09/09/2026
Get your first look at our next incredible story! ๐ฌ
A rare metabolic diagnosis like Tyrosinemia often brings a tidal wave of fear and overwhelming isolation. But it doesnโt have to stay that way. Watch the sneak peek to see how one parentโs search for answers became a global lifeline for thousands.
๐๏ธ In this episode of Metabolically Speaking, we sit down with Jon Miller, Founder and President of the Network of Tyrosinemia Advocates (NOTA). Jon shares his familyโs incredible journey from the uncertainty of a new diagnosis to building a worldwide community. We explore how small, courageous steps can transform isolation into deep connection, and why you donโt need to be an expert to make a life-changing impact.
๐ง Subscribe to Metabolically Speaking to catch the full episode the second it goes live.
Spotify: https://open.spotify.com/show/70JDd7ev6vM8dejRYjaYXM
Apple Podcasts: https://podcasts.apple.com/us/podcast/metabolically-speaking/id1831480558
Buzzsprout: https://www.buzzsprout.com/2522451
๐๐ช๐ด๐ค๐ญ๐ข๐ช๐ฎ๐ฆ๐ณ: ๐๐ฉ๐ฆ ๐ฐ๐ฑ๐ช๐ฏ๐ช๐ฐ๐ฏ๐ด ๐ฆ๐น๐ฑ๐ณ๐ฆ๐ด๐ด๐ฆ๐ฅ ๐ฉ๐ฆ๐ณ๐ฆ ๐ข๐ณ๐ฆ ๐ต๐ฉ๐ฐ๐ด๐ฆ ๐ฐ๐ง ๐ต๐ฉ๐ฆ ๐จ๐ถ๐ฆ๐ด๐ต๐ด/๐ข๐ถ๐ต๐ฉ๐ฐ๐ณ๐ด ๐ข๐ฏ๐ฅ ๐ฏ๐ฐ๐ต ๐ฏ๐ฆ๐ค๐ฆ๐ด๐ด๐ข๐ณ๐ช๐ญ๐บ ๐ณ๐ฆ๐ง๐ญ๐ฆ๐ค๐ต๐ช๐ท๐ฆ ๐ฐ๐ง ๐ต๐ฉ๐ฆ ๐ท๐ช๐ฆ๐ธ๐ด ๐ฐ๐ง ๐๐ซ๐ช๐ฏ๐ฐ๐ฎ๐ฐ๐ต๐ฐ ๐๐ข๐ฎ๐ฃ๐ณ๐ฐ๐ฐ๐ฌ๐ฆ ๐๐ฏ๐ค. ๐๐ฏ๐ฅ๐ช๐ท๐ช๐ฅ๐ถ๐ข๐ญ ๐ฆ๐น๐ฑ๐ฆ๐ณ๐ช๐ฆ๐ฏ๐ค๐ฆ๐ด ๐ฅ๐ฆ๐ด๐ค๐ณ๐ช๐ฃ๐ฆ๐ฅ ๐ฉ๐ฆ๐ณ๐ฆ๐ช๐ฏ ๐ข๐ณ๐ฆ ๐ถ๐ฏ๐ช๐ฒ๐ถ๐ฆ ๐ข๐ฏ๐ฅ ๐ฏ๐ฐ๐ต ๐ฏ๐ฆ๐ค๐ฆ๐ด๐ด๐ข๐ณ๐ช๐ญ๐บ ๐ณ๐ฆ๐ฑ๐ณ๐ฆ๐ด๐ฆ๐ฏ๐ต๐ข๐ต๐ช๐ท๐ฆ ๐ฐ๐ง ๐ต๐บ๐ฑ๐ช๐ค๐ข๐ญ ๐ฐ๐ถ๐ต๐ค๐ฐ๐ฎ๐ฆ๐ด. ๐๐ฉ๐ฆ ๐ค๐ฐ๐ฏ๐ต๐ฆ๐ฏ๐ต ๐ด๐ฉ๐ข๐ณ๐ฆ๐ฅ ๐ต๐ฐ๐ฅ๐ข๐บ ๐ช๐ด ๐ง๐ฐ๐ณ ๐ฆ๐ฅ๐ถ๐ค๐ข๐ต๐ช๐ฐ๐ฏ๐ข๐ญ ๐ฑ๐ถ๐ณ๐ฑ๐ฐ๐ด๐ฆ๐ด ๐ฐ๐ฏ๐ญ๐บ.