM1 Gangliosidosis.

Awareness -> Funding -> Hope
Donate to Save Children: https://www.curegm1.org/donate
The only 501(c)(3) entirely dedicated to GM1, Founded by families impacted by GM1 gangliosidosis, a fatal disease that primarily impacts children.

Caregiver Check-In, Week 1: rest counts.Rest is not a reward you earn after everything is done. It is part of how you ke...
06/03/2026

Caregiver Check-In, Week 1: rest counts.
Rest is not a reward you earn after everything is done. It is part of how you keep going. Five quiet minutes count. A nap counts. Asking for an hour counts.
This week, tell us one way you will rest. Even if it feels small. Someone in this community needs to read your answer.

"In the smallest footprints, you left the biggest mark on our hearts. Until we meet again, sweet angel.” -unknown
06/02/2026

"In the smallest footprints, you left the biggest mark on our hearts. Until we meet again, sweet angel.” -unknown

Our June 2026 Cure GM1 Catalyst is here and it's a celebration!GM1 Day 2026 was one for the books.This month's newslette...
06/02/2026

Our June 2026 Cure GM1 Catalyst is here and it's a celebration!
GM1 Day 2026 was one for the books.
This month's newsletter is packed with:
GM1 research highlights from the ASGCT Annual Meeting
The story of three brothers: Joey, Oliver and Dominic
"Clara's World" heading to Children's National Medical Center
Iris in Times Square for Rare Disease Day
Do It For GM1 kicks off in August!
Virtual Community Conference: October 2, 2026

READ MORE: https://tinyurl.com/53muvjtc

To the GM1 parents:Thank you for the advocacy. The late nights. The gentle care. The love you give every single day. You...
06/01/2026

To the GM1 parents:
Thank you for the advocacy. The late nights. The gentle care. The love you give every single day. Your strength is the heartbeat of this community, and the reason research moves forward.
Today, on Global Day of Parents, we are thinking of every Cure GM1 family. The parents who learned a word they never wanted to learn. The parents who keep showing up.
Share a message for a parent or caregiver in the comments. Tag someone who needs to read it today.

Today is National Smile Day, and if there is one thing this community knows, it's that smiles are sacred. In the world o...
05/31/2026

Today is National Smile Day, and if there is one thing this community knows, it's that smiles are sacred.

In the world of GM1, a smile is so much more than an expression. It's a whole story. The flicker of joy when a favorite song comes on. The grin that says "I see you, I love you." The quiet, beautiful proof that connection lives where words cannot.

So today, we want to fill this space with as many of those moments as possible.

Share a photo of a smile in the comments.

If you have a celebration coming up, would you consider dedicating it to Cure GM1? We will be cheering you on, sending r...
05/30/2026

If you have a celebration coming up, would you consider dedicating it to Cure GM1? We will be cheering you on, sending resources to make it easy, and lifting up your story.

Learn how to start a fundraiser at curegm1.org/take-action 🎂

Every candle. Every wish. Every shared moment. They can all become hope.

Why does advocacy matter?Raising awareness brings hope. It increases research funding. It helps families feel seen and s...
05/29/2026

Why does advocacy matter?
Raising awareness brings hope. It increases research funding. It helps families feel seen and supported. Every post shared moves us closer to a cure for GM1 gangliosidosis.
Share this with one person who has never heard of GM1. That is how rare disease awareness grows.
curegm1.org/about-gm1

“We are diagnosing your son with GM1.” “I felt numb.”GM1 ParentEvery GM1 family remembers the room. The chair. The way t...
05/28/2026

“We are diagnosing your son with GM1.” “I felt numb.”
GM1 Parent
Every GM1 family remembers the room. The chair. The way the words landed. Diagnosis day does not end at the door of the appointment. It echoes for years.
To anyone in this season right now: you are not alone. Cure GM1 is here, and so is a whole community of families who understand.

Recognizing the early warning signs of GM1 gangliosidosis can save precious time.Watch for developmental delay or regres...
05/27/2026

Recognizing the early warning signs of GM1 gangliosidosis can save precious time.
Watch for developmental delay or regression, muscle weakness and poor motor control, and neurological symptoms like clumsiness or speech issues. Early signs are often subtle and easy to miss, especially in a first child.
If something feels off, ask. Share this post with new and expecting parents.
Learn more: curegm1.org/about-gm1

GM1 Day showed the incredible strength of this community.We are deeply grateful for the outpouring of support. Every gif...
05/26/2026

GM1 Day showed the incredible strength of this community.

We are deeply grateful for the outpouring of support. Every gift helps advance research for children and families who cannot afford to wait.

There is still time to give: curegm1.org/donate

Address

PO Box 6890
Albany, CA
94706

Telephone

+15103062460

Website

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