05/17/2026
Our first days home have been… a lot. Lots of TBI moms warned me. But it’s still more than I imagined. Medicines, tube feeds, baths, changing, splints, transfers, therapy exercises and all the little things in between. I’d be lying if I said it’s not exhausting in every possible way.
However, I can tell that Dilynn is settling in little by little . Every day she seems to fight and oppose things a little less. I am now able to do a squat pivot transfer without the sliding board because she’s started making an effort to stand and take some of her weight off me. This is a really big step because I hated using that board. 😆
We took Dilynn on her first outing to our little girls’ t-ball game - the first one I’ve gotten to attend also. It went well, but you can definitely tell she’s overstimulated easily. She tends to keep her head down and avoid looking around when other people are around. I think trying to process faces, voices, movement, and noise all at once is just too much for her brain right now. But I know that will get better as we slowly reintroduce different environments to allow her brain to learn to process them again. We will get there, one step at a time.
She really enjoys sitting on our back porch in the rocking chairs because she likes having more movement than what she can get in the wheelchair. It seems to be relaxing to her.
For Christmas, Dilynn and Peyton got tickets to go to a Treaty Oak Revival concert. Since Dilynn wasn’t able to go, Peyton brought a friend. It was nice to step away and breathe for a few hours. Dilynn’s dad and stepmom stayed with her while we were gone, and we were so thankful for that help. We are so incredibly grateful for Maddie, Dilynn’s cousin, for coming to stay with her so David and I could attend a wedding yesterday and to Peyton’s award ceremony Friday.
This new normal is not easy at all, but slowly we are settling into it. We are learning, adjusting, surviving hard days, celebrating victories, and figuring it out as we go.
