05/22/2026
May is Celiac Awareness Month! Most people diagnosed with celiac disease are sick for years before a proper diagnosis. It's tough to get a proper diagnosis or get comprehensive care once diagnosed. Most primary care providers know little about important follow up tests to determine your long-term treatment needs.
The U.S. food supply makes it quite difficult to be 100% gluten free, which is the only treatment once diagnosed. Cross-contact is common and leads to suboptimal or overt nutrition deficiencies. This often leads to recommendations of just taking more supplements instead of figuring out where you are being exposed. It's important to work with practitioners that fully understand your needs and the challenges of living gluten free. If you don't remove the exposure, you will continue to suffer (and supplements won't fix it). Also, some people suffer from refractory celiac disease, a complicated form of celiac disease that does not improve even after following a strict gluten-free diet.
If you are following a gluten free diet but don't feel your best, reach out to providers that work in this space and can provide the proper guidance. I am a dietitian living with celiac disease. I know how hard it is to feel better and get the right care! Appointments available at:
https://virtualnutritionist.co/