UCB USA

UCB USA Official U.S. page for UCB Biopharma. Patients are at the heart of everything we do. Learn more at www.ucb-usa.com.

UCB is a global biopharmaceutical company focused on creating value for people living with severe diseases in immunology and neurology. We are unwavering in our purpose: delivering moments that matter for people impacted by severe diseases, now and into the future. People are at the heart of everything we do, inspiring us, driving our scientific discovery, and leading us to rethink the patient exp

erience. We work with stakeholders to address the unmet needs of patients and caregivers, helping them to achieve their goals and to live the lives they want. UCB is on a journey to be the patient-preferred biopharma leader by delivering medicines and solutions that improve lives while creating value for society.

06/18/2026

Living with psoriatic disease isn't just about what's visible. It can impact both the skin, joints and beyond, in ways that are often unseen but deeply felt.​

For the millions impacted, clear clinical data is more than a scientific achievement. It encourages better understanding and more informed conversations between patients and their care teams.​

Our partner Leah Howard, President and CEO of the National Psoriasis Foundation, shares why meaningful data matters and how it can help support more informed, personalized care conversations.​

06/17/2026

Did you guess correctly? 👀​

Let's see how you did:

1. ❌ FALSE: The only symptom of Dravet syndrome is seizures.​
Dravet syndrome can also impact communication, movement, sleep, behavior, and development.​

2. ✅ TRUE: Fever and heat are common seizure triggers in Dravet syndrome. ​
Temperature sensitivity is a hallmark feature, including seizures triggered by fever as well as by warm external temperatures. ​

3. ✅ TRUE: Dravet syndrome is lifelong. ​
It is not something a person outgrows. Individuals continue to experience seizures and other significant comorbidities into adulthood.​

Dravet syndrome is complex, lifelong, and often misunderstood. Throughout all , we're sharing facts that help build understanding and drive progress for the community. ​

We're committed to advancing what's possible for rare disease communities through research, advocacy partnerships, and support for efforts that help families feel seen, informed, and connected.​

Find resources at https://bit.ly/4xxDdj7.

06/16/2026

We’re headed to United Mitochondrial Disease Foundation's Conference and look forward to connecting with the mito community at 2026.​

We’re proud to help advance what’s possible for people like F***y, who lives with thymidine kinase 2 deficiency . Our progress in this rare genetic mitochondrial disease​

is only possible through collaboration with the medical, patient, and caregiver communities.​

Find at booth No. #28 to connect on our latest innovations in TK2d care and support.

In honor of Dravet Remembrance Day, we pause to remember the loved ones whose lives were lost to Dravet syndrome and hol...
06/15/2026

In honor of Dravet Remembrance Day, we pause to remember the loved ones whose lives were lost to Dravet syndrome and hold their families in our hearts. ​

Today is a day to honor their memory, recognize the grief carried by so many in our community, and continue raising awareness so more families feel seen, supported, and remembered. ​

💜 Visit DravetFoundation.org to learn more​
💜 Share resources with someone in your network ​
💜 Help raise awareness using and ​

​Together, we remember. Together, we continue forward in their honor.​

​

06/09/2026

For people living with gMG, cooking is not always simple. It can take extra energy, planning, and effort just to get through a meal.​

Through its partnership with the Myasthenia Gravis Foundation of America, Inc., UCB is supporting the MGFA Food Support Program to help address these everyday challenges.​

This initiative focuses on reducing the burden of meal preparation, improving access to nutritious food, and supporting energy and overall well being for people living with gMG.​

Because when patients feel supported in everyday moments, it can make a meaningful difference 💙​

Learn more at https://bit.ly/4oi0tgA.

06/08/2026

Dravet syndrome affects nearly every part of daily life, from managing seizures and ever-shifting routines to complex caregiving needs and planning for the future.​

This , you can help families feel seen and supported. Follow these three simple steps and pass along resources from Dravet Syndrome Foundation and Shine Forward With Dravet.

Find resources at https://bit.ly/3RYISOQ.

06/05/2026

Our team is absolutely obsessed with finding ways to help people living with psoriatic arthritis, a chronic, progressive condition that can have a major impact on daily life. Here are three ways we’re making an impact.​

1. Working with the medical community to encourage collaboration between rheumatologist and dermatologists to support earlier diagnosis for the third of people living with psoriasis who also may go on to develop psoriatic arthritis.​

2. Investing in ongoing research to help clinicians and patients understand options for each person's unique needs.​

3. Collaborating with advocacy groups like the National Psoriasis Foundation to build awareness and ensure our work puts addressing unmet patient needs before anything else.

06/04/2026

Whether you’re living with HS or supporting someone who is, your dreams deserve support, especially when it comes to education. 💜​

This , we’re proud to launch the first-ever UCB HS Scholarship created to help people living with HS and their immediate family members pursue educational and career goals. ​

In 2026, we will award 11 scholarships to eligible applicants, including 3 awards of up to $10,000 and 8 awards of up to $5,000.​

We're proud to support the HS community alongside HS Connect - Hidradenitis Suppurativa Connect, Hidradenitis Suppurativa Foundation , The Association of Hidradenitis Suppurativa and Inflammatory Diseases, and Make HStory.

Learn more and apply at https://bit.ly/4es0BpF.

06/03/2026

Drop a 💜 in the comments if hearing someone else’s story has ever helped you ⬇️​

In our latest episode of Raring to Listen, Christina, Family Network Ambassador, shares how opening up about her family’s journey with Dravet syndrome helped other caregivers feel less alone and why storytelling can be such a powerful form of connection for rare disease communities. ​

🎧 Listen to the latest episode of Raring to Listen on YouTube to hear how Christina turned her experience into community and advocacy: https://bit.ly/4fYLkyL

06/02/2026

From Dravet syndrome and Lennox-Gastaut Syndrome to gMG and TK2d, we’re committed to helping drive progress that addresses the needs of people living rare neurological and neuromuscular conditions. Here are 3 ways we’re locking in to work with these communities to help elevate lives.​

1. Our approach to rare disease innovation starts with listening to patient perspectives and collaboration with partners at advocacy organizations like the Dravet Syndrome Foundation, LGS Foundation, Myasthenia Gravis Foundation of America, Inc., and the United Mitochondrial Disease Foundation.​

2. We leverage emerging new tech to identify innovation opportunities, accelerate research around unmet needs and shorten the time to introducing effective new solutions wherever possible. ​
​
3. UCB aims to strengthen the ecosystem around patients with advocacy resources like ShineForwardwithDravet.com, ShineFowardwithLGS.com, MGConnections.com and TK2d.com that address the full patient experience, not just symptoms.

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