Navi’s Miracle Liver Journey

27/08/2026

365 days of you, and many more to come! 🎂 Our little Navi is officially ONE! Her journey hasn't been easy, but her smile makes every struggle worth it.

27/08/2026

27/08/2026

Having a transplant mean your immune system has to be suppressed‼️

The immune system is doing exactly what it’s supposed to do.
And we have to stop it.

The immune system is designed to recognize what doesn’t belong and attack it.

A transplanted organ doesn’t belong.

So when the immune system recognizes that organ as foreign and tries to destroy it, it isn’t confused.

It’s doing its job.

And every day, transplant recipients take medications to tell it:
Don’t.

Immunosuppressants quiet that defense enough to protect the transplanted organ.

But they can’t tell the immune system to only leave the organ alone.

The same system we suppress is the system that protects the body from viruses, bacteria, and infection.

So life with a transplant becomes a balancing act:

Suppress enough to protect the organ.
But not so much that the body can’t protect itself.

Medication levels. Blood draws. Dose changes. Infection precautions.

Not because the transplant didn’t work.

Because this is how transplant works.

And sometimes staying alive means asking the body’s own defense system not to defend quite so hard.

There is no “after” transplant.

There is life with transplant.

26/08/2026

Therapy went a lot better this week‼️

19/08/2026

Mommy and me🙌🏾💜

13/08/2026

Navi’s face says it all😂🤭 Therapy day😍

12/08/2026

💫Today is one of those days I know I’ll remember forever.

She’s gaining weight, her transplant labs looked great, her liver enzymes are getting stable, and we’re stopping some medications and reducing others.

A few months ago, we were living minute by minute. Every day brought another lab, another scan, another procedure, another conversation we never imagined we’d have to have. There wasn’t time to process anything because we were just trying to make it through each day.

Holding my Navi without a tube on her face, a line coming out of her arm, or something attached to her little body brings me peace. I know that might sound like such a small thing, but to me, it feels monumental.

I’ve spent a lot of today looking back through old pictures. I was completely blinded by a mother’s love. I knew she was sick. I knew she was in liver failure. I knew she needed a transplant. But looking back now, I don’t think I truly realized just how sick she really was. Looking at her today, smiling and laughing and getting to just be a baby, it’s almost impossible to believe we’re looking at the same little girl.

I know everything hasn’t fully hit me yet. In a lot of ways, I still feel like I’m living one appointment to the next, one set of labs to the next, one medication change to the next. But with every milestone, I feel like I’m finally starting to come up for air.

Transplant isn’t the end of our story. It isn’t a cure—it is a second chance.

We’ll always have medications, frequent labs, appointments, and this incredible gift to protect. That reality doesn’t make today any less joyful. If anything, it makes milestones like this even more meaningful.

I don’t know if this is the kind of day I’ll fully appreciate now, or years from now when I look back at these pictures. Either way, I know I’ll never forget it.

12/08/2026

Being strong is my only choice. 💜

12/08/2026

These two conversations are daily. The one I say out loud and the one running through my head everyday 🫶🏾

05/08/2026

Biliary Artesia myth and facts‼️