Spina Bifida Association of Florida

Spina Bifida Association of Florida To build a better and brighter future for all those impacted by Spina Bifida. Become a member. SBACFL Membership is free!

https://sbacentralflorida.org/become-a-member/

Hydrocephalus Awareness Month: The Connection to Spina BifidaFor many people with Spina Bifida, hydrocephalus is part of...
09/08/2026

Hydrocephalus Awareness Month: The Connection to Spina Bifida

For many people with Spina Bifida, hydrocephalus is part of their health journey from the very start.

Hydrocephalus occurs when cerebrospinal fluid builds up in the brain. About 60–80% of people with Spina Bifida need a shunt to help drain that excess fluid and relieve pressure on the brain.

While a shunt can effectively manage hydrocephalus, it also requires lifelong awareness. Shunts can malfunction or become infected, making it important for people with Spina Bifida, their families, and caregivers to understand how their shunt works and know what changes may signal a problem.

This Hydrocephalus Awareness Month, we’re highlighting a condition that is an important part of life for so many members of our community.

Learn more about hydrocephalus and shunts from SBA at https://vist.ly/5hnt8

📚 Resource Spotlight: Learning with Spina BifidaBack-to-school season is here! 🎒 We’re throwing it back to Learning with...
09/07/2026

📚 Resource Spotlight: Learning with Spina Bifida

Back-to-school season is here! 🎒 We’re throwing it back to Learning with Spina Bifida, a helpful presentation for people with Spina Bifida and their families.

Learn how executive functioning can impact learning, organization, completing tasks, and meeting deadlines — and what you can do to help.

🎥 Check out the recording: https://vist.ly/5hkuy

09/06/2026

📚 Back to School: Becoming An Advocate and Champion for Inclusive Play

Did you know play is an important part of learning and development? This session explored how inclusive playgrounds support children with Spina Bifida and shared practical tips for advocating for more inclusive play at schools and in communities.

🎥 Watch the session on YouTube: https://vist.ly/5hgi6

Our Walk-N-Roll season is powered by incredible partners! 🎉We’re excited to recognize our 2026 Season Snack Sponsor, Col...
09/02/2026

Our Walk-N-Roll season is powered by incredible partners! 🎉

We’re excited to recognize our 2026 Season Snack Sponsor, Coloplast, whose logo will be featured at the snack table at every Walk-N-Roll event throughout the season!

We’re also proud to recognize our 2026 Gold Sponsors
👏 Byram Healthcare
👏 Convatec Continence Care

We’re grateful to all of our sponsors for helping bring our community together, raise critical funds, and make a difference for people with Spina Bifida.

Join us in thanking these incredible partners for investing in the Spina Bifida community!

Ready to get involved? Register, start a team, or join us in making a difference: https://vist.ly/5h3js

September is Hydrocephalus Awareness Month and Sepsis Awareness Month — two observances that are especially important to...
09/01/2026

September is Hydrocephalus Awareness Month and Sepsis Awareness Month — two observances that are especially important to the community that we serve.

Hydrocephalus, a buildup of fluid in the brain, affects many people with Spina Bifida, and about 60–80% need a shunt to help manage it. People with Spina Bifida may also face a higher risk of urinary tract, shunt-related, and skin infections. If one becomes severe, it can lead to sepsis, the body’s extreme, life-threatening response that can damage tissues and organs.

Throughout September, we’ll be sharing more about hydrocephalus and sepsis, how they can affect people with Spina Bifida, and why early recognition of the signs of a potential problem is critical.

Awareness gives people the knowledge to recognize changes, ask questions, and advocate for their health.

08/28/2026

🎓 Preparing for college with a disability—or supporting someone who is?

Watch the recording of this informative webinar featuring Brian Gutierrez, a disability resource professional, national disability rights advocate, and person with lived experience of Spina Bifida.

Brian shares practical guidance on disability services, accommodations, self-advocacy, and successfully transitioning from high school to college.

Perfect for students, families, educators, and anyone supporting the college transition!

▶️ Watch now on YouTube: https://vist.ly/5gg63

🌟 Walk-N-Roll Your Way is coming to communities across the country—and Portland and Charleston are first in the lineup!C...
08/26/2026

🌟 Walk-N-Roll Your Way is coming to communities across the country—and Portland and Charleston are first in the lineup!

Can’t make it to an SBA chapter-hosted event? Walk-N-Roll Your Way gives community members the opportunity to gather, walk, roll, and fundraise together—wherever they are.

Every step, roll, and dollar raised helps provide trusted resources, connections, advocacy, and programs for individuals and families living with Spina Bifida.

💙 Joiin us in Portland, Charleston, or any of the 5 Walk-N-Roll Your Way locations! Register today and be part of Walk-N-Roll.

🔗 Register or learn more: https://vist.ly/5g9tv

Walk-N-Roll helps advance research, improve care, expand access, and empower advocacy.Support from Walk-N-Roll helps the...
08/21/2026

Walk-N-Roll helps advance research, improve care, expand access, and empower advocacy.

Support from Walk-N-Roll helps the Spina Bifida Association strengthen programs and initiatives that make a difference in the lives of people with Spina Bifida. From advancing research and improving care to expanding access to resources and empowering our community to advocate for change, your support helps SBA continue this important work.

When you register, fundraise, and support Walk-N-Roll, you're helping create greater opportunities, better care, and a better and brighter future for the Spina Bifida community.

Join us at Walk-N-Roll and help make an impact. Register today: https://vist.ly/5fp5p

08/21/2026

📖✨ A Special Reading: I Might Be Just a Little Bit Different ✨📖

Join Kelly Jeffers, author of I Might Be Just a Little Bit Different, and the Spina Bifida Association of the Carolinas for a special reading of this heartwarming children’s book!

💙 This beautiful story celebrates individuality, inclusion, and the wonderful things that make each of us unique.

🎥 Watch the reading: https://vist.ly/5fms6

📚 Want your own copy? You can purchase I Might Be Just a Little Bit Different by completing the order form here: https://vist.ly/5fmrz or by scanning the QR code shown at the end of the video.

🎒🛝 Happening Today!We're excited to welcome Dr. Ariel Mansholt, OTR/L, CPSI from Landscape Structures, Inc. as the featu...
08/20/2026

🎒🛝 Happening Today!

We're excited to welcome Dr. Ariel Mansholt, OTR/L, CPSI from Landscape Structures, Inc. as the featured presenter for Back to School: Becoming an Advocate & Champion for Inclusive Play.

Dr. Mansholt is a pediatric and adolescent occupational therapist with clinical experience in outpatient and school settings, working with children, teens, and their families from 18 months to 21 years old. Her expertise in child development and inclusive play will provide valuable insights and practical strategies for creating accessible, engaging play spaces for all.

Join us to learn how inclusive playgrounds can support children with Spina Bifida and how you can become an advocate for meaningful, accessible play in your community.

📅 Today – August 20
⏰ 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT
🔗 Register now: https://vist.ly/5cnje

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