National Neuromuscular Research Institute

09/04/2026

NNRI has enrolled and dosed the first participant in the Phase 2 clinical trial evaluating apitegromab in adults with FSHD. We are so excited to kick off this study and continue contributing to FSHD research!

08/19/2026

We’re excited to share encouraging news from the Phase 3 ALKIVIA trial!

Argenx has announced positive topline results from the Phase 3 ALKIVIA trial evaluating Vyvgart Hytrulo in adults with autoimmune myositis.

The study met its primary endpoint in the combined immune-mediated necrotizing myopathy (IMNM) and dermatomyositis (DM) population, with improvements observed early and sustained throughout the study.

For people living with these rare neuromuscular conditions, continued research brings hope for a future with more treatment options. We’re encouraged to see progress being made and look forward to learning more as additional results become available.

Read more here: https://argenx.com/news/2026/press-release-3345813.html

The science of co-creation drives our quest to engineer life-changing immunology solutions, the resilient spirit of patients fuels our urgency to deliver them.

08/04/2026

A big thank you to Stephanie, Marisol, and Emil for representing us at Texas Neurological Society's Summer Conference!

TNS was a great opportunity to connect with neurologists, healthcare professionals, and others who share NNRI's commitment to improving care for people living with rare neuromuscular disorders.

Thank you to everyone who visited our booth. We enjoyed the conversations, the chance to share our work, and the opportunity to connect with so many people who are passionate about advancing neuromuscular research.

07/08/2026

Living with a rare neuromuscular disease isn't easy. If these signs sound familiar, it may be time to learn about clinical trial options, especially if your current treatment isn't enough.

07/03/2026

What if your CIDP treatment is helping...but not helping enough?

Many people living with CIDP continue to experience weakness, numbness, fatigue, or symptoms that return before their next treatment. If that sounds familiar, you're not alone.

Clinical research is exploring potential new therapies that may offer another option for people seeking better symptom control.

At NNRI, you'll be cared for by a team dedicated exclusively to rare neuromuscular diseases. Every participant receives specialized, compassionate care while helping advance research that could shape the future of CIDP treatment.

If you're interested in learning whether a clinical trial may be right for you, we'd love to talk.

06/23/2026

Some words from one of our research study participants: "I was 20 and had begun my studies at the University of Arizona when I was diagnosed with a rare and progressive neuromuscular disease... I’m an ambitious person. I’ve tried relentlessly to not let this disease bring me down. I’ve seen a lot of things in my short life, but this has been quite the disaster to say the least. I was a strong man but at the lowest points, I could barely open hands and raise arms. I could barely walk. Picking up a drink or cutting my food with a knife became a progressively more difficult challenge. Every week that passed it got harder to see the future that I had once saw. My medication slowly became less effective over the six five years, though it did keep me going. I’d been asking doctors from across the United States what I should do and what options there were. NO GOOD ANSWERS.

I couldn’t type. I couldn’t work or exercise. I got to a point in my life where I didn’t think there was a way back or be normal again. I didn’t want to face it, but I was out of options. The only treatment I had known for six years wasn’t able to keep me stable and viability was falling apart. From age 20 to early 26 I was skiing downhill without any control. If it wasn’t for Marisol and Dr. Yessar Hussain along with their team I’d be still lost in misery.

The last few months have been a new start to my life. A new me. I’ve never been more grateful to do the simplest of tasks which had been so difficult. Lauren who pokes me every visit doesn’t miss an IV. I’ve been to the various research centers and doctors’ offices in Texas and across the country. This team, their quiet facility, the medicine they have offered me, is unrivaled."

06/05/2026

During Myasthenia Gravis Awareness Month, we're shining a light on a disease that is often misunderstood but increasingly treatable. Listen to your body. Drooping eyelids, double vision, difficulty speaking, swallowing, or unexplained muscle fatigue deserve attention.

MG is a highly manageable condition, despite being a rare, chronic "invisible illness". Earlier diagnosis, greater awareness, and continued research are helping more people with MG live fuller, stronger lives.

For more information on the distinctions and diagnostic criteria, visit the Myasthenia Gravis Foundation of America. Click our link in bio to learn about clinical research trials and our currently enrolling studies.

06/04/2026

🎗️ June is Myasthenia Gravis Awareness Month.

Myasthenia gravis (MG) is a rare chronic autoimmune neuromuscular disease that causes weakness in the voluntary muscles of the body. While MG can impact daily life in significant ways, increased awareness helps drive understanding, support, advocacy, and research.

This month, we recognize the strength of those living with MG, honor their journeys, and help shine a light on a condition that affects thousands of individuals and families.

Together, we can raise awareness, support patients, and advance research.

05/22/2026

Early symptoms of ALS vary from person to person and can be very subtle and easily dismissed. If you are noticing these symptoms, seeking evaluation from a neurologist or a specialized neuromuscular center is an important first step. Trusted resources, including accredited care centers, are available through the ALS Association Care Services Finder. For more information about ALS, early symptoms, and how the disease may progress, visit The ALS Association or www.AustinNeuromuscle.com.

05/15/2026

ALS, also known as Lou Gehrig’s disease, is a progressive neurological disorder that impacts nerve cells responsible for muscle movement. While there is currently no cure, increased awareness and continued research bring hope to patients and families around the world.

At NNRI, we stand with the ALS community and remain committed to advancing neurological care, education, and innovation. 💙

💙 Join us in spreading awareness this month.