01/15/2023
First of all, we are so very grateful for the outpouring of support. Each and every one of you has helped relieve some of the stress that our family is under, and we are so very fortunate.
As far as an update, Jadyn is still taking the chemotherapy she started last month. The impact it has made is still unknown, but there has been positive progress seen in some regards. Every day is different right now, and Jadyn has been struggling with severe nausea, lethargy, and pain. Some days she is able to break through it, others not so much.
We are still working with the team Columbia University Irving Cancer Research Center to see if the clinical trial options are feasible. It is honestly an uphill battle- with regards to Jadyn's condition as well as making it a financial possibility. The team there does seem to be committed to helping us figure this out, with the team at Alaska Oncology stepping up to do everything they can as well.
Many would assume that a person participating in a clinical trial have medical expenses covered by the pharmaceutical company that is conducting the study. Turns out, they only pay for the drug that is being researched and any test that may be needed for their research. All medical care is on the patient. And a patient in a clinical trial must transfer all of their care to the team at the medical center where the trial is being conducted. Basically, Jadyn may be moving to NYC is the clinical trial happens. That means she would loose her health care coverage in Alaska. Hopefully, she will be able to get coverage through the State of New York, but that may take time. The other day, I was told that we would feasibly need to be able to prove that we have $200,000 set aside for Jadyn to participate in the clinical trial.
As I said, we are not certain that this will be where the journey ultimately takes Jadyn. We are looking in to using the GoFundMe funds to pay for health insurance, but there are technicalities about the state change that makes that hard to know if it will happen, or when it can happen.
If you would, please consider sharing this GoFundMe as far and wide as possible. Thank you to all of those who have helped us get this far, and for all of those who are assisting us in making any option available to Jadyn in her journey.
Happy Holidays to all! As 2022 nears to an end, we would like to summarize Jadyn’s Healing J… Catlin Clark needs your support for Jadyn's Healing Journey
