05/24/2026
Thank you so *so* much to all who continue to fight alongside us. I am so honored to have your help ๐ My baby is worth the fight, and so are all the many others who had, have, and will have ASMD. So far this month you have helped us raise $7,600 towards developing his lifesaving treatment.
I am SO grateful for your help ๐
My little love,You are such a big boy now! Seven years old! I'm excited for you to finish sleeping so we can have fun doing all of your favorite things - we will snuggle on the "Fiffer-feffer-feff" (what we call our big couch) while we read as many books as you want. We'll of course make sure to rea...