Children’s and Emory Pediatric Cystic Fibrosis Program

10/09/2026

🎉 We’re thrilled that our Children's Healthcare of Atlanta + Emory University Pediatric CF Program was awarded a 2026 Quality Care Award from the Cystic Fibrosis Foundation!

This award recognizes CF programs for outstanding quality improvement processes and accomplishments, and it was presented today at the North American CF Conference right here in Atlanta!

Congrats to our Emory Adult CF Program who received this award too. 👏

09/08/2026

Yesterday’s Big Peach Sizzler 5K reminded us what makes the Georgia CF community so special!

A record number of runners showed up — families, friends, clinicians, and people with CF themselves — all moving with purpose and heart. Seeing Dr. Linnemann, Dr. Tsai from our Emory Adult Cystic Fibrosis Program, Brandi Middour-Oxler (NP/Transition Program Coordinator) and so many of our CF families out on the course was a powerful reminder that this community shows up for one another in every season.

BreatheStrongCF has been a lifeline for families across Georgia. This year alone, they’ve provided over $38,000 in grocery and gas support to help families stay afloat during difficult moments. And their exercise grant program — more than $320,000 given nationally — has helped countless people with CF stay active, strong, and hopeful.

But due to recent budget constraints, exercise grants are currently paused. BreatheStrongCF hopes to reopen them soon — and days like yesterday make that hope feel real. Every runner, every volunteer, every cheer from the sidelines helps bring these programs closer to returning for the people who rely on them!!

If you’d like to support BreatheStrongCF or learn more about their impact, visit: https://breathestrongcf.org/donate/

If you would like to support our CHOA + Emory Sizzler team visit: https://raceroster.com/events/2026/109625/2026-big-peach-sizzler-10k-and-5k/pledge/team/61g

08/28/2026

Share Your Perspective: Take the Annual CF Insights Survey !
The CF Foundation wants to hear from you. The new Annual CF Insights Survey gives you the space to share your big picture - what’s m working, what’s hard, and what would make a real difference for the CF community. The survey is completely anonymous and takes about 10-15 minutes. Complete in English or Spanish by September 7, 2026, and opt in for a chance to win a gift card (subject to eligibility).
The Annual CF Insights Survey explores topics such as:
• Most urgent needs for the community
• Managing life with CF, including access to care and day-to-day burden
• Personal motivators and barriers to CF research
• Feedback on the CF Foundation

https://cff.qualtrics.com/jfe/form/SV_cXQWcpMTUVgPDhA?Source=13

The Cystic Fibrosis Foundation invites you to take part in the Annual CF Insights Survey, an opportunity to share your experiences and help shape the future of care, research, and support for the CF community. Be a part of it by sharing your perspectives to inform our work in a 10–15-minute survey...

06/09/2026

🦠🦠🦠Important info on recalled baby wipes! Please contact clinic with questions! 🦠🦠🦠

Target is voluntarily recalling Up & Up Fragrance Free and Up & Up Fresh Cucumber Scented Baby Wipes following customer complaints of product discoloration, and FDA testing that identified the presence of Burkholderia cepacia complex and Burkholderia gladioli in product samples.

05/17/2026

We had a wonderful time at Great Strides with our Children’s + Emory CF@LANTA crew! Thanks Cystic Fibrosis Foundation – Georgia Chapter for a great event!

03/06/2026

Members of our pediatric and adult CF care teams spent the past two days learning together at the Cystic Fibrosis Foundation’s CF Learning Network Conference! CFLN is a national quality improvement consortium where CF care teams across the country improve care together and learn from each other. Several of our Children’s + Emory team members presented our QI projects in the sessions!

02/27/2026

February 28th is Rare Disease Day 💜

Dr. Guglani and Dr. Linnemann joined the Rare Disease Day Symposium sponsored by the Emory Division of Medical Genetics, where cystic fibrosis was a highlighted topic!

02/19/2026

The CF Foundation’s BreatheCon 2026 starts tomorrow! This two-day virtual event is designed by adults with cystic fibrosis, for adults with CF. The program includes social opportunities, small-group discussions, workshops, and more. Register here!

Get tickets to BreatheCon 2026, taking place 20/02/2026 to 21/02/2026. RingCentral Events is your source for engaging events and experiences.

01/23/2026

Virtual CF Family Education day is tomorrow morning! Learn about hot topics in CF while you finish your storm prep. We hope to see you online!

01/21/2026

🚨 Important Update 🚨
Because of the potential for severe weather this weekend, CF Family Education Day will be virtual only. Zoom details will be sent to registered participants. We hope you can join us online - it’s a great agenda!