Navi’s Miracle Liver Journey

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Navi’s Miracle Liver Journey I was born with Biliary Atresia. Diagnosed@9wks old.

October hits a little different for our family. In September 2025, we learned that Navi had liver disease, and our lives...
10/02/2026

October hits a little different for our family. In September 2025, we learned that Navi had liver disease, and our lives changed forever.

Thank you for standing with us through this journey. Now, we’re sharing Navi’s story with the world and hoping it brings awareness, comfort, and hope to other families facing this unimaginable reality. 💚

October is National Liver Month 💚
10/01/2026

October is National Liver Month 💚

Anybody else newly transplanted baby don’t sleep😫😫
09/30/2026

Anybody else newly transplanted baby don’t sleep😫😫

Navi’s hair is just everything 🤎
09/28/2026

Navi’s hair is just everything 🤎

Things a wish I knew when I heard the words Biliary Atresia💚
09/27/2026

Things a wish I knew when I heard the words Biliary Atresia💚

09/19/2026

They may not remember every procedure.

But they can still remember what it feels like to be afraid.

The blood draws. The IVs. The ultrasounds. The masks. The gloves. The people holding them still while something happens to their body that they don’t understand and can’t control.

For adults, it is necessary medical care.

For a child, it can become something much simpler:

This place hurts me.

This cart means a blood draw.

Those gloves mean someone is going to touch me.

That ultrasound machine means I’m going to have to lie still again.

So they hide their face.

They cling tighter.

They cry before anyone has even touched them.

They fight the ultrasound that doesn’t hurt.

They panic when the tourniquet comes out.

And sometimes people see a child who is being difficult.

What they may actually be seeing is a child who has learned, over and over again, to expect pain, fear, and a loss of control in medical spaces.

And that is one of the harder parts of growing up medically complex.

Because the care can be necessary and the trauma can still be real.

The procedures may have saved their life.

The blood draws may be keeping them safe.

The scans may be watching for problems before anyone else can see them.

But a child doesn’t experience those things as a list of medical necessities.

They experience them happening to their body.

Again.

And again.

And again.

So even when the appointment is routine, their fear may not be.

Even when everyone else knows they are safe, their body may still be preparing for the next thing that hurts.

Because a child can heal physically and still carry the fear of what it took to get there.

Nobody plans for the version of PARENTHOOD‼️
09/15/2026

Nobody plans for the version of PARENTHOOD‼️

Here’s a look at how Navi’s process went with her liver transplant. 💚
09/10/2026

Here’s a look at how Navi’s process went with her liver transplant. 💚

Last week was a busy week for Navi. She had a few scans to verify that her new Liver is functioning properly. God is Goo...
09/08/2026

Last week was a busy week for Navi. She had a few scans to verify that her new Liver is functioning properly. God is Good🙌🏾 The report is in and everything is working as it should. Lord we Thank you.

Address

2220 N Druid Hills Rd NE
Atlanta, GA
30329

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