National Pandas/Pans Youth Alliance

06/11/2026

The only way to get the 512 folders done in time 🤭

But it worked and we are READY for PANS/PANDAS Capitol Hill Advocacy day! Meetings are about to start and we can’t wait to meet everyone!

06/10/2026

Can’t make it to Capitol Hill but still want to support? Now’s your chance! 🗣️🏛️

Donations to NPYA’s Givebutter help make Capitol Hill advocacy possible by funding educational materials for congressional offices, supporting youth advocates as they share their stories in Washington, D.C., and helping ensure these important conversations continue year after year.

Even if you’re unable to donate, sharing this fundraiser with friends and family can make a meaningful difference.

Every contribution helps amplify the voices of young people and families affected by PANS/PANDAS. 💚 Donate or learn more through the link in our bio.

06/07/2026

Join us in 15 minutes for a zoom advocacy prep to go over our tips for our Capitol Hill meetings coming up! 🗣️

NAPPA and NPYA will share tips for upcoming Capitol Hill meetings, discuss what to expect, and answer your questions about Advocacy Days.

We’ll also share our own experiences meeting with legislators and advocating for the PANS/PANDAS community.

Comment down below or DM us for the zoom link!

06/05/2026

We can’t wait for all of these exciting events happening next week!

Join us in DC as , , , and more come together for an incredible week of advocacy, connection, and community! 💚

Sign up below 👇

Advocacy Days (June 11–12) – Meet directly with Congressional offices and share your story
👉 Sign up here: https://docs.google.com/forms/d/e/1FAIpQLSfpcTIbl1fIPmRInfzHbk1-5sIPJuzHakBMEAGhjqw-EVlWpg/viewform
• Going the Distance for PANS & PANDAS Dinner (Arlington, VA | June 12) – An evening of connection and purpose hosted by The AlexManfull Fund
👉 Sign up here:https://givebutter.com/c/36-hours-pans-pandas-advocacy-in-motion-ukhmqg/members/paulmurphy3
• Making it to the Finish Line Auction (Online | June 5-14) – An online auction to raise funds for research and education on PANS & PANDAS
👉 Sign up here: https://givebutter.com/c/36-hours-pans-pandas-advocacy-in-motion-ukhmqg/members/paulmurphy3
• The Alex Manfull Fund 5K (Arlington, VA | June 13) – Walk or run in solidarity with families impacted by PANS/PANDAS. Attend in person or virtually from wherever you are.
👉 Sign up here: https://raceroster.com/events/2026/116084/the-alex-manfull-fund-5k
• National Zoo Community Event(June 13) – Join us for a fun, family-friendly gathering in theafternoon after the 5K—and visit the real-life PANDAS! 🐼
👉 More info on this event coming soon!

Whether you can join us for one event or the full experience, your presence matters. Every conversation, connection, and shared story helps move this community forward. Can’t wait to see you there!

06/04/2026

NPYA founder Kirk and his girlfriend Jackie take on the PANS/PANDAS Awareness Challenge!

Think you can do better? Try the challenge yourself and see if you can create the best (or worst!) panda while learning a little more about what it can feel like to live with a neuroimmune disorder like PANS/PANDAS. 🐼💚

And yes, this post was edited by Kirk…

05/31/2026

Myth or Fact: PANS/PANDAS aren’t real conditions…

(Spoiler: It’s a myth 🤭)

PANS/PANDAS are often misunderstood, and misinformation can make it even harder for patients and families to get the support they need.

A HUGE thank you to survivor Caroline (.panspandas ) for creating this awesome post!

Which myth or fact surprised you the most? Let us know in the comments! ⬇️

05/16/2026

Super cool! Thank you, The Alex Manfull Fund.

IntroductionPediatric autoimmune neuropsychiatric disorder associated with streptococcal infections (PANDAS) is characterized by the abrupt onset of obsessiv...