Owen Wilder Wagman: Heart of a Warrior

Owen Wilder Wagman: Heart of a Warrior Owen Wilder Wagman's journey — one little heart, a lot of love, and endless strength. Thank you for your support, prayers, and love.

Follow along for updates, photos, and stories as Owen bravely faces his heart condition with his family by his side.

Our family has gone from staring at heart monitors to celebrating milestones. Many of the tubes and wires that tethered ...
05/04/2025

Our family has gone from staring at heart monitors to celebrating milestones. Many of the tubes and wires that tethered Owen to machines have since been removed. We’re down to just a few attachments, and now, holding him is a completely different experience. He’s eagerly drinking his milk and regularly letting out loud cries, which means his vocal cords and his strength is back. In fact, he’s doing so well that just a few hours ago, we were moved out of the ICU and into a step‑down room which means he’s considered stable enough to need less intensive care.

If he continues to feed well and gain weight, he might be discharged soon! We know that leaving the hospital doesn’t mean the journey is over, but it will mark the end of this chapter of hospital life. Owen still has a hypoplastic left ventricle, a bicuspid aortic valve and a stenotic mitral valve that just barely scraped by from needing surgery at the moment. But today, our son has a much healthier aortic arch and a much brighter future than we previously thought. All of these ‘wins’ represent the countless prayers – your prayers, our prayers, prayers of people we will never even meet – that have gotten us to this point.

A passage that I keep coming back to is Psalm 126 – it talks about those who sow in tears reaping with joy, and it describes a scene where God’s people, after a hard season, find themselves laughing and celebrating because of His deliverance. We feel like we’re starting to live that out. There were a lot of tears sown in the ICU – tears on our pillows at night, tears over Owen’s bed, tears in each other’s arms when we didn’t know how things would turn out. Now, as things have improved, we find sprouts of joy emerging. Earlier this week, we were both laughing so hard that we had to remind ourselves that we’re still in a hospital. If you’re still sowing in tears, hold tight—joy’s roots run deep, and God never wastes a single teardrop.

When we first found out about Owen, Sami didn’t want to be referred to as ‘strong’. I know she didn’t feel strong at the...
05/03/2025

When we first found out about Owen, Sami didn’t want to be referred to as ‘strong’. I know she didn’t feel strong at the time, but over the last few months, I can say without a doubt that she met every uncertain moment with a strength that deserves recognition. She mastered medical terms, cardiac diagrams, and “what if” scenarios like a professional, and she faced her fears of C‑sections, hospitals and breathing tubes head on. And through it all, her faith never wavered. Even on the nights when she wrestled deeply with God, she kept reaching for Him, whispering prayers for Owen, squeezing my hand, and reminding me to pray a little longer, and a little harder.

What makes Sami’s journey even more extraordinary is that she never stopped loving others along the way. In between sleepless nights, belly kicks, and endless check‑ups, she still remembered other people’s birthdays and baby showers, sent out encouraging texts, and poured her heart into Walker so his world felt as normal as ever. There was nothing “picture-perfect” about these moments – just my wife, hair hastily thrown up, juggling a thousand responsibilities that no camera would ever capture. She gave, and kept giving, even when her own heart was breaking. It’s like she seemed to draw comfort by giving it away. Just like the foundation of a house keeps it standing, even though it’s buried out of sight, Sami’s unseen labor was the foundation of our family life during this crisis, holding us all together.

There are countless sacrifices she made that no one ever saw: pushing through physical discomfort during pregnancy, carrying mental stress without burdening anyone else, and waking up hour after hour to pump through breastfeeding pains just to keep Owen fed. Every one of Owen’s victories, every ounce gained, every tube removed, and every heartbeat he’s had from the day he was conceived carries the imprint of her care. Watching Sami mother Walker has been incredible—and knowing she’s doing it all over again with Owen makes me twice as excited. These boys will grow up knowing their mom moved heaven and earth for them—and that their dad is the luckiest man alive to have her by his side.

Nothing in yesterday’s surgery went as planned. At 5 a.m.- after maybe two hours of half-sleep - we initialed the consen...
04/29/2025

Nothing in yesterday’s surgery went as planned. At 5 a.m.- after maybe two hours of half-sleep - we initialed the consent form that listed a 10 percent chance of death or brain damage for our 6-day old son, and an even higher chance of a life marked by severe restrictions and complications.

We walked our son to the “hug zone,” and whispered ‘the blessing’ over him from Numbers 6:24 before handing him to the team that would stop his heart. Two hours later, God rewrote the script. The surgeon came in and told us he was scrapping everything we had originally discussed. After performing a transesophageal echo to examine Owen’s heart, he decided to preserve as much of it as possible. The plan completely changed! The new approach involved entering from Owen’s side rather than his chest, and it eliminated the need for a cardiopulmonary bypass machine and peritoneal dialysis. I don’t know how to put into words what we felt when we heard this, but I can tell you we cried so much we ran out of tears.

We won’t pretend we prayed for miracles every single day since we got the HLHS diagnosis, because some days we could barely muster up the faith to ask. But even our stuttering timid prayers were met with grace, and today, our son still has both of his ventricles intact. And because of it, every healing story that we read yesterday in Scripture felt more personal.

Owen has made it through a critical surgery, but he has a long recovery ahead and likely more hurdles (and possibly more surgeries) in the future. Still, we refuse to let fear of what’s ahead overshadow the thankfulness we feel today. We cherish and appreciate every prayer you’ve offered for him! We believe in the power of prayer because we’ve seen how God’s hand has already intervened. Your prayers, messages, and support have carried our family through the scariest time of our lives, and we will forever be grateful. Owen’s heart journey is far from over but We are in absolute awe of the intro that God has written for Owen’s life story!

There’s a moment tomorrow when a scalpel and a few millimeters will determine my whole families future. Our son is going...
04/27/2025

There’s a moment tomorrow when a scalpel and a few millimeters will determine my whole families future. Our son is going in for an 8-hour open heart surgery, and those 8 hours will determine what his life will or won’t look like. We’ve never been more scared, more uncertain, more helpless. I don’t have fancy words to offer up, but I’m reaching out in desperation, literally, begging you to pray for my son.

If mustard-seed faith moves mountains (Matthew 17:20), imagine what a few hundred mustard seeds can do at one time. Jesus is called the Great Physician, the Balm of Gilead, the Bread of Life, Miracle Worker, and Immanuel (God with us). We know He listens, He responds, and He turns desperate cries into songs of deliverance. Please please please pray for Owen today and tomorrow!

Today, Owen is nestled in his isolette, surrounded not just by wires and beeps but by photos of Mom, Dad, and big brothe...
04/26/2025

Today, Owen is nestled in his isolette, surrounded not just by wires and beeps but by photos of Mom, Dad, and big brother cheering him on. In a few days, he’ll have open-heart surgery, and right now every face he sees is a reminder that he is never alone. Yes, battles can bring hardship, but they can also unite armies, and there’s nothing this army won’t do.

We’ll decode every relevant cardiology research paper if it helps us understand his needs better. We’ll clean hundreds of milk bottles and pump parts if it means a drop more of food for him. We’ll entertain endless fetal‑echo conversations if it charts the clearest path for his tiny heart. And we’ll lose hours of sleep if it means he gets more attention and care.

Beyond our immediate team in the cardiac care unit, there’s a much larger army supporting both Owen and us. We’ve been looking through all the prayers that have been sent our way and reading them over him like bedtime stories. If love were a medicine, Owen’s heart would already be healed and this community would be sending him an overdose.

Through all of this, we know that Owen will know joy deeper than ease, purpose forged through pain, and a family held together by more than comfort. Scars will be part of Owen’s story—but so will every extra heartbeat.

04/24/2025

Even with all the wires, beeps, machines, worries, heavy hearts, and unknowns… Owen still finds a way to make the hard days feel lighter. His sweet little smile and the way he already soaks up his Dada’s love is more than enough to bring hope back into the room. I can already see them being the best of friends—just like “Dada” and Walker are.

Owen is only days old, but he is already so strong, so loving, and unbelievably sweet.

There’s no handbook for this - constant updates, tough conversations, tests that don’t go the way we prayed they would. Watching your baby fight is something no parent is ever ready for. But even in the heaviness, when fear creeps in, we’re reminded: God is still good and God is in control.

These little moments - his quiet strength, little smile, the way he responds to love, the joy that somehow finds its way in are everything right now.

We’re holding onto them - one breath, one prayer, one small miracle at a time.

Friends, meet our son, Owen Wilder Wagman, who was born yesterday with a heart that’s technically half‑sized but already...
04/23/2025

Friends, meet our son, Owen Wilder Wagman, who was born yesterday with a heart that’s technically half‑sized but already full of fight. We are still in the process of learning about his condition and surgical path, but we have so many things to praise God for already, like our community, our nurses, our smooth delivery, and most of all, our amazing new son!

The name Owen means “well-born” and “young warrior,” and we chose it to align with the hopes and prayers that we had for him in the first couple of weeks of his life. Within his first few breaths yesterday, his name already felt like it’s the most fitting name we could have chosen. “Wilder” tacks on a little adventure that we are eager to see come to life at some point in the future. I know it’s early, but already, we can hardly wait to take him on adventures when he is physically strong enough so that we can make sure that every single one of his heartbeats count. Whenever we call his name, we’ll remember not only this day, but also all of those dreams we have for his future.

We know God’s hand is on Owen’s life, and we can’t wait to see how He carries him through every step. Thank you all for your love, prayers, and for celebrating our little wonder with us. Continued prayers that we get positive results from the CT scan today!

Five months ago we learned Owen’s heart was special and would need surgery before leaving the hospital. At first the wei...
04/21/2025

Five months ago we learned Owen’s heart was special and would need surgery before leaving the hospital. At first the weight felt crushing—late‑night Google rabbit holes, countless “what‑ifs”, and ultimately more questions than answers. But day by day God kept showing up: in friends who cried with us and washed dishes without asking, in a fast‑tracked meeting with world‑class surgeon Dr. Fraser, in the countless gifts for Sami’s shower, and in a collection of prayers that we received this morning just 24 hours before delivery.

So here’s what we’re choosing to believe as we walk into the operating room:

❤️‍🩹 We do not walk alone. Psalm 34:18 tells us the Lord is close to the broken‑hearted. We know God is with us, and we know our community has got us!

❤️‍🩹 Scars can become stories. The scar on Owen’s chest will stand as a reminder that God heals in His own time and writes beauty into broken places.

❤️‍🩹 Excitement and anxiety can be found in the same heartbeat. We’re ridiculously excited to kiss pudgy cheeks and we’re also terrified of ICU alarms. Both emotions get space in this house.

We can’t wait to flood your feed with that first sleepy grin. Thank you for carrying our hopes when our hearts felt half‑full. From here on out, every extra heartbeat is a praise report.

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