Long Covid Collective

06/17/2026

It’s trivia night tonight! Hope you have the spoons to join us!

Wednesday Night Hangout tonight at 6 central. Register one time and receive the link by email. Save the link to your calendar to use each Wednesday.

Welcome! You are invited to join a meeting: LCC Wednesday Night Hangout. After registering, you will receive a confirmation email about joining the meeting.

06/16/2026

It didn’t take long after my diagnosis before I started feeling uncomfortable when people asked, “How are you?”

That bothered me. It’s a kind question. Why was I reacting to it?

Eventually I realized there were two things going on.

First, if I happened to be doing better than the last time someone saw me, they often assumed the trend would continue. That makes perfect sense. Most illnesses move in a fairly predictable direction. You get sick, then you gradually recover.

Long COVID rarely works that way.

The second realization was that the question was missing a few words.

The question I needed was: How are you right now?

Because that’s the only answer I can give. I might feel decent this morning and be in a crash by afternoon. I might spend three days feeling terrible and wake up on the fourth feeling almost human again.

My answer has a very short shelf life. Sometimes just a few hours.

If you have someone who reacts like I do, adding “right now - I know it can change” signals that you get it. Shows you’ve been listening. I will take a leap and speak for the community: it means everything to us when people listen. 💙

06/15/2026

Long Covid, one symptom at a time.

This is part of our ongoing series highlighting the over 200 symptoms associated with Long Covid.

06/15/2026

For many people living with chronic illness, so much of life becomes focused on what you can no longer do.

Art can offer a different path.

In this clip, Cindy talks about the freedom of creating without expectations - no deadlines, no performance, no pressure to get it right - just the value of being present in your creativity.

🎧 The latest episode of The After is available now on YouTube and Spotify.

Join the conversation! What outlets keep you going through your chronic illness?

06/12/2026

The Creative Rest Circle is a quiet Zoom space where you can draw, write, knit, color, journal, work on a project, or simply sit and be. No art skills required. No pressure to talk. Cameras optional.

Come late. Leave early. Stay the whole time. Whatever works for your body.

🗓 Sunday, June 14
⏰ 6–8 PM ET / 5–7 PM CT
🔗 Virtual (register for Zoom Link)

Register at longcovidcollective.org!

06/12/2026

Support group today at noon, central.

Zoom is the leader in modern enterprise cloud communications.

06/12/2026

I understand pacing.

I don’t understand how to pace when brushing my teeth feels ambitious. 🤷🏻‍♀️

06/11/2026

Sometimes my comfort is eating marshmallows. They’re a consolation prize in the form of a squishy white lump of sugar.

The more crashes you have, and the longer they last, the harder it becomes to find little things that make the day feel even slightly more bearable.

So what’s yours?

Chips. Mac and cheese. A heating pad. Your dog. Reality TV. Oreos. Or maybe all of the above.
Zero judgment!